Modeling linkages between self-efficacy, normalization, and well-being factors among Israeli mothers of children with neurodevelopmental disorders

Hamama, Liat

doi:10.1016/j.ridd.2022.104295

Cited by 5 publications

(5 citation statements)

References 69 publications

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“…However, there were no differences in PSS from family members or significant others (Hamama, 2023). Conversely, parents in the current sample reported significantly higher levels of satisfaction with life than did Israeli mothers of children with neurodevelopmental disorders (ages 3-17; M = 12.08, SD = 3.39) (Hamama, 2022). Additionally, they reported significantly lower levels of psychological distress than did Australian parents of children with neurodevelopmental disorders (ages 2-17; M = 9.7, SD = 3.8) (Diaz et al, 2021).…”

Section: Does Coping Flexibility Mediate the Effects Of Pss On Parent...contrasting

confidence: 66%

“…The original MSPSS had an internal reliability of α = 0.91 ( Zimet et al, 1988 ), and the Hebrew adaptation was shown to have a reliability of α = 0.91 ( Ben-Ari and Gil, 2004 ). This measure was previously utilized to evaluate PSS among parents of children and youth diagnosed with neurological disorders ( Hamama, 2022 ). In the current study, Cronbach’s alphas were as follows: for family support, 0.80 at T1, 0.89 at T2, and 0.85 at T3; for friends’ support, 0.80 at T1, 0.90 at T2, and 0.92 at T3; and for support from a significant other, 0.90 at T1, 0.85 at T2, and 0.87 at T3.…”

Section: Methodsmentioning

confidence: 99%

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Well-being among parents of youth with multiple sclerosis: a preliminary longitudinal study

Hamama,

Hamama-Raz,

Lebowitz-Sokolover

et al. 2024

Front. Psychol.

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BackgroundIn 2021, the annual rate of pediatric-onset multiple sclerosis (POMS) in Israel among children was 1.5, and 4.5% among youth aged 14–18, out of a total of 5,000 multiple sclerosis cases nationwide. Children diagnosed with POMS often display various deficiencies across psychological, cognitive, sensory, and physical areas. As such, POMS poses significant challenges for parents’ well-being, with heightened emotional, financial, and physical strains linked to both the immediate and long-term care requirements of their children. In this preliminary study, we examined changes over three time-points in two measures of well-being: satisfaction with life and psychological distress. In addition, the role of perceived social support (PSS) and coping flexibility was examined through a multilevel causal mediation model which suggested that PSS 1 month post-diagnosis would predict coping flexibility at 6 months post-diagnosis, which in turn would predict parents’ life satisfaction and psychological distress at 12 months post-diagnosis.MethodsThe research was conducted at a tertiary university-affiliated children’s hospital in central Israel. Preliminary data were obtained from 36 parents at three times-points. Participants provided demographic information and filled out the following standardized self-report questionnaires: the Diener’s Satisfaction with Life Scale, Kessler’s inventory for measuring psychological distress (K6), the Multidimensional Scale of Perceived Social Support (MSPSS), and the Perceived Ability to Cope with Trauma Scale (PACT) for measuring coping flexibility.ResultsOver time (12 months), parents reported stable levels of PSS, coping flexibility, satisfaction with life, and psychological distress. In addition, mothers reported significantly greater PSS from friends than did fathers. Regarding the causal mediation model, greater PSS from friends at T1 was significantly associated with an increase in coping flexibility from T1 to T2. In turn, an increase in coping flexibility was associated with a decrease in psychological distress from T1 to T3 (after controlling for PSS). Yet the causal mediation path via coping flexibility to satisfaction with life was not significant.ConclusionThis preliminary study emphasizes the important role of both PSS and coping flexibility for the well-being of parents whose children are affected by POMS, a subject that merits heightened consideration among healthcare professionals dealing with long-term chronic diseases.

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Section: Does Coping Flexibility Mediate the Effects Of Pss On Parent...contrasting

confidence: 66%

Section: Methodsmentioning

confidence: 99%

Well-being among parents of youth with multiple sclerosis: a preliminary longitudinal study

Hamama,

Hamama-Raz,

Lebowitz-Sokolover

et al. 2024

Front. Psychol.

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“…The first theme is about participants' appreciation of attending and learning from facilitators and peers within a group environment that helped toward normalizing the separation process. Normalization refers to the process of the individual understanding that their family circumstances, as well as their personal reactions, are shared by others in similar situations (Hamama, 2022; Knafl et al, 2010). The SPARK Program helped to normalize the experience of the “taboo subject” (Participant 3) because “it was beneficial in the sense of understanding … challenges weren't unique to me or my situation” (Participant 8).…”

Section: Resultsmentioning

confidence: 99%

Transformative change comes from more than structured content: Qualitative exploration of parent experiences of a post‐separation group program

et al. 2023

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ObjectiveIn this research, we explore participant experiences of a post‐separation parenting program as a protective factor for helping with post‐separation adjustment.BackgroundSeparation is a difficult process for children and families. It often involves distress and conflict that can negatively affect well‐being. Post‐separation programs are a protective factor to help parents adjust post‐separation. However, there is a dearth of qualitative research exploring how these programs help with post‐separation adjustment.MethodIn‐depth semistructured interviews were conducted with a sample of 13 parents who had attended a post‐separation program. Thematic analysis was used for data analysis. Two reviewers independently coded data inductively, and coding was subsequently independently reviewed by a third reviewer.ResultsGroup processes accompanying the program helped participants reduce distress in the acute post‐separation phase. Participants reported enhanced management of personal responses to the separation that contributed to personal development. Peer learning and support during this phase may be a relatively unexplored area.ConclusionPost‐separation programs that normalize separation and include practical strategies for emotion regulation and effective communication may be helpful for individuals' adjustment post‐separation.ImplicationsPost‐separation programs should be offered by organizations that support separated parents to help adjust during the early phase of separation.

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“…The stress coping theory suggests that caregiver burden can increase stress levels and negatively impact sleep quality. However, individuals having great self-efficacy are better equipped to manage caregiver responsibilities, as well as cope with stress, leading to increased well-being [ 51 ]. Higher levels of well-being can positively affect sleep quality, contributing to better physical and emotional health.…”

Section: Discussionmentioning

confidence: 99%

Self-efficacy and well-being in the association between caregiver burden and sleep quality among caregivers of elderly patients having multiple chronic conditions in rural China: a serial multiple mediation analysis

Yang,

Sun,

Zhao

et al. 2023

BMC Nurs

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Background Caregivers of elderly patients with multiple chronic conditions have heavy caregiver burden and poor sleep quality, which has an important impact on both caregivers and patients. This study aimed to examine among rural caregivers of elderly patients who have multiple chronic conditions in China, whether self-efficacy and well-being mediate the link between caregiver burden and sleep quality. Methods The study recruited 325 caregivers of elderly patients having multiple chronic conditions in rural China. Several measures including the Caregiver Burden Inventory (CBI), Athens Insomnia Scale (AIS), General Self-Efficacy Scale (GSES) and Index of Well-Being (IWB) were utilized to collect data. Structural equation modeling was employed to study the relationships among caregiver burden, sleep quality, self-efficacy, as well as well-being. Results Significant correlations were found between the measured variables (each p < 0.01). Self-efficacy and well-being acted as mediators in the link between caregiver burden and sleep quality, accounting for 10.94% and 15.63% of the total effect, respectively. In addition, self-efficacy and well-being had a serial multiple mediating effect in the association between caregiver burden and sleep quality, with this mediating pathway, explaining 9.93% of the total effect. Conclusions Caregivers of elderly patients having multiple chronic conditions in rural China experienced poor sleep quality due to the caregiver burden. Self-efficacy and well-being had serial mediating roles on the relationship between caregiver burden and sleep quality. Effective interventions should be developed to improve self-efficacy and well-being of caregivers, reduce their caregiver burden and, eventually, improve their sleep quality.

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Modeling linkages between self-efficacy, normalization, and well-being factors among Israeli mothers of children with neurodevelopmental disorders

Cited by 5 publications

References 69 publications

Well-being among parents of youth with multiple sclerosis: a preliminary longitudinal study

Well-being among parents of youth with multiple sclerosis: a preliminary longitudinal study

Transformative change comes from more than structured content: Qualitative exploration of parent experiences of a post‐separation group program

Self-efficacy and well-being in the association between caregiver burden and sleep quality among caregivers of elderly patients having multiple chronic conditions in rural China: a serial multiple mediation analysis

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