Mental Health Multimorbidity among Caregivers of Older Adults During the COVID-19 Epidemic

Li, Qiuxuan; Zhang, Haifeng; Zhang, Ming; Li, Tao; Ma, Wanxin; An, Cuixia; Chen, Yanmei; Li, Sha; Kuang, Weihong; Yu, Xin; Wang, Huali

doi:10.1016/j.jagp.2021.01.006

Cited by 25 publications

(23 citation statements)

References 40 publications

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“…In addition to fear, the caregivers in our study also described having psychosomatic symptoms such as sadness, poor concentration, unhappiness, anger, insomnia, and guilt. The prevalence of sleep problems among caregivers of older adults with neurocognitive disorders during the COVID-19 period was found to be 9.4-10.8%, which is lower than in the present study [49,50].…”

Section: Discussioncontrasting

confidence: 89%

“…Wimberly et al [42] reported in their study that 77% of caregivers of childhood cancer survivors had increased feelings of anxiety due to the outbreak. Nearly half (46.8%) of caregivers of older people with neurocognitive disorders were found to have anxiety during the COVID-19 pandemic [49,50]. Some studies have evaluated fear in caregivers of PWC during the pandemic, and one group reported detecting psychological distress in 46.5% of long-term caregivers [51].…”

Section: Discussionmentioning

confidence: 99%

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The effect of anxiety and spiritual well-being on the care burden of caregivers of cancer patients during the COVID-19 pandemic

Akkuş

Karacan

Ünlü

et al. 2021

Support Care Cancer

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Objectives The COVID-19 pandemic has adversely affected the caregivers of people with all chronic diseases, including people with cancer (PWC). This study was conducted to determine the impact of anxiety and spiritual well-being on the care burden of caregivers of PWC during the COVID-19 pandemic. Design This cross-sectional descriptive study included 250 caregivers of hematology and oncology patients registered with a cancer support association. All participants completed the following self-report questionnaires: the Spiritual Well-Being Scale (SWBS), Generalized Anxiety Disorder 7-item scale (GAD-7), and the Zarit Caregiver Burden Interview (ZBI). Results Most (82.4%) of the caregivers expressed fear that their patient may contract COVID-19, and 42.0% stated that they had difficulty getting to the hospital. The caregivers’ mean ZBI score was 21.06 ± 14.64, their mean GAD-7 score was 14.51 ± 6.02, and their mean SWBS score was 111.50 ± 16.84. According to the results of regression analysis, SWBS and GAD-7 scores had a significant effect on the ZBI score ( p < 0.05). Conclusion In this study, anxiety explained most of the care burden during COVID-19. Therefore, during the COVID-19 pandemic, it may be beneficial to implement practices to promote spirituality and reduce anxiety in caregivers of PWC. Supplementary Information The online version contains supplementary material available at 10.1007/s00520-021-06611-0.

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Section: Discussioncontrasting

confidence: 89%

Section: Discussionmentioning

confidence: 99%

The effect of anxiety and spiritual well-being on the care burden of caregivers of cancer patients during the COVID-19 pandemic

Akkuş

Karacan

Ünlü

et al. 2021

Support Care Cancer

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“…In fact, despite the fact that care providers differ in their working style, motivations, and aims between formal and informal caregivers, COVID-19 brought about overlapping responsibilities and a shift in roles that led both populations of caregivers to experience increased and imbalanced care distribution that negatively affected their mental well-being [ 33 , 34 ]. They were not only exposed to higher levels of stress, anxiety, and depression [ 35 , 36 ], but also equally revealed sleep disturbances [ 37 ], frustration, and hopelessness during their caregiving roles, with the consequent risk of struggling with negative emotions, such as self-criticism and shame [ 38 , 39 ].…”

Section: Introductionmentioning

confidence: 99%

Psychological Support Interventions for Healthcare Providers and Informal Caregivers during the COVID-19 Pandemic: A Systematic Review of the Literature

Bertuzzi

Semonella

Bruno

et al. 2021

IJERPH

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Background: During the COVID-19 pandemic, healthcare providers and informal caregivers were at an increased risk of adverse mental health effects. This systematic review provides a summary of the available evidence on the content and efficacy of the psychological support interventions in increasing mental health among healthcare providers and informal caregivers during the COVID-19 pandemic. Methods: PubMed, Google Scholar, PsychINFO, and Scopus databases were systematically searched for relevant articles, and the methodological quality of selected articles was assessed using the Quality Assessment Tool for Quantitative Studies. Results: A search of electronic databases identified five reports based on inclusion and exclusion criteria. All psychological support interventions for caregivers were delivered digitally. Despite the large heterogeneity of the selected studies, the findings support the efficacy of mental health interventions in reducing distress and burnout, while promoting self-efficacy and well-being in both healthcare providers and informal caregivers. Conclusion: Since mental health problems are expected to increase during, and as a result of, the COVID-19 pandemic, and digital tools might offer a range of mental health treatments to meet the unique and immediate needs of people, further research is needed to test the cost-effectiveness of digital psychological interventions.

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“…More specifically, studies focused on caregivers have identified perceived changes in sleep quality. One study of caregivers (family caregiver, in-home paid caregivers, and nursing home staff) of older adults conducted in China in March 2020 found that 10.8% of respondents reported sleep problems ( Li et al, 2021b ). Another study also conducted in China with family caregivers of persons living with neurocognitive disorders, such as dementia or mild cognitive impairment, found that 9.4% of respondents reported sleep problems (defined as sleep duration of less than 4 or more than 8 hours/night, reduced sleep quality) ( Li et al, 2021a ).…”

Section: Discussionmentioning

confidence: 99%

Sleep Quality Among Informal Caregivers During the COVID-19 Pandemic: A Cross-Sectional Study

Greaney

Kunicki

Drohan

et al. 2022

Gerontology and Geriatric Medicine

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Sleep is an integral component of health. The impact of the COVID-19 pandemic on sleep quality among informal caregivers, individuals who provide unpaid care or assistance to family members or friends, assisting older adults is not well understood. Therefore, informal caregivers in the United States providing care for individuals aged 50+ were recruited via Amazon’s Mechanical Turk, an online platform for enrolling study participants into social and behavioral science research, to complete an online survey. The sample of informal caregivers ( n = 835) was 69% male and 55% non-Hispanic. Multivariable linear regression models were constructed to assess the associations between sleep disturbance scores (SDS) and sleep-related impairment scores (SIS) and caregiving-related measures (hours caregiving/week, length of time spent caregiving, and caregiver burden), demographics, and region of the United States. The analysis determined that Black (β = 2.6, 95% CI [−4.3, −0.9]) and Asian informal caregivers (β = −1.8, 95% CI [−3.4, −0.3]) had lower mean SIS than White caregivers, the referent group. In addition, increasing caregiver burden was associated with increased SDS (β = 0.8, 95% CI [0.6, 1.0]) and SIS (β = 1.3, 95% CI [0.7, 1.6]). In conclusion, higher caregiver burden was associated with higher SIS and SDS, suggesting that informal caregivers' sleep should be assessed, and when needed interventions should be offered.

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Mental Health Multimorbidity among Caregivers of Older Adults During the COVID-19 Epidemic

Cited by 25 publications

References 40 publications

The effect of anxiety and spiritual well-being on the care burden of caregivers of cancer patients during the COVID-19 pandemic

The effect of anxiety and spiritual well-being on the care burden of caregivers of cancer patients during the COVID-19 pandemic

Psychological Support Interventions for Healthcare Providers and Informal Caregivers during the COVID-19 Pandemic: A Systematic Review of the Literature

Sleep Quality Among Informal Caregivers During the COVID-19 Pandemic: A Cross-Sectional Study

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