Mothers of Autistic Children: Is the Burden of Care, Extended Time Spend and Money Constraints, Effecting Their Social Participation?

Meny, Areej; Hayat, Aalia Akhtar; Wright, Jon J.

doi:10.24087/iam.2018.2.12.710

Cited by 3 publications

(1 citation statement)

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“…One in every 68 children are estimated to have autism spectrum disorder (ASD), making it one of the most common neurodevelopmental disorders 1. ASD is marked by deficiencies in communication, behaviors and social interaction skills that may have negative impact on people with autism and their caregivers 2. In Arab Gulf countries, prevalence ranging between 1.4-29/10,000 has been reported 3…”

Section: Introductionmentioning

confidence: 99%

Assessment of knowledge about childhood autism spectrum disorder among healthcare workers in Makkah-Saudi Arabia

Hayat

Meny

Salahuddin³

et al. 2019

Pak J Med Sci

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Objective: To measure the knowledge of healthcare professionals about increasingly prevalent Autism Spectrum Disorder (ASD) along with perceptions around its management and prognosis and comparison across various specialties. Methods: This Cross sectional survey based comparative analysis took place at Maternity and Children Hospital and King Faisal Hospital Makkah from December 2017 to May 2018. The validated self-administered “Knowledge about childhood autism among health workers” questionnaire was used along with additional questions regarding perceptions about ASD. The mean and mean percent scores were calculated. Chi squared test and ANOVA were applied to find the association between quantitative and qualitative variables respectively. Results: Out of 162 participants, 153 returned the questionnaire and 147 were included in final analysis. Physicians constituted 81.6% (120) of participants. The mean score for participants was 9.80(S.E.M ±0.32) where non-physicians yielded higher mean score (11.2±4.41) as compared to physicians (9.6±3.28) (p=0.113). Psychiatrists had highest score of 16/19 while general physicians had lowest (6/19). Participants with more years of experience had higher mean scores (p-value = 0.01). About 72.10% (106) of participants opted for medication as a treatment option. Nearly 38.1% (56) of participants were skeptical about improvement of ASD with early interventions. Conclusion: There is a lack of knowledge about ASD amongst healthcare professionals in Saudi Arabia. Experienced professionals working with ASD children can be utilized to deliver targeted trainings nationwide. doi: https://doi.org/10.12669/pjms.35.4.605 How to cite this:Hayat AA, Meny AH, Salahuddin N, Alnemary FM, Ahuja KR, Azeem MW. Assessment of knowledge about childhood autism spectrum disorder among healthcare workers in Makkah- Saudi Arabia. Pak J Med Sci. 2019;35(4):---------. doi: https://doi.org/10.12669/pjms.35.4.605 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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Section: Introductionmentioning

confidence: 99%

Assessment of knowledge about childhood autism spectrum disorder among healthcare workers in Makkah-Saudi Arabia

Hayat

Meny

Salahuddin³

et al. 2019

Pak J Med Sci

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Neglect of Psychological Care for Children with Cerebral Palsy and Their Families and Its Impact on Their Occupational Engagement in Saudi Arabia

Elkholi,

Awad,

Alotaibi

2024

Medicina

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Background and Objectives: Many children with (CP) and their families in Saudi Arabia struggle emotionally. Unfortunately, there have not been many studies conducted on how to help them with these challenges. This research aims to bring attention to this gap and to explore how a lack of proper mental health care might affect these children’s ability to participate in everyday activities. Materials and Methods: In this cross-sectional descriptive study, a survey was conducted between August and October 2023. A total of 300 parents of CP children from Saudi Arabia participated in the study. The impact of psychological care negligence on the occupational engagement of CP children and their families was assessed by designing a valid questionnaire. Results: A total of 300 parents of children with CP participated in this study. The majority of the sample, 71% of parents, said that their children did not receive any psychological care, and 59.7% of the participants said that their children did not even receive a referral to a psychologist. However, 60.3% of parents of children noticed a significant decline in the occupational performance of their children, and 65.7% predicted an improvement in their children’s performance with future psychological care. Conclusions: It is clear that there is a lack of awareness about the importance of mental health care for children with CP in Saudi Arabia. This lack of care hinders these children and their families’ occupational engagement and social participation.

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Implicações de uma maternidade atípica: estado psicossocial das mães de crianças autistas

Reis Teixeira,

Demian Dos Santos,

Ruas Alkimim

et al. 2024

rsc

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O desenvolvimento atípico de uma criança portadora de Transtorno do Espectro do Autismo (TEA) gera quebra de expectativa e mudanças no ritmo de vida da família, em especial de sua principal cuidadora, geralmente a mãe. Esse artigo tem por objetivo avaliar o estado psicossocial das mães de crianças diagnosticadas com TEA. Trata-se de um estudo quantitativo de amostra não probabilística com aplicação de questionários a mães de filhos com TEA, acompanhados pela Associação Norte-Mineira de Apoio ao Autista (ANDA) da cidade de Montes Claros (MG). A pesquisa foi aprovada pelo Comitê de Ética em Pesquisa, sob Parecer 5.676.08. Analisando os resultados foi possível identificar os fatores estressores e que diminuem a qualidade da saúde mental e qualidade de vida das mães de crianças diagnosticadas com TEA: baixa condição financeira, incapacidades adaptativas dos filhos, restrições de sociabilização e de trabalho dessas mães, cansaço físico, sobrecarga emocional, diminuição da autoestima e limitada rede de apoio. A condição do TEA do filho não foi um fator estressor para as mães entrevistadas, mas, sim, as consequências dos encargos e preocupações em lidar com os estímulos, cuidados e gastos demandados pela criança.

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Mothers of Autistic Children: Is the Burden of Care, Extended Time Spend and Money Constraints, Effecting Their Social Participation?

Cited by 3 publications

References 0 publications

Assessment of knowledge about childhood autism spectrum disorder among healthcare workers in Makkah-Saudi Arabia

Assessment of knowledge about childhood autism spectrum disorder among healthcare workers in Makkah-Saudi Arabia

Neglect of Psychological Care for Children with Cerebral Palsy and Their Families and Its Impact on Their Occupational Engagement in Saudi Arabia

Implicações de uma maternidade atípica: estado psicossocial das mães de crianças autistas

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