Minimising collateral damage: family peer support and other strategies

Leggatt, Margaret

doi:10.5694/j.1326-5377.2007.tb01340.x

Cited by 19 publications

(35 citation statements)

References 8 publications

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“…This can be channeled into political action through participation in family groups, such as the National Alliance on Mental Illness, which has played a strong role in obtaining legal parity of coverage for health care. As described in other studies (18,19), this study showed that families want information and support and more involvement in the care and recovery of their loved ones. Their wishes are consonant with calls by the President’s Commission for more patient- and family-centered care (29) and calls by the IOM for involving patients and families in the design, administration, and delivery of treatment and recovery services (31).…”

Section: Discussionsupporting

confidence: 80%

“…Focus groups have identified that families want more involvement, support, advice on managing symptoms, aid in navigating treatment systems, and contact with other families (18,19). Specifically, families requested multifamily psychoeducational groups in which patients are not present, rapid outreach after diagnosis, phone support from trained peers, and information on illness and treatment.…”

mentioning

confidence: 99%

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Families' Experience With Seeking Treatment for Recent-Onset Psychosis

Gerson¹,

Davidson²,

Booty³

et al. 2009

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Objective Qualitative research methods were used to understand the experiences of families seeking treatment for young people with recent-onset psychosis; such knowledge can inform services design. Methods The authors conducted open-ended interviews in 1999 through 2002 with family members of 13 patients with recent-onset nonaffective psychotic disorders in the New York metropolitan area, focusing on their experience in seeking treatment and engaging with mental health services. Results Family members described early lack of clarity of diagnosis and obstacles to obtaining treatment. Entry into the mental health system frequently occurred in the context of crisis, with African-American families specifically reporting police involvement. Inpatient hospitalization was depicted as traumatic yet offering relief. Aftercare was described as fragmented, and issues with third-party payers were paramount. Families expressed a desire for more education, information, and support and described their struggles with stigma. These data from families are presented in the context of more recent literature as to the efficacy of specialized treatment programs for early stages of psychotic disorder and their involvement of families. Conclusions These qualitative research data support the importance of involving and educating families about psychosis: its recognition, its treatment, and access to services. They also highlight the need to address stigma and implement structural changes in treatment that ensure continuity and coverage of care. Specialized first-episode psychosis services may address these issues, and they may minimize the traumatic experiences of involuntary hospitalization and police involvement early in treatment.

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Section: Discussionsupporting

confidence: 80%

mentioning

confidence: 99%

Families' Experience With Seeking Treatment for Recent-Onset Psychosis

Gerson¹,

Davidson²,

Booty³

et al. 2009

View full text Add to dashboard Cite

show abstract

“…). Furthermore, actively engaging parents and carers in care impacts positively on the entire family (Leggatt ; Yeun and Toumbourou ).…”

Section: Family‐inclusive Practicementioning

confidence: 99%

Client and parent feedback on a Youth Mental Health Service: The importance of family inclusive practice and working with client preferences

Coates

2016

Int J Mental Health Nurs

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In mental health settings, feedback from clients and carers is central to service evaluation, development and delivery. Increasingly, client and carer feedback is considered an integral part of service planning, and recognized as a critical element of the provision of recovery oriented service. This paper outlines the findings of a qualitative evaluation of a Youth Mental Health (YMH) service from the perspective of discharged clients and their parents. The service researcher conducted telephone interviews with 39 parents of discharged clients, and 17 young people themselves. Participants reported positive or mixed experiences with the service. In addition to more generic positive statements about the service, analysis identified two key themes: the importance of 'family inclusive practice' and the importance of 'working with client preferences'. Young people and their parents want to be actively engaged in treatment and have their treatment preferences considered in treatment planning. Participants expressed the importance of "a good fit" between the client and the worker in terms of the clinician's gender, personality and treatment style/modality. While for some participants these themes were raised in the context of service strengths, others identified them as limitations or opportunities for service improvement. The extent to which clients and their parents felt engaged and heard by their allocated clinician is critical to their satisfaction or dissatisfaction with the service, depending on their unique experience. As an outcome of this evaluation, a range of service improvement strategies have been recommended.

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“…While peer support services are well developed in adult services, both for families and for primary consumers (Verhaeghe et al . 2008), so far there has been relatively little reported about the impact of peer support services for families of children and adolescents with a mental illness, despite increasing recognition of the importance and value of such services (Leggatt 2007). This study aimed to fill a gap in the literature by investigating how parents have utilized a consumer consultant support service provided in the inpatient unit of a Queensland child and youth mental health service.…”

Section: Introductionmentioning

confidence: 99%

Sharing the load: Parents and carers talk to consumer consultants at a child and youth mental health inpatient unit

Geraghty

McCann

King

et al. 2011

Int J Mental Health Nurs

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Caring for a child or adolescent affected by mental illness has been identified as imposing stresses and burdens in excess of those usually associated with child rearing. Peer support has been identified as one means by which these stresses and burdens can be reduced. This study investigated the work of a peer support service provided by Mater Child and Youth Mental Health Service in Brisbane, Australia. The study took the form of a content analysis of records of consultations between consumer consultants and 50 families/carers of children admitted into the acute inpatient unit during the period May 2006-April 2008. The content analysis identified four key themes or domains: experience of service provision, emotions and feelings associated with the admission, need for information, and coping with challenges. The findings from the study affirm the role of consumer consultants in child and adolescent inpatient services. Some families value a peer perspective and the opportunity to seek advice and information around a wide variety of topics from people not directly involved in the treatment of their child.

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Minimising collateral damage: family peer support and other strategies

Cited by 19 publications

References 8 publications

Families' Experience With Seeking Treatment for Recent-Onset Psychosis

Families' Experience With Seeking Treatment for Recent-Onset Psychosis

Client and parent feedback on a Youth Mental Health Service: The importance of family inclusive practice and working with client preferences

Sharing the load: Parents and carers talk to consumer consultants at a child and youth mental health inpatient unit

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