Mobile health technologies for the management of systemic lupus erythematosus: a systematic review

Dantas, Lucas Ogura; Weber, Serena; Osani, Mikala C.; Bannuru, Raveendhara R.; McAlindon, Timothy E.; Kasturi, S.Psi. Taufik

doi:10.1177/0961203319897139

Cited by 34 publications

(42 citation statements)

References 44 publications

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“…A five-point Likert questionnaire was designed after reviewing the relevant studies conducted on self-care against COVID-19 or its management [3,13,[21][22][23][24][25] and investigating the websites of the WHO, the International OCD Foundation, and the Centres for Disease Control and Prevention (CDC) [26][27][28]. e questionnaire was designed to determine the required information and features for developing the application and helped collect the opinions of obstetricians and pregnant women about the significance of these needs.…”

Section: Methodsmentioning

confidence: 99%

The Development and Usability Assessment of an mHealth Application to Encourage Self-Care in Pregnant Women against COVID-19

Moulaei

Sheikhtaheri

Ghafaripour

et al. 2021

Journal of Healthcare Engineering

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The coronavirus disease 2019 (COVID-19) pandemic has caused serious concerns in pregnant women. Self-care mHealth applications can provide helpful guidelines for COVID-19 prevention or management in case of infection. This study aimed to develop and then assess a self-care smartphone-based application to provide self-care for pregnant women against COVID-19. The present study was conducted in two phases. First, a needs assessment was performed based on the opinions of 30 obstetricians and pregnant women. Then, relying on the results, a smartphone-based application was prototyped and assessed in terms of its usability and user satisfaction. To assess the application, 36 pregnant women (11 infected with COVID-19) were asked to use the application for a week. The QUIS questionnaire 5.5 was used for assessment, and the results were analyzed via descriptive statistics in SPSS 23. According to the obstetricians and pregnant women, of the 41 information requirements, 35 data elements were noted to be essential in the needs assessment. Features of the application were placed in four categories of User’s Profile, Lifestyle, Disease Management and Control, and Application Functions (e.g., introducing high-risk places in terms of COVID-19 prevalence in each city, introducing specialized COVID-19 medical centers to pregnant women to receive services, medication management, stress management and control, nutrition and diet management, sleep management, contacting physicians, doctor’s appointment reminder, searching the available educational materials, and making application adjustments such as text font, size, and color). With an average score of 7.94 (out of 9), pregnant women rated the application at a good level. The application can be used to reduce anxiety and stress about COVID-19 in mothers, provide access to reliable information to answer possible questions, identify high-risk locations, and provide pregnant women with instant access to healthcare facilities and information related to COVID-19 self-care processes.

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Section: Methodsmentioning

confidence: 99%

The Development and Usability Assessment of an mHealth Application to Encourage Self-Care in Pregnant Women against COVID-19

Moulaei

Sheikhtaheri

Ghafaripour

et al. 2021

Journal of Healthcare Engineering

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“…The percentage of drug adherence using web-based education with social media intervention improved significantly from 50 to 92% [ 182 ]. A recent systematic review study assessed mobile health technologies to support the management of cSLE and adult SLE, and it demonstrated that currently available instruments were of poor quality and limited functionality [ 183 ].…”

Section: Drug Adherence For Adolescentsmentioning

confidence: 99%

An Update on the Management of Childhood-Onset Systemic Lupus Erythematosus

et al. 2021

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Childhood-onset systemic lupus erythematosus (cSLE) is a prototype of a multisystemic, inflammatory, heterogeneous autoimmune condition. This disease is characterized by simultaneous or sequential organ and system involvement, with unpredictable flare and high levels of morbidity and mortality. Racial/ethnic background, socioeconomic status, cost of medications, difficulty accessing health care, and poor adherence seem to impact lupus outcomes and treatment response. In this article, the management of cSLE patients is updated. Regarding pathogenesis, a number of potential targets for drugs have been studied. However, most treatments in pediatric patients are off-label drugs with recommendations based on inadequately powered studies, therapeutic consensus guidelines, or case series. Management practices for cSLE patients include evaluations of disease activity and cumulative damage scores, routine non-live vaccinations, physical activity, and addressing mental health issues. Antimalarials and glucocorticoids are still the most common drugs used to treat cSLE, and hydroxychloroquine is recommended for nearly all cSLE patients. Disease-modifying antirheumatic drugs (DMARDs) should be standardized for each patient, based on disease flare and cSLE severity. Mycophenolate mofetil or intravenous cyclophosphamide is suggested as induction therapy for lupus nephritis classes III and IV. Calcineurin inhibitors (cyclosporine, tacrolimus, voclosporin) appear to be another good option for cSLE patients with lupus nephritis. Regarding B-cell-targeting biologic agents, rituximab may be used for refractory lupus nephritis patients in combination with another DMARD, and belimumab was recently approved by the US Food and Drug Administration for cSLE treatment in children aged > 5 years. New therapies targeting CD20, such as atacicept and telitacicept, seem to be promising drugs for SLE patients. Anti-interferon therapies (sifalimumab and anifrolumab) have shown beneficial results in phase II randomized control trials in adult SLE patients, as have some Janus kinase inhibitors, and these could be alternative treatments for pediatric patients with severe interferon-mediated inflammatory disease in the future. In addition, strict control of proteinuria and blood pressure is required in cSLE, especially with angiotensin-converting enzyme inhibitor and angiotensin receptor blocker use.

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“…In regard to SSc/SLE eHealth support, web-based resources are often of low quality, have inadequate readability and limited functionality. [9][10][11] Several studies demonstrate that patients with rare connective tissue diseases and their providers are interested in web-based education and support. [12][13][14] However, few online programmes focus on critical concepts of health equity, patient engagement and empowerment.…”

Section: Key Messagesmentioning

confidence: 99%

Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study

et al. 2021

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ObjectivesWe engaged patients with systemic sclerosis (SSc) and healthcare professionals to assess electronic health (eHealth) literacy and needs relating to web-based support using internet-based information and communication technologies (ICT).MethodsWe employed an explanatory sequential mixed methods design. First, we conducted a cross-sectional survey in patients (n=101) and professionals (n=47). Next, we conducted three focus groups with patients, family members and professionals (n=17).ResultsOf patients, 89.1% used ICT at least weekly for private communication. Patients reported relatively high comprehension of eHealth information (x¯ =6.7, 95% CI: 6.2 to 7.3, range 1–10), yet were less confident evaluating information reliability (x¯ =5.8, 95% CI: 5.1 to 6.4) and finding eHealth apps (x¯ =4.8, 95% CI: 4.2 to 5.4). Patients and professionals reported little experience with web-based self-management support. Focus groups revealed ‘considering non-ICT-accessible groups’ and ‘fitting patients’ and professionals’ technology’ as crucial for acceptability. In relation to understanding/appraising eHealth, participants highlighted that general SSc information is not tailored to individual’s disease course. Recommendations included ‘providing timely, understandable and safe information’ and ‘empowering end-users in ICT and health decision-making skills’. Professionals expressed concerns about lacking resources. Patients were concerned about data security and person-centredness. Key eHealth drivers included ‘addressing end-user perceptions’ and ‘putting people at the centre of technology’.ConclusionsPatients and professionals need education/training to support uptake of eHealth resources. Key elements include guiding patients to timely/reliable information and using eHealth to optimise patient–provider communication. Design that is responsive to end-users’ needs and considers individuals with limited eHealth literacy and/or ICT access appears to be critical for acceptability.

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Mobile health technologies for the management of systemic lupus erythematosus: a systematic review

Cited by 34 publications

References 44 publications

The Development and Usability Assessment of an mHealth Application to Encourage Self-Care in Pregnant Women against COVID-19

The Development and Usability Assessment of an mHealth Application to Encourage Self-Care in Pregnant Women against COVID-19

An Update on the Management of Childhood-Onset Systemic Lupus Erythematosus

Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study

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