Men’s experiences of alopecia areata: A qualitative study

Zucchelli, Fabio; Sharratt, Nick; Montgomery, Kerry; Chambers, J.

doi:10.1177/20551029221121524

Cited by 11 publications

(9 citation statements)

References 52 publications

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“…Feelings of sadness, insecurity, inadequacy, and selfconsciousness (8), as well as feelings of depression, anxiety, and suicidal thoughts (7) were prevalent. The majority of qualitative research highlights that people struggle with everyday activities, such as participating in sports or social events, due to a fear of their appearance being noticed (7)(8)(9). The unpredictable nature of AA was also highlighted as a source of distress in particular (7,8) and women seem to report more stress and distress than men (10,11).…”

Section: Introductionmentioning

confidence: 99%

Anxiety, depression, and quality of life in children and adults with alopecia areata: A systematic review and meta-analysis

Dalen

Muller

Kasperkovitz-Oosterloo³

et al. 2022

Front. Med.

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IntroductionAlopecia areata (AA) is a non-scarring hair loss condition, subclassified into AA, alopecia universalis, and alopecia totalis. There are indications that people with AA experience adverse psychosocial outcomes, but previous studies have not included a thorough meta-analysis and did not compare people with AA to people with other dermatological diagnoses. Therefore, the aim of this systematic review and meta-analysis was to update and expand previous systematic reviews, as well as describing and quantifying levels of anxiety, depression, and quality of life (QoL) in children and adults with AA.MethodsA search was conducted, yielding 1,249 unique records of which 93 were included.ResultsReview results showed that people with AA have higher chances of being diagnosed with anxiety and/or depression and experience impaired QoL. Their psychosocial outcomes are often similar to other people with a dermatological condition. Meta-analytic results showed significantly more symptoms of anxiety and depression in adults with AA compared to healthy controls. Results also showed a moderate impact on QoL. These results further highlight that AA, despite causing little physical impairments, can have a significant amount on patients’ well-being.DiscussionFuture studies should examine the influence of disease severity, disease duration, remission and relapse, and medication use to shed light on at-risk groups in need of referral to psychological care.Systematic review registration[https://www.crd.york.ac.uk/prospero/], identifier [CRD42022323174].

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Section: Introductionmentioning

confidence: 99%

Anxiety, depression, and quality of life in children and adults with alopecia areata: A systematic review and meta-analysis

Dalen

Muller

Kasperkovitz-Oosterloo³

et al. 2022

Front. Med.

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“…It also emerged consistently across subgroups, although among males, it was not one of the most frequently cited. As suggested by Zuchelli et al (2022) 2017). Although many individuals report greater social satisfaction because of cosmetic strategies (Park et al, 2018), in the present study, some reported that use hindered their acceptance of AA and only served as a "social buffer," suggesting that use might curb one's adjustment and comfort within social contexts.…”

Section: Active Copingmentioning

confidence: 79%

“…It also emerged consistently across subgroups, although among males, it was not one of the most frequently cited. As suggested by Zuchelli et al (2022), this may be due to social stigmas and gendered marketing associated with hairpiece use. Regardless, such coping strategies are frequently noted in the existing literature, particularly among women (e.g., Matzer et al, 2011; Montgomery et al, 2017).…”

Section: Discussionmentioning

confidence: 99%

Peer-Recommended Coping Strategies for Individuals Living With Alopecia Areata

Huck,

Brickham,

Shelton

2024

European Journal of Health Psychology

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Background: Alopecia areata (AA) is a chronic immunological disease characterized by hair loss on the scalp and/or body. Medical treatments are frequently ineffective, leaving many individuals with little hope for hair regrowth. Despite high rates of psychological turmoil experienced by people living with AA, little consideration is given to the unique impact of the condition and the potential benefits of coping approaches. Aims: The purpose of this study was to establish a foundation of strategies for coping with AA as recommended by people currently living with the diagnosis. Method: An international sample of 190 participants shared perspectives on types of strategies they believe would be useful for living with AA. A qualitative content analysis approach was used to code and group participant responses. Results: Frequently identified strategies included various forms of social support and strategies for social navigation, perspective-shifting, cosmetic strategies and procedures, and accessing medical and psychological interventions. Limitations: Participants were limited to a largely female convenience sample. The findings were not associated with real-life outcomes, only anecdotal recommendations. Conclusion: The findings of the present study further support prior research yet offer unique perspectives as well.

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“…Strategies for managing AA may also differ by gender, with men who have AA noting sociocultural barriers to using many aesthetic products like wigs. 11 Despite most of these products and services also incurring monetary costs, no research has quantified their direct financial cost. Recent case-control research established the notable indirect costs of AA via elevated rates of mental health service use, diagnoses of common mental health conditions, absenteeism and unemployment in affected individuals compared to controls.…”

Section: Introductionmentioning

confidence: 99%

Establishing the financial burden of alopecia areata and its predictors

Zucchelli,

Harries,

Messenger

et al. 2023

Skin Health and Disease

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BackgroundAlopecia areata (AA) can have a significant impact on wellbeing. Consequently, individuals with AA often seek treatments or products to promote hair regrowth or camouflage their hair loss that incur a financial cost to the individual.ObjectivesThe current study aimed to examine the direct financial burden of AA to understand the wider impact of the condition and the factors which influence spending on products and services.MethodsA total of 829 United Kingdom based participants completed an online survey. Demographic and condition‐specific data were collected, alongside spending on AA‐related products and services. Participants were asked about their use of products and services, the associated costs, how they financed these costs, and their household income to determine what percentage of income they spent on products and services.ResultsParticipants predominantly identified as female (85.9%), white (92.7%) with a mean age of 42.7 years and a median AA duration of 10.94 years. Female gender, Asian ethnicity, lower income, and worse AA symptoms predicted higher spend from income. Wigs were the most common product used and incurred the greatest cost (median £700). The highest cost for men was private dermatology services (median = £550). On average people spent 3% of their disposable income (prior to housing costs) on AA‐related products and services.ConclusionsThis study outlines the risk factors associated with higher financial burden from managing AA which require consideration by health providers, commissioners, and policy makers when designing services to support the wellbeing of people living with AA.

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Men’s experiences of alopecia areata: A qualitative study

Cited by 11 publications

References 52 publications

Anxiety, depression, and quality of life in children and adults with alopecia areata: A systematic review and meta-analysis

Anxiety, depression, and quality of life in children and adults with alopecia areata: A systematic review and meta-analysis

Peer-Recommended Coping Strategies for Individuals Living With Alopecia Areata

Establishing the financial burden of alopecia areata and its predictors

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