Menopause Matters: The Implications of Menopause Research for Studies of Midlife Health

Newhart, Michelle

doi:10.5172/hesr.2013.3292

Health Sociology Review

2013

DOI: 10.5172/hesr.2013.3292

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Menopause Matters: The Implications of Menopause Research for Studies of Midlife Health

Michelle Newhart¹

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2020

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“…Rates of depression, anxiety and suicidal feelings surge ( Pinkerton & Stovall, 2010 ; Soares & Maki, 2010 ; Usall et al, 2009 ), perhaps partly underpinned by the effects of the menopause on the hypothalamic–pituitary–adrenal (HPA) axis, which controls the stress response ( Gordon et al, 2016 ; Reed et al, 2016 ). Perimenopause and menopause are also associated with a raft of physiological symptoms and long-term health risks which, alongside the mood and cognitive changes, affect relationships, daily living, work performance and general well-being ( Newhart, 2013 ). Accordingly, many women fear the menopause ( Hoga et al, 2015 ) and these attitudes are important, as is the social environment.…”

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‘When my autism broke’: A qualitative study spotlighting autistic voices on menopause

Moseley

Druce

Turner‐Cobb

2020

Autism

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Autistic women often struggle with the onset of menstruation, a key transition point in the female reproductive lifespan. Presently, there is no research investigating how autistic people navigate the menopausal transition, and whether it poses additional challenges in addition to those already faced by neurotypical women. As a preliminary participatory study in this area, we conducted an online focus group with seven autistic individuals, aged 49–63 years (median = 64.5 years) and assigned female at birth, to explore the state of knowledge about the menopause in autism, difficulties the menopause might bring, support that might be needed, and what questions require scientific investigation. Thematic analysis of the discussion generated three themes: (a) lack of knowledge and understanding; (b) cracking the mask and adaptive functioning; and (c) finding support. Themes suggested a lack of professional knowledge, understanding and communication about menopause for autistic people, and an absence of support. Menopause was discussed as heightening pre-existing and generating new cognitive, social, emotional and sensory difficulties. This study illustrates the need for greater focus of attention towards how autistic people cope with the major life transition of menopause. Lay abstract Autistic girls are known to struggle with the onset of menstruation, reporting that during their period, sensory sensitivities are heightened, it becomes more difficult to think clearly and control their emotions and they struggle more with everyday life and self-care. Yet surprisingly, nothing is known about how autistic women handle the menopausal transition in midlife. In non-autistic women, the menopause brings many physical changes and challenging symptoms from hot flushes to feeling more anxious and depressed. Because autistic women are already vulnerable to suicide, poor physical and mental health, and because they may already struggle with planning, controlling their emotions and coping with change, the menopause may be an especially challenging time. Yet, not one single study exists on the menopause in autism, so we conducted an online discussion (focus group) with seven autistic women. They confirmed that very little is known about menopause in autistic people, very little support is available and that menopause might be especially difficult for autistic people. Autism-related difficulties (including sensory sensitivity, socializing with others and communicating needs) were reported to worsen during the menopause, often so dramatically that some participants suggested they found it impossible to continue to mask their struggles. Participants also reported having extreme meltdowns, experiencing anxiety and depression, and feeling suicidal. This study highlights how important it is that professionals pay attention to menopause in autism, and discusses future research directions.

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confidence: 99%

‘When my autism broke’: A qualitative study spotlighting autistic voices on menopause

Moseley

Druce

Turner‐Cobb

2020

Autism

View full text Add to dashboard Cite

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Menopause Matters: The Implications of Menopause Research for Studies of Midlife Health

Cited by 1 publication

References 56 publications

‘When my autism broke’: A qualitative study spotlighting autistic voices on menopause

‘When my autism broke’: A qualitative study spotlighting autistic voices on menopause

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