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ObjectiveFor emerging adults with inflammatory bowel disease, future uncertainty is a critical issue during this pivotal stage of life, study and career development, as they encounter many unknown challenges and opportunities. However, to the best of our knowledge, only a few qualitative studies on how emerging adults with inflammatory bowel disease cope with these uncertainties exist. This study aimed to investigate uncertainties associated with the future of emerging adults with inflammatory bowel disease and explore coping strategies.DesignA qualitative semistructured interview study with a phenomenological approach. Face-to-face semistructured interviews were conducted, audio-recorded, transcribed verbatim and subsequently analysed using the Colaizzi seven-step analysis method.SettingA tertiary hospital in eastern China.ParticipantsParticipants (n=14) were emerging adults with inflammatory bowel disease recruited from a tertiary hospital in eastern China, using a purposeful sampling technique.ResultsFourteen patients completed the interviews. Four themes were identified: uncertainties in educational and vocational planning, social and interpersonal relationships, mental and emotional health and disease management. Moreover, the participants emphasised the significance of timely patient education postdiagnosis and ensuring consistent medical guidance after discharge to minimise uncertainty and alleviate confusion. They also hoped to manage the disease through traditional Chinese medicine.ConclusionsThis study provides valuable insights into the various challenges encountered by emerging adults with inflammatory bowel disease and the factors that may impact their experiences. Additionally, it suggests the need for healthcare providers to devise suitable support and intervention strategies to guide and establish stable management of the patients’ uncertain futures.Trial registration numberChiCTR2300071289.
ObjectiveFor emerging adults with inflammatory bowel disease, future uncertainty is a critical issue during this pivotal stage of life, study and career development, as they encounter many unknown challenges and opportunities. However, to the best of our knowledge, only a few qualitative studies on how emerging adults with inflammatory bowel disease cope with these uncertainties exist. This study aimed to investigate uncertainties associated with the future of emerging adults with inflammatory bowel disease and explore coping strategies.DesignA qualitative semistructured interview study with a phenomenological approach. Face-to-face semistructured interviews were conducted, audio-recorded, transcribed verbatim and subsequently analysed using the Colaizzi seven-step analysis method.SettingA tertiary hospital in eastern China.ParticipantsParticipants (n=14) were emerging adults with inflammatory bowel disease recruited from a tertiary hospital in eastern China, using a purposeful sampling technique.ResultsFourteen patients completed the interviews. Four themes were identified: uncertainties in educational and vocational planning, social and interpersonal relationships, mental and emotional health and disease management. Moreover, the participants emphasised the significance of timely patient education postdiagnosis and ensuring consistent medical guidance after discharge to minimise uncertainty and alleviate confusion. They also hoped to manage the disease through traditional Chinese medicine.ConclusionsThis study provides valuable insights into the various challenges encountered by emerging adults with inflammatory bowel disease and the factors that may impact their experiences. Additionally, it suggests the need for healthcare providers to devise suitable support and intervention strategies to guide and establish stable management of the patients’ uncertain futures.Trial registration numberChiCTR2300071289.
Background: Due to the improvement of living standards and the aging of the population, the medical and health field has attracted much attention.Among them, nutrition management has become the focus of domestic research.Nowadays,with the rapid development of the Internet, developers have developed wechat nutrition management mini programs aimed at improving and monitoring the nutritional health status of individuals. However, there has been insufficient scientific evaluation of the functionality and quality of the various nutritional applets that have emerged on the market. Objective:The purpose of this study was to evaluate the function and quality of China's wechat nutrition management mini program by using uMARS scale, and to explore the relationship between user rating, function rating and user-version mobile application Rating Scale (uMARS). Methods:Search for keywords such as nutrition, diet and meals on wechat platform, screen related mini programs according to inclusion and exclusion criteria, screen mini programs registered, updated and in use from January 2017 to November 2023, and collect basic information about mini programs such as experience score, registration time, update time and service type . The main functions of the mini program were integrated and summarized, and the function score of each mini program was obtained in the form of 1 point for each function. The quality of the mini program for nutrition management was evaluated by the user version Mobile Mini Program Rating Scale (uMARS) by 2 nutrient-related field evaluators and 1 user experiencer.Results: Of 891 small programs were searched and 27 small programs related to nutrition management were finally obtained. 85.2% (23/27) of the mini programs provide diet management, record daily diet to assess nutritional status, 70.4% (19/27) of the mini programs provide nutrition knowledge and classroom teaching, 59.3% (16/27) of the mini programs provide exercise management, daily exercise clock. Only 44.4% (12/27) of the mini programs included weight management.The uMARS total quality median score (out of 5) was 3.38(IQR3.13-3.58), indicating that most small programs scored higher than 3 points ,and the overall range 2.85 to 3.88. The dimensions of engagement ranged from 2 to 4.33 (median 3, IQR 2.67-3.67), with 2 being the lowest score for uMARS. The functional dimension ranges from 3 to 4(IQR 3.33-4), but there are two scores outside the normal range, 2.67 and 4.33. The aesthetic dimension ranges from 2.33 to 4.67 (median 3.67, The informational dimension ranges from 2.33 to 4.67 (median 3.33,.Conclusions: This research evaluated the application of wechat mini programs related to nutrition management. The uMARS scale shows that these mini programs are of average quality, and most concentrate on health rather than nutrition. And the quality is uneven, the function is not perfect, urgent improvement. The future development direction should focus on enhancing quality, innovative functions, and encourage the active participation of professionals ...
BACKGROUND Due to the improvement of living standards and the aging of the population, the medical and health field has attracted much attention.Among them, nutrition management has become the focus of domestic research.Nowadays,with the rapid development of the Internet, developers have developed wechat nutrition management mini programs aimed at improving and monitoring the nutritional health status of individuals. However, there has been insufficient scientific evaluation of the functionality and quality of the various nutritional applets that have emerged on the market. OBJECTIVE The purpose of this study was to evaluate the function and quality of China's wechat nutrition management mini program by using uMARS scale, and to explore the relationship between user rating, function rating and user-version mobile application Rating Scale (uMARS). METHODS Search for keywords such as nutrition, diet and meals on wechat platform, screen related mini programs according to inclusion and exclusion criteria, screen mini programs registered, updated and in use from January 2017 to November 2023, and collect basic information about mini programs such as experience score, registration time, update time and service type . The main functions of the mini program were integrated and summarized, and the function score of each mini program was obtained in the form of 1 point for each function. The quality of the mini program for nutrition management was evaluated by the user version Mobile Mini Program Rating Scale (uMARS) by 2 nutrient-related field evaluators and 1 user experiencer. RESULTS Of 891 small programs were searched and 27 small programs related to nutrition management were finally obtained. 85.2% (23/27) of the mini programs provide diet management, record daily diet to assess nutritional status, 70.4% (19/27) of the mini programs provide nutrition knowledge and classroom teaching, 59.3% (16/27) of the mini programs provide exercise management, daily exercise clock. Only 44.4% (12/27) of the mini programs included weight management.The uMARS total quality median score (out of 5) was 3.38(IQR3.13-3.58), indicating that most small programs scored higher than 3 points ,and the overall range 2.85 to 3.88. The dimensions of engagement ranged from 2 to 4.33 (median 3, IQR 2.67-3.67), with 2 being the lowest score for uMARS. The functional dimension ranges from 3 to 4(IQR 3.33-4), but there are two scores outside the normal range, 2.67 and 4.33. The aesthetic dimension ranges from 2.33 to 4.67(median 3.67,IQR3.33-4) The informational dimension ranges from 2.33 to 4.67(median 3.33, IQR 2.67-3.67). CONCLUSIONS This research evaluated the application of wechat mini programs related to nutrition management. The uMARS scale shows that these mini programs are of average quality, and most concentrate on health rather than nutrition. And the quality is uneven, the function is not perfect, urgent improvement. The future development direction should focus on enhancing quality, innovative functions, and encourage the active participation of professionals to provide more scientific and practical personalized diet guidance.
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