Mothers’ and practitioners’ insights on the use of digitally-mediated social stories with children on the autism spectrum: A convergent mixed-methods study

Camilleri, Louis John; Maras, Katie; Brosnan, Mark

doi:10.1016/j.ridd.2021.104104

Cited by 4 publications

(3 citation statements)

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“…While parents can deliver effective SS to autistic CYP with effective coaching, many parents do not receive coaching and there is huge variability in the effectiveness of parent-delivered SS [see ( 37 )]. One potential method for providing coaching for the development and delivery of effective SS to autistic CYP has been the development of digitally-mediated SS.…”

Section: Introductionmentioning

confidence: 99%

“…Thus, there is evidence that researchers and school teachers can develop and deliver effective digitally-mediated SS with a high degree of procedural integrity (i.e., reliable and accurate implementation of an intervention). In addition, recent research indicates that digitally-mediated SS also has the potential to support parents of autistic CYP in SS-writing competence whilst also improving intervention integrity ( 37 , 42 ). However, it is unknown if digitally-mediated SS which have been developed and delivered by parents in a real-world setting can lead to similar outcomes as those reported for researchers and school teachers.…”

Section: Introductionmentioning

confidence: 99%

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Supporting autistic communities through parent-led and child/young person-led digital social story interventions: an exploratory study

Camilleri,

Maras,

Brosnan

2024

Front. Digit. Health

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IntroductionSocial Stories (SS) is a socially-valid intervention for autistic children and young people (CYP) which is used widely by professionals and parents. Research suggests that whilst parents are in an ideal position to deliver interventions for their autistic CYP, a lack of procedural integrity can result in a great deal of variability in parent-mediated intervention outcomes.MethodsThis exploratory study investigated the extent to which SS can be effectively developed and delivered, through digital mediation, by parents with little to no researcher input (n = 17, sample 1) and the factors that impact effectiveness. Furthermore, the study also investigated the extent to which digitally-mediated SS can support autistic CYP to develop and deliver their own stories, thereby utilising the intervention as a means for self-support and self-management (n = 5, sample 2).ResultsThe outcomes of the study indicate that digital mediation can effectively support parent-led SS intervention. Findings also indicate that receptive/expressive language skills of autistic CYP, their level of systemizing, as well as the practice of consulting with the autistic CYP whilst identifying goals and developing stories, are individual and procedural characteristics which positively influence the effectiveness of the parent-led intervention. The study also found that digitally-mediated SS can be utilised as a self-support tool by autistic CYP themselves.DiscussionThe results inform the developing literature on digital interventions and support tools that aim to engage with, and involve further, the autistic community in the setting and authoring of interventions and research.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Supporting autistic communities through parent-led and child/young person-led digital social story interventions: an exploratory study

Camilleri,

Maras,

Brosnan

2024

Front. Digit. Health

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“…The SOFA app has been utilized to investigate how the digital mediation of the Social Stories intervention can support autistic children in adapting to change ( 35 ), and to increase understanding and reduce anxiety ( 36 ). The SOFA app has also been reported to impact positively procedural integrity while also empowering end users ( 37 , 38 ). Thus, the SOFA app has the potential to support the development and delivery of Social Stories.…”

Section: Introductionmentioning

confidence: 99%

Effective digital support for autism: digital social stories

Camilleri,

Maras,

Brosnan

2024

Front. Psychiatry

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Social Stories™ is one of the most popular interventions for autistic children and has been researched extensively. However, effectiveness data has been gathered mainly through single-participant designs which generate outcomes which can lack generalizability and social validity. Stories Online For Autism (SOFA) is a digital application which supports the development and delivery of Social Stories in a real-world setting and has the potential to contribute toward furthering (1) Social Stories research and (2) research on digital applications for autism by gathering large data sets from multiple participants. Three data sets (N = 856) were gathered through the SOFA app and were analyzed to investigate three key variables: What predicted closeness-to-goal of the Social Stories (as rated by an adult/parent/guardian, n = 568); the child’s comprehension of the Social Stories (assessed by story comprehension questions, n = 127); and the child’s rating of the enjoyability of the Social Stories (n = 161). A merged data set then investigated correlations between these three key variables. Age range (≤15), gender, autism diagnosis, and the child’s level of language understanding were the potential predictors for these three key variables. Regression analysis indicated that parental closeness-to-goal ratings for their children were highest for children who were younger and more verbal. Regression analysis also indicated that older children scored higher in comprehension assessment, and autistic children rated the Social Stories as more enjoyable. Closeness-to-goal, comprehension scores and enjoyment ratings did not significantly correlate with each other. This is the largest study of Social Stories effectiveness, which was enabled through the collection of data through a digital app from multiple participants. The results indicate that digital social stories are particularly effective for younger verbal children. While this was the case for all children, it was particularly true for autistic children and female (and gender-diverse) children. For the first time, the gathering of large digital data sets has highlighted that while digital Social Stories can be effective for autistic males, they can be more effective for autistic females and gender-diverse autistic individuals. Thus, the SOFA app can support the investigation of the factors which influence Social Stories outcomes that are generalizable and with high social validity.

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Single-Subject Study on the Effects of Social Stories on the Social Interaction of a Child with Autism Spectrum Disorder in China

Liu,

Lei,

Wang

2024

International Journal of Disability, Development and Education

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Mothers’ and practitioners’ insights on the use of digitally-mediated social stories with children on the autism spectrum: A convergent mixed-methods study

Cited by 4 publications

References 57 publications

Supporting autistic communities through parent-led and child/young person-led digital social story interventions: an exploratory study

Supporting autistic communities through parent-led and child/young person-led digital social story interventions: an exploratory study

Effective digital support for autism: digital social stories

Single-Subject Study on the Effects of Social Stories on the Social Interaction of a Child with Autism Spectrum Disorder in China

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