Modifying illness beliefs in recent onset psychosis carers: Evaluating the impact of a cognitively focused brief group intervention in a routine service

Onwumere, Juliana; Glover, Naomi; Whittaker, Sarah; Rahim, Shireen; Man, Lai Chu; James, Gareth; Khan, Sanna; Afsharzadegan, Roya; Seneviratne, Saal; Harvey, Raythe; Georgiades, Anna; Raune, David

doi:10.1111/eip.12430

Cited by 14 publications

(28 citation statements)

References 48 publications

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“…45,48,50 ). Further exploration of the benefits of using different approaches to support carers in facilitating their knowledge and understanding about their relative's mental health condition, which also extend beyond traditional face-to-face meetings 61 would represent important research developments.…”

Section: Discussionmentioning

confidence: 99%

Digital Technology for Caregivers of People With Psychosis: Systematic Review (Preprint)

Onwumere¹,

Amaral²,

Valmaggia³

2018

Preprint

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Section: Discussionmentioning

confidence: 99%

Digital Technology for Caregivers of People With Psychosis: Systematic Review (Preprint)

Onwumere¹,

Amaral²,

Valmaggia³

2018

Preprint

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“…The psychoeducation intervention was delivered in an evening group format over either three (original version) (Onwumere et al, 2017a) or a sole (abbreviated version) two-hour long session(s). Both psychoeducation packages were devised by a clinical psychologist with BABCP accreditation for cognitive therapy supervision (D.R.…”

Section: Interventionmentioning

confidence: 99%

“…Using evidence-based literature, the session(s) focused on understanding what psychosis is, the causes, and available interventions, as well as adaptive caring styles and supporting carer wellbeing. Both the sole-session and three-session versions (Onwumere et al, 2017a) of the intervention covered the same topics; but in the sole-session, the information was refined, focusing on only the key messages in relation to each of the topics. In both interventions, carers received copies of the PowerPoint slides, a copy of an information booklet deigned for carers of people with psychosis (Rouf et al, 2008), and information about local carer support organisations.…”

Section: Interventionmentioning

confidence: 99%

“…In our previous study, we tested a three-session psychoeducation intervention for carers of people with FEP, targeting less adaptive illness beliefs, such as those related to self-blame and control in relation to psychosis symptoms, and knowledge about the illness and likelihood for recovery (Onwumere et al, 2017a). The results from 68 carers revealed significant improvements in all eight target illness beliefs tested, i.e.…”

Section: Introductionmentioning

confidence: 99%

“…The aim of this service evaluation is to evaluate an abbreviated, sole-session version of the psychoeducation intervention, and compare the effectiveness of this intervention with our previously tested, and more intensive, three-session version of the intervention (Onwumere et al, 2017a). Within our service, we sought to answer the following questions: (1) does a one-session psychoeducation intervention change illness beliefs amongst carers of people with FEP?…”

Section: Introductionmentioning

confidence: 99%

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Service evaluation of a sole-session psychoeducational intervention to improve caregivers’ key illness beliefs after first episode psychosis (FEP)

Hazell

Lyons

Onwumere

et al. 2020

tCBT

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Carers of people experiencing a first episode of psychosis are at an increased risk of developing their own physical and mental health problems. Psychoeducation has been found to improve carer wellbeing and reduce distress. However, few psychoeducation interventions have considered the resource constraints on mental health services and the impact that these can have on the implementation of any such interventions. The present service evaluation aimed to evaluate an abbreviated version (sole session) of a previously tested psychoeducation intervention (three sessions) that targets less adaptive illness beliefs (n = 17). Pre–post effect sizes reveal that all of the carers’ illness beliefs changed in the desired direction, with four out of the 10 illness beliefs associated with large to moderate improvements. When compared with the outcomes obtained in our evaluation of the more intensive, three-session version of the intervention, the between-group effects largely favoured the three-session version but were mostly small. Moderate to large effects in favour of the three-session version were found for two of the 10 illness beliefs. These findings support the further investigation of the sole session psychoeducation intervention as part of a randomised controlled trial. Key learning aims (1) To evaluate the impact of a sole-session psychoeducation intervention on illness beliefs. (2) To compare the outcomes of the sole-session psychoeducation intervention to the previous, more intensive (three-session) version of the same intervention. (3) To consider the value of research approaches to evaluating psychoeducation interventions for carers of people with psychosis.

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“I don't think I took her fears seriously”: Exploring the experiences of family members of individuals at‐risk of developing psychosis over 12 months

Izon

Berry

Law

et al. 2020

Clin Psychology and Psychoth

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Individuals with an at-risk mental state (ARMS) of psychosis experience high levels of distress, anxiety, low mood, and suicidal ideation. Families of ARMS individuals provide significant support but are often neglected by services. This study is the first of its kind to use a novel longitudinal qualitative methodology to directly compare family/carers' earlier experiences supporting ARMS individuals to 12 months later. This provides a more ecologically valid insight into how perceptions change over time and how family/carers adapt. Semistructured interviews were conducted with 10 family/carers at two points within a 12-month period. This study was embedded within a randomized control trial, the Individual and Family Cognitive Behavioural Therapy trial. Interview transcripts were analysed using thematic analysis, with a focus on how experiences and reactions for family/carers changed over time. Over 12 months, four factors were important for family/carers to facilitate their caring role. These were summarized in the thematic map (LACE model): Looking after your own well-being; Accessing additional support from family intervention; Communicating openly with the individual; and Engaging with services for the individual. All four aspects of the model were important in improving family communication, meeting family/carers' unmet needs, and helping them to feel more confident and less isolated in their carer role. Novel implications suggest that when feasible, services should involve family/carers of ARMS individuals in sessions and explore family/carer support strategies in managing their own distress. The most significant insight was the need to develop family/carer resources to educate, normalize, and validate their own experiences.

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Modifying illness beliefs in recent onset psychosis carers: Evaluating the impact of a cognitively focused brief group intervention in a routine service

Abstract: A cognitively informed group approach to targeting the less adaptive illness beliefs reported by FEP carers may offer an effective and acceptable pathway to facilitate their understanding of the illness and adjustment. Further studies using controlled designs are required.

Cited by 14 publications

References 48 publications

Digital Technology for Caregivers of People With Psychosis: Systematic Review (Preprint)

Digital Technology for Caregivers of People With Psychosis: Systematic Review (Preprint)

Service evaluation of a sole-session psychoeducational intervention to improve caregivers’ key illness beliefs after first episode psychosis (FEP)

“I don't think I took her fears seriously”: Exploring the experiences of family members of individuals at‐risk of developing psychosis over 12 months

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