Mothers of Children With Special Health Care Needs: Exploring Caregiver Burden, Quality of Life, and Resiliency

Bamber, Mandy D.; Mahony, Helen; Spratling, Regena

doi:10.1016/j.pedhc.2023.06.003

Cited by 6 publications

(2 citation statements)

References 37 publications

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“…Several studies have shown that female caregivers bear a greater burden during long-term care for diseases ( 39 , 40 ). This can be attributed to the fact that mothers are often the primary caregivers for children within the family ( 41 , 42 ), investing more time and energy in their care. Furthermore, women are more prone to experiencing negative emotions such as stress and anxiety due to physiological and adaptability differences, resulting in increased physical and emotional burden ( 38 , 42 ).…”

Section: Discussionmentioning

confidence: 99%

Caregiver burden among parents of school-age children with asthma: a cross-sectional study

Yang,

Zhou,

Xiao

et al. 2024

Front. Public Health

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ObjectiveTo investigate the caregiver burden of parents of school-age children with asthma and analyze the factors influencing their caregiver burden.MethodsA convenience sampling method was used to select 366 parents of school-age children with asthma who visited the outpatient departments of three tertiary hospitals in Sichuan Province, China, from January 2021 to July 2021. A general information questionnaire and the Caregiver Burden Inventory (CBI) were used to assess the current caregiver burden and analyze the influencing factors.ResultsThe caregiver burden score of parents of school-age children with asthma was 27 (17, 39), with 40.43% of parents experiencing moderate to high levels of burden. Detailed results of univariate analysis showed that there were significant differences in caregiver burden scores based on parents’ gender, highest education level, number of children, occupation, family history of asthma, monthly family income, annual medical expenses for the child, child’s gender, whether the child had undergone lung function tests, number of emergency visits due to asthma exacerbation in the past 3 months, and whether the child had missed school due to asthma exacerbation in the past 3 months (p < 0.1). Detailed results of multivariate analysis showed that parents’ gender, occupation, family history of asthma, monthly family income, annual medical expenses for the child, number of emergency visits due to asthma exacerbation in the past 3 months, and whether the child had missed school due to asthma exacerbation in the past 3 months were independent risk factors for caregiver burden in parents of school-age children with asthma (p < 0.05).ConclusionParents of school-age children with asthma experience a certain level of caregiver burden, with over one-third of parents experiencing moderate to high levels of burden. Being a mother, being a worker, having no family history of asthma, having low monthly family income, having high annual medical expenses for the child, having frequent emergency visits due to asthma exacerbation in the past 3 months, and having missed school due to asthma exacerbation in the past 3 months are independent risk factors for caregiver burden in parents of school-age children with asthma, healthcare providers should develop feasible coping strategies, such as paying attention to caregivers’ psychological condition to reduce the burden of caring for parents of school-age children with asthma. The entire society should also make efforts in improving social support and strengthening healthcare coverage in order to achieve the aforementioned goals.

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Section: Discussionmentioning

confidence: 99%

Caregiver burden among parents of school-age children with asthma: a cross-sectional study

Yang,

Zhou,

Xiao

et al. 2024

Front. Public Health

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“…In the psychological context, children with special needs are more easily recognized from their attitudes and behavior, such as disorders in learning abilities for slow learners, emotional and interacting abilities in autistic children, speech disorders in autistic children and ADHD. Socio-cultural context, namely children with special needs as children with unusual abilities and behaviors that require special handling (Bamber et al, 2023;Pittas & Papanastasiou, 2023).…”

Section: Methodsmentioning

confidence: 99%

Clinical Collaborative-Based Special Learning Innovation for Students with Special Needs: Insights from Indonesia

Prasetyoningsih,

Siswiyanti,

Widowati

et al. 2024

IJSSHR

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The purpose of this clinical collaborative-based special learning innovation is to assist students with special needs in improving their learning outcomes. Special Need Students (SPN) are those who have special characteristics and are at risk who need special services and attention. The investigation focuses on characteristics of individual conditions, collaborative clinical innovation design, and the results of collaborative clinical special learning innovations. This study employed the 4D-E research design (Modification of the 4D Design). The findings inform that (1) the characteristics of the individual conditions of Special Need Students (SPN) include lupus, people with cerebral edema and people with bipolar disorder, (2) special learning innovation designs, namely the formation of a Clinical Collaborator Team (CCT) that provides special services to Special Need Students (SPN) consisting of on a therapist, spiritual motivator, and lecturer in charge of Research Seminar courses, and (3) the results of the application of collaborative clinical-based special learning innovations can significantly improve Special Need Students (SPN) learning outcomes. The study recommends teachers identify the individual conditions of Special Need Students (SPN) in their learning processes.

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Telemedicine Visits After Hospital Discharge in Children With Medical Complexity

Simmers,

Teague,

Letzkus

et al. 2025

The Journal for Nurse Practitioners

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Mothers of Children With Special Health Care Needs: Exploring Caregiver Burden, Quality of Life, and Resiliency

Cited by 6 publications

References 37 publications

Caregiver burden among parents of school-age children with asthma: a cross-sectional study

Caregiver burden among parents of school-age children with asthma: a cross-sectional study

Clinical Collaborative-Based Special Learning Innovation for Students with Special Needs: Insights from Indonesia

Telemedicine Visits After Hospital Discharge in Children With Medical Complexity

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