Editor's Note: To claim one AMA PRA Category 1 Credit™ for the CME activity associated with this article, you must do the following: (1) read this article in its entirety, (2) answer at least 80 percent of the quiz questions correctly, and (3) complete an evaluation. The quiz, evaluation, and form for claiming AMA PRA Category 1 Credit™ are available through the AMA Education Center.
AbstractBy examining mental illness through the lens of intimate firsthand accounts of caregivers and patients, including caregiver blogposts and a conversation between Liza Long and her son as recorded by StoryCorps, we demonstrate how new media can be leveraged to shift societal perceptions of those with mental illness from blameworthy potential perpetrators of terror to vulnerable persons in need of compassion and support. Exploring patient, caregiver, and societal roles through a close reading of new media firsthand accounts, we argue for shared responsibility in caring for those with mental illness and, in particular, for physicians to leverage their unique knowledge of the patient experience by promoting media coverage of stories of mental illness recovery.
IntroductionIn August 2013, after publishing a controversial online essay, Liza Long interviewed her 13-year-old son Michael (not his real name) for StoryCorps, a nonprofit founded in 2003 to house American stories in the Library of Congress. In the preceding months, Liza launched into the national spotlight as a mental illness advocate by providing her unique perspective as a mother of a boy whose violent rages and inconsistent behavior-due to bipolar disorder-frightened her. In her essay, "I Am Adam Lanza's Mother" [1], Liza imagined her life resembling that of Lanza's mother, who was killed by her son prior to his violent rampage in Newtown, Connecticut, which left 26 elementary school children and staff members dead. Lanza's untreated mental illness renewed the national debate on mental health and violence and the misconception of their connectedness [2].National coverage of mental health disproportionately focuses on violence, rarely exploring the lived experience of mental illness [3]. StoryCorps and online essay forums offer a different type of media, free from journalistic interpretation and capable of www.amajournalofethics.org 20 exploring the firsthand thoughts and feelings of those experiencing depression, mania, or anxiety as well as the experiences of those persons' loved ones. The StoryCorps interview, "Liza Long and 'Michael'" [4], is a waypoint on Liza's path to mental health advocacy and provides a rich source from which to explore mental illness in the medium of storytelling. In the spirit of StoryCorps, the interview gives rare insight into Michael, the person from whom Liza's fear springs and her strength emanates.Through a close reading of new media firsthand accounts, including the StoryCorps narrative and blogposts, we explore perspectives of both persons with mental illness and caregivers to demonstrate how firsthand accounts can be leveraged to shi...