Mindfulness and parenting distress among parents of children with disabilities: A literature review

Rayan, Ahmad; Ahmad, RN Muayyad

doi:10.1111/ppc.12217

Cited by 42 publications

(33 citation statements)

References 32 publications

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“…Items were rated using a 4-point Likert scale ranging from 0 ("Did not apply to me at all") to 3 ("Applied to me very much, or most of the time") and were summed to yield a single total score between 0 and 42 with higher scores indicating greater levels of distress. The DASS has been used as a measure of parent psychological distress in both intervention and non-intervention studies that included parents of autistic individuals (Conner and White 2014;Lunsky et al 2015;Rayan and Ahmad 2018). In a previous study (Lunsky et al 2017), a 14-item psychological distress score demonstrated excellent internal consistency (Cronbach's α = 0.94).…”

Section: Dassmentioning

confidence: 99%

Group Virtual Mindfulness-Based Intervention for Parents of Autistic Adolescents and Adults

Lunsky

Albaum

Baskin

et al. 2021

J Autism Dev Disord

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Section: Dassmentioning

confidence: 99%

Group Virtual Mindfulness-Based Intervention for Parents of Autistic Adolescents and Adults

Lunsky

Albaum

Baskin

et al. 2021

J Autism Dev Disord

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“…Furthermore, mindfulness-based interventions for parents of children with chronic issues (attention deficit hyperactivity disorder, developmental delays, autism) have been shown to be effective for lessening parental stress and mental health problems. Improvements in parentchild relationships and improved youth behavior management have also been found [33].…”

Section: Mindfulness-based Interventionsmentioning

confidence: 96%

A live-online mindfulness-based intervention for children living with epilepsy and their families: protocol for a randomized controlled trial of Making Mindfulness Matter©

Puka

Bax

Andrade

et al. 2020

Trials

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Background Epilepsy extends far beyond seizures; up to 80% of children with epilepsy (CWE) may have comorbid cognitive or mental health problems, and up to 50% of parents of CWE are at risk for major depression. Past research has also shown that family environment has a greater influence on children’s and parents’ health-related quality of life (HRQOL) and mental health than epilepsy-related factors. There is a pressing need for low-cost, innovative interventions to improve HRQOL and mental health for CWE and their parents. The aim of this randomized controlled trial (RCT) is to evaluate whether an interactive online mindfulness-based intervention program, Making Mindfulness Matter (M3), can be feasibly implemented and whether it positively affects CWE’s and parents’ HRQOL and mental health (specifically, stress, behavioral, depressive, and anxiety symptoms). Methods This parallel RCT was planned to recruit 100 child-parent dyads to be randomized 1:1 to the 8-week intervention or waitlist control and followed over 20 weeks. The intervention, M3, will be delivered online and separately to parents and children (ages 4–10 years) in groups of 4–8 by non-clinician staff of a local community epilepsy agency. The intervention incorporates mindful awareness, social-emotional learning skills, and positive psychology. It is modeled after the validated school-based MindUP program and adapted for provision online and to include a parent component. Discussion This RCT will determine whether this online mindfulness-based intervention is feasible and effective for CWE and their parents. The proposed intervention may be an ideal vector to significantly improve HRQOL and mental health for CWE and their parents given its low cost and implementation by community epilepsy agencies. Trial registration ClinicalTrials.gov NCT04020484. Registered on July 16, 2019.

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“…Da Paz and Wallander () narratively reviewed varied forms of psychological interventions on their efficacy in augmenting the mental health of parents with children living with ASD, but inconclusive evidence was found. Four reviews examined the efficacy of mindfulness‐based interventions on the mental health of parents of children with developmental disabilities (Cachia et al, ; Keenan‐Mount et al, ; Ó Donnchadha, ; Rayan & Ahmad, ). The narrative reviews found that mindfulness‐based interventions were effective in relieving parental stress.…”

Section: Introductionmentioning

confidence: 99%

“…Reviews that aim to evaluate the efficacy of psychological interventions in improving the stress, depression as well as anxiety of parents with children and adolescents with developmental disabilities are warranted as previous reviews are outdated, synthesized narratively or focused on a specific type of psychological intervention (Cachia, Anderson, & Moore, 2016;Da Paz & Wallander, 2017;Hastings & Beck, 2004;Keenan-Mount, Albrecht, & Waters, 2016;Ó Donnchadha, 2018;Rayan & Ahmad, 2018;Singer, Ethridge, & Aldana, 2007). Hastings and Beck (2004) evaluated the efficacy of stress management interventions in relieving stress faced by parents of children with learning disabilities using a narrative summary.…”

Section: Introductionmentioning

confidence: 99%

Psychological interventions in reducing stress, depression and anxiety among parents of children and adolescents with developmental disabilities: A systematic review and meta‐analysis

Sohmaran

Shorey

2019

Journal of Advanced Nursing

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Aims To evaluate the effectiveness of psychological interventions in reducing stress, depression and anxiety among parents of children and adolescents with developmental disabilities. Design A systematic review and a meta‐analysis. Data sources Seven electronic databases (CINAHL, CENTRAL, EMBASE, ProQuest Dissertation and Theses, PsycINFO, PubMed and Scopus) were searched from each database's point of inception to December 2018. Review methods Quality appraisal was conducted using the Cochrane Risk of Bias Tool. Data were analysed using Review Manager 5.3. The overall quality of evidence was evaluated using the Grading of Recommendations Assessment, Development and Evaluation system. Results A total of 18 studies were included in this review. Eleven studies were involved in a meta‐analysis and the remaining seven studies were summarized narratively. The meta‐analysis found that psychological interventions significantly reduced parental stress at postintervention but not at 3–6 months’ postintervention. Inconclusive evidence was found for the effectiveness of psychological interventions in reducing parental depression and anxiety. Conclusion Psychological interventions appeared to reduce parental stress temporarily. Healthcare professionals can offer varied psychological interventions for parents to choose from. Policymakers can ease accessibility and affordability for parents to attend interventions. Impact Psychological interventions were found to have short‐term effects in reducing parental stress. Inconclusive evidence was found for the effectiveness of psychological interventions in reducing parental depression and anxiety. Healthcare professionals should ensure that knowledge is transmitted to parents when delivering their interventions. Policymakers worldwide should ensure that parents of children and adolescents with developmental disabilities can attend interventions by making them accessible and affordable.

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Mindfulness and parenting distress among parents of children with disabilities: A literature review

Abstract: The results of this first review on the topic provide preliminary support for the efficacy of MBIs for supporting parents of children with disabilities.

Cited by 42 publications

References 32 publications

Group Virtual Mindfulness-Based Intervention for Parents of Autistic Adolescents and Adults

Group Virtual Mindfulness-Based Intervention for Parents of Autistic Adolescents and Adults

A live-online mindfulness-based intervention for children living with epilepsy and their families: protocol for a randomized controlled trial of Making Mindfulness Matter©

Psychological interventions in reducing stress, depression and anxiety among parents of children and adolescents with developmental disabilities: A systematic review and meta‐analysis

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