Mother's information needs related to caring for infants at home following cardiac surgery

Stinson, Jennifer; McKeever, Patricia

doi:10.1016/s0882-5963(05)80098-3

Cited by 26 publications

(25 citation statements)

References 15 publications

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“…The knowledge needs varied greatly between the individuals (Hummelinck & Pollock, 2006;Jackson et al, 2008), and knowledge needs vary over time (Aite et al, 2006;Chuacharoen, Ritthagol, Hunsrisakhun, & Nilmanat, 2009;Hummelinck & Pollock, 2006;Joffe, 2001;Kuttenberger, Ohmer, & Polska, 2010;Lanners & Lamert, 1999;Muggli, Collins, & Marraffa, 2009;Nuutila & Salanterä, 2006;Stinson & McKeever, 1995;Young et al, 2001). The findings show that parents of children with special health care needs have needs for knowledge about the condition or illness, support, treatment, daily care of the child, the future, how to explain the illness to others, equipment, organizational issues, and the effect of the illness on the family.…”

Section: Discussionmentioning

confidence: 97%

“…(Stinson & McKeever, 1995) and the purposive instrument used in the study of Henley and Hill (1990). (Stinson & McKeever, 1995) and the purposive instrument used in the study of Henley and Hill (1990).…”

Section: Finfer 2007mentioning

confidence: 99%

“…Parents of children with special health care needs have many knowledge needs, but not all parents have the same needs for knowledge and these knowledge needs change over time (Aite et al, 2006;Chuacharoen et al, 2009;Graves & Hayes, 1996;Hummelinck & Pollock, 2006;Joffe, 2001;Kuttenberger et al, 2010;Lanners & Lamert, 1999;Muggli et al, 2009;Nuutila & Salanterä, 2006;Stinson & McKeever, 1995;Young et al, 2001). Therefore, nurses must have instruments that can assess these needs at various times in the child's life (Hummelinck & Pollock, 2006;Joffe, 2001).…”

Section: Implication For Practicementioning

confidence: 99%

“…Several studies have been conducted to assess the needs of parents of hospitalized children or children with chronic illness (Aite et al, 2006;Hummelinck & Pollock, 2006;Jackson et al, 2008;Starke & Moller, 2002;Stinson & McKeever, 1995;Young, O'Riordan, Goldstein, & Robin, 2001). Generally, the results show a need for knowledge about the condition of the child, description of the illness or anomaly, the prognosis in terms of survival chances for the baby before and after surgery, the cause of the anomaly, the steps in the recovery process, and the overall quality of the baby's life (Aite et al, 2006).…”

mentioning

confidence: 99%

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An Integrated Literature Review of the Knowledge Needs of Parents With Children With Special Health Care Needs and of Instruments to Assess These Needs

Adler

Salanterä

Leino‐Kilpi

et al. 2015

Infants &Amp; Young Children

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The purpose of this integrative (including both quantitative and qualitative studies) literature review was to identify knowledge needs of parents of a child with special health care needs and to evaluate instruments to assess these needs. The content analysis of 48 publications revealed a vast amount of knowledge needs that were categorized into 9 categories: (a) knowledge about the condition or illness, (b) support, (c) treatment, (d) everyday care of the child, (f) the future, (g) how to explain the illness to others, (h) equipment, (i) organizational issues, and (j) the effect of the illness on the family. Several instruments to assess these needs are described. There is evidence that parents have various knowledge needs at different times of their children's life and it is important that these needs are assessed systematically. Professionals have many possibilities to provide information and education as it is needed by these parents. Key words: children with special health care needs, family-centered care, knowledge/information needs, needs assessment C HILDREN with special health care needs are defined by the Department

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Section: Discussionmentioning

confidence: 97%

Section: Finfer 2007mentioning

confidence: 99%

Section: Implication For Practicementioning

confidence: 99%

mentioning

confidence: 99%

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An Integrated Literature Review of the Knowledge Needs of Parents With Children With Special Health Care Needs and of Instruments to Assess These Needs

Adler

Salanterä

Leino‐Kilpi

et al. 2015

Infants &Amp; Young Children

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“…9 Many studies have concluded that one of the important factors influencing a better outcome in pediatric patients who underwent cardiac surgery is the provision of proper home care. 10 More than the cardiologist think is adequate, education regarding the child care at home should be provided to parents of children undergone cardiac surgery.…”

mentioning

confidence: 99%

Knowledge of Mothers Regarding Home Care of Children undergone Cardiac Surgery with a View to Develop an Information Booklet

Poudel¹,

Malla²

2017

Med Phoenix

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Background: Children in developing countries are now receiving surgical repair for congenital heart defects. Despite advancement in the medical and surgical field, in developing countries where we have severe budgetary constraints, lack of funding for maintenance, poverty, skilled manpower deficit and knowledge deficit among public, pediatric cardiac surgery still remains a major challenge. For the parents of those children undergone corrective surgery more in-depth educational sessions are required to enable them to recognize and anticipate the complications so as to manage their child effectively at home following discharge. The study aims to assess the knowledge regarding home care of children undergone cardiac surgery with a view to develop an information booklet in home care. Methods:A descriptive cross-sectional study was conducted among 60 mothers of children undergone cardiac surgery at a tertiary level cardiac center at Bengaluru, India using a structured knowledge questionnaire. Results:Result revealed that majority 55% of the mothers had moderate knowledge, 40% had inadequate knowledge and only 5% had adequate knowledge. Variables such as age, education, occupation of mothers and source of information were significantly associated (p <0.05) with the level of knowledge. Conclusions:The knowledge of mothers regarding home care of children undergone cardiac surgery was found to be insufficient to enable them to take care of their children. The inadequate knowledge can be effectively strengthened through information booklet, discharge teaching and other mass media used as a source of information in educating not only the mothers of children but also other family members who acts as a care taker.

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Discharging Neonates with Congenital Heart Disease After Cardiac Surgery: A Practical Approach

Dodds

Merle

2005

Clinics in Perinatology

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Mother's information needs related to caring for infants at home following cardiac surgery

Cited by 26 publications

References 15 publications

An Integrated Literature Review of the Knowledge Needs of Parents With Children With Special Health Care Needs and of Instruments to Assess These Needs

An Integrated Literature Review of the Knowledge Needs of Parents With Children With Special Health Care Needs and of Instruments to Assess These Needs

Knowledge of Mothers Regarding Home Care of Children undergone Cardiac Surgery with a View to Develop an Information Booklet

Discharging Neonates with Congenital Heart Disease After Cardiac Surgery: A Practical Approach

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