Modifying a social problem‐solving program with the input of individuals with intellectual disabilities and their staff

Ailey, Sarah H.; Friese, Tanya R.; Nezu, Arthur M.

doi:10.1002/nur.21497

Cited by 16 publications

(5 citation statements)

References 39 publications

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“…For persons with intellectual disabilities the physical environment in the care sector is seen as relevant to their health, behaviour, and participation [1]. The prevalence of challenging behaviour in people with intellectual disabilities has been reported to vary between 45 to 82 percent, depending on the type of behaviour and living situation [2,3]. The expression of challenging behaviour varies, but self-injurious as well as aggres-sive or destructive behaviour have been reported in people with intellectual disabilities and multiple disabilities [2].…”

Section: Introductionmentioning

confidence: 99%

The influence of the indoor environment on people displaying challenging behaviour: A scoping review

Mueller‐Schotte

Huisman

et al. 2022

TAD

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BACKGROUND: The care sector for persons with disabilities considers the physical environment relevant for the quality of life of people with intellectual disabilities. However, scientific evidence is limited. OBJECTIVE: To obtain evidence regarding comforting and encouraging environments and to develop an overview of studies addressing the effect of the physical environment on people with intellectual disabilities. METHODS: A scoping review, accompanied by expert panels and case findings combining scientific evidence and knowledge from practice, was performed to investigate the interaction between challenging behaviour and the physical environment. Between January and March 2020, several scientific databases were searched in the English, Dutch, and German language for relevant studies. Social media, care professionals, and experts in building physics were consulted. RESULTS: Studies on building-related factors as passive interventions and care- or therapy-related interventions could be distinguished. The majority of the studies report on building-related factors such as sound, acoustics, light, and colours and their influence on behaviour. Specific guidelines are lacking on how to adjust the indoor environment to an environment that is safe, comforting and encouraging for people displaying challenging behaviour. Proposed solutions are case-based. CONCLUSION: In future studies individual cases could be studied in a more in-depth manner, aligned and categorised to the building-related factors and to the expressions of challenging behaviour.

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Section: Introductionmentioning

confidence: 99%

The influence of the indoor environment on people displaying challenging behaviour: A scoping review

Mueller‐Schotte

Huisman

et al. 2022

TAD

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“…Prout and Browning (2011) called for more attention to the various components of interventions that contribute to positive client outcomes in this population. Indeed, we identified a cache of promising studies that did not meet the inclusion criteria for this review, but that have explored individual components of therapy such as modalities to teach cognitive behavioral techniques, therapist self-efficacy, and the use of computer assistance during therapy (Ailey et al, 2012; Vereenooghe et al, 2015). Future research is needed to understand how to best apply accommodation and the relative effectiveness of different types of accommodations and therapeutic practices.…”

Section: Discussionmentioning

confidence: 99%

Psychotherapy treatment outcome research in adults with ID: Where do we go from here?

Witwer¹,

Rosencrans²,

Held³

et al. 2024

Clinical Psychology: Science and Practice

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The value of practice and treatment guidelines in improving mental health care is well established; however, no such guidelines exist for the mental health treatment of adults with intellectual disability. An essential step in the composition of guidelines is broad and careful consideration of the relevant empirical literature. The purpose of this systematic review was to identify efficacious and effective treatment practices for individuals with intellectual disability and co-occurring psychiatric disorders. The search across three databases (PubMed, PsycINFO, Embase) resulted in 37 studies that met inclusion criteria. The methodological rigor and study designs were evaluated to identify research gaps. The methodological strength of each study was rated on four indicators, participant characterization, intervention description, outcome measures, and statistical analyses. Only 13.5% of the studies reviewed were randomized controlled trials; 54.1% were quasi-experimental (either with pre/post interventions or use of non-randomized waitlist control, and 24.3% used some type of case series design. The majority of studies were from a cognitive behavioral orientation. While studies varied in scientific rigor, no one study was rated highly on all four indicators. Implications for future research and practice are discussed. Public Health Significance StatementSignificant barriers to mental health treatment for adults with ID continue to persist. Contributing to this is clinicians' reported lack of training, resources, and knowledge to serve individuals with ID. In order to address this, it is imperative that clinicians and researchers are aware of the state of research in this area, both its advancement over the past 20 years as well as the persisting gaps. This systematic review updates the current state of the literature, paying particular attention to the advancements in use of outcome measures and manualized treatments and the persist challenges related to diagnostic assessment and sample characterization.

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“…Problem‐solving skills and understanding reasons ‘why’ are often a barrier to successful learning of new skills for people with intellectual disability (Ailey et al . ; van Nieuwenhuijzen et al . ).…”

Section: Discussionmentioning

confidence: 99%

Safe and social: what does it mean anyway??

Tinney¹,

Forde²,

Hone³

et al. 2014

Brit J Learn Disabil

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Accessible summary People with intellectual disabilities can find it hard to understand what behaviours are ok in what situations and with what people. These rules change all the time, and so it is important to be able to work out how to behave for each new situation. If people with intellectual disability behave inappropriately, they may be judged as rude. They may put themselves at risk and be unsafe if they do not understand what information is ok to share with others and how to say no if someone is behaving inappropriately with them. This paper describes a training programme that was developed to help people with intellectual disabilities to work out if a behaviour is ok or not ok. The programme also shows that it is important to think about the person we are with and the place we are in so we can work out if a behaviour is ok or not. Summary This paper outlines a programme Safe and Social that has been implemented with adults with intellectual disability across multiple contexts in a service based in Ireland. The emphasis within the programme is on providing service users and staff with a framework and the necessary language to discuss social behaviours and boundaries, moving away from an emphasis on rules and regulations. The programme draws on visual supports of three nested circles, red indicating ‘not ok’, green indicating ‘ok’ and a central circle that is used to set the topic of discussion. Over a series of seven modules, adults with intellectual disabilities and their support staff are encouraged to collaboratively problem solve some of the behaviours and understandings that can undermine social acceptability and compromise personal safety. Based on positive outcomes over a five‐year period, we highlight the need for further research to explore the effectiveness of the programme.

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Modifying a social problem‐solving program with the input of individuals with intellectual disabilities and their staff

Cited by 16 publications

References 39 publications

The influence of the indoor environment on people displaying challenging behaviour: A scoping review

The influence of the indoor environment on people displaying challenging behaviour: A scoping review

Psychotherapy treatment outcome research in adults with ID: Where do we go from here?

Safe and social: what does it mean anyway??

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