Models of Care Delivery for Patients With Parkinson Disease Living in Rural Areas

Schuller, Kristin; Vaughan, Brooke; Wright, Ian

doi:10.1097/fch.0000000000000159

Cited by 13 publications

(15 citation statements)

References 38 publications

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“…Poor interprofessional coordination between healthcare settings exists in the care of Parkinson's disease [6,28]. A significant gap in care is experienced when people with Parkinson's disease try to access various interprofessional specialists for the confirmation of their diagnosis, services for mental health problems and physiotherapy, despite the fact that existing international guidelines recommend quick referral processes and prompt access to specialist care to uphold the best outcome for patients [7,12,13,15].…”

Section: Inappropriate Delivery Of Healthcare Servicesmentioning

confidence: 99%

“…The literature highlights that access to healthcare services for people with Parkinson's disease is not always easy. Studies have reported that delays in diagnosis, a lack of appropriate healthcare services, especially in underservices regions, extensive waiting lists for specialist services, and the cost of care are some of the barriers to access healthcare services [6,7].…”

Section: Introductionmentioning

confidence: 99%

“…There remain gaps in the knowledge and extent of the barriers blocking healthcare access for persons living with Parkinson's disease. Previous review articles expressed that the barriers to access healthcare services for people with Parkinson's disease are primarily derived from the care and service distribution and allotment [6,7]. Care and service distribution are among other dimensions of healthcare barriers.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Barriers to Accessing Healthcare Services for People with Parkinson’s Disease: A Scoping Review

Zaman

Ghahari

McColl

2021

JPD

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Parkinson’s disease is a complex condition that affects many different aspects of a person’s health. Because of its complexity, people with Parkinson’s disease require access to a variety of healthcare services. The aim of the present study was to identify the barriers to access healthcare services for people with Parkinson’s disease. We conducted a scoping review according to guidelines posed by Arksey & O’Malley (2005). A search of MEDLINE, Embase, EINHAL, and PsycINFO databases was conducted, and 38 articles were selected based on the inclusion criteria. The review findings identified person-level and system-level barriers. The person-level barriers included skills required to seek healthcare services, ability to engage in healthcare and cost for services. The system-level barriers included the availability of appropriate healthcare resources. Based on the existing barriers elucidated in the scope review, we have discussed potential areas in healthcare that require improvement for people with Parkinson’s disease to manage their healthcare needs more equitably.

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Section: Inappropriate Delivery Of Healthcare Servicesmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Barriers to Accessing Healthcare Services for People with Parkinson’s Disease: A Scoping Review

Zaman

Ghahari

McColl

2021

JPD

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“…Research-grade eye tracking using expensive instrumentation in the laboratory provides a means of identifying various neurological disorders 15 , 16 including accurately and precisely quantifying individual oculomotor abnormalities in ataxias 17 . However, this is only available in specialized centers and are even less accessible in rural areas and to disease populations where mobility is affected 18 . Furthermore, frequent and longitudinal assessments for tracking disease severity in a clinical trial and interval monitoring of presymptomatic gene carriers to identify clinical onset may be less practical using these technologies.…”

Section: Introductionmentioning

confidence: 99%

Accurate detection of cerebellar smooth pursuit eye movement abnormalities via mobile phone video and machine learning

Chang

Chen

Stephen

et al. 2020

Sci Rep

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Eye movements are disrupted in many neurodegenerative diseases and are frequent and early features in conditions affecting the cerebellum. Characterizing eye movements is important for diagnosis and may be useful for tracking disease progression and response to therapies. Assessments are limited as they require an in-person evaluation by a neurology subspecialist or specialized and expensive equipment. We tested the hypothesis that important eye movement abnormalities in cerebellar disorders (i.e., ataxias) could be captured from iPhone video. Videos of the face were collected from individuals with ataxia (n = 102) and from a comparative population (Parkinson’s disease or healthy participants, n = 61). Computer vision algorithms were used to track the position of the eye which was transformed into high temporal resolution spectral features. Machine learning models trained on eye movement features were able to identify abnormalities in smooth pursuit (a key eye behavior) and accurately distinguish individuals with abnormal pursuit from controls (sensitivity = 0.84, specificity = 0.77). A novel machine learning approach generated severity estimates that correlated well with the clinician scores. We demonstrate the feasibility of capturing eye movement information using an inexpensive and widely accessible technology. This may be a useful approach for disease screening and for measuring severity in clinical trials.

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“…These factors are argued to impede the management of PD in regional areas, including for sleep disorder (Duncan and Rositano, 2011). "Regional living" is a risk factor for PD; a high proportion of patients with PD live in regional areas (Schuller et al, 2017;Soh et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

Factors related to sleep disturbances for individuals with Parkinson’s disease: a regional perspective

Wade

Pachana

Mellick³

et al. 2019

Int. Psychogeriatr.

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Objectives:Sleep disturbances negatively impact the quality of life of patients with Parkinson’s disease (PD). While persons living in regional areas are at higher risk of PD, PD is poorly managed in regional communities. This study examined factors associated with sleep problems in PD in a regional context.Design:A mixed-methods cross-sectional design was used.Participants:Patients with PD were recruited from the Queensland Parkinson’s Project database.Measurements:Those who agreed to participate were sent a questionnaire assessing aspects of sleep, depression, anxiety, quality of life, and PD severity. Qualitative information was also gathered. Correlations between variables were examined; thematic analyses were performed for qualitative data.Results:All participants (n = 49) reported sleep disturbances, with 73% (n = 36) reporting sleep disturbance to be problematic. Global sleep dysfunction positively correlated with daytime napping (r = .34, p = .01), watching the clock when unable to sleep (r = .38, p = <.01), staying in bed when unable to sleep (r = .43, p = <.01), and going to bed hungry (r = .31, p = .03) and negatively correlated with daytime exercise (r = -.32, p = .02). Positive correlations were observed between global sleep dysfunction and depression (r = .55, p = <.01), anxiety (r = .31, p = .04), and dysfunctional sleep beliefs (r = .39, p = <.01).Conclusion:There is a clear need for identifying factors related to sleep disturbances in PD for effective management.

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Models of Care Delivery for Patients With Parkinson Disease Living in Rural Areas

Cited by 13 publications

References 38 publications

Barriers to Accessing Healthcare Services for People with Parkinson’s Disease: A Scoping Review

Barriers to Accessing Healthcare Services for People with Parkinson’s Disease: A Scoping Review

Accurate detection of cerebellar smooth pursuit eye movement abnormalities via mobile phone video and machine learning

Factors related to sleep disturbances for individuals with Parkinson’s disease: a regional perspective

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