Mothers’ Perceived Difficulties in the Management of Chronic Conditions of Children with Spina Bifida: A Qualitative Descriptive Approach

Lim, Seoung-Wha; Yi, Myungsun

doi:10.4094/chnr.2016.22.4.247

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Cited by 2 publications

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“…In addition, most of them have further difficulties adapting to school because SB often affects learning abilities related to appropriate developmental tasks. They are also highly dependent on their parents who are often overprotective of their children [12,13], hindering autonomy and independence [14,15].…”

Section: Introductionmentioning

confidence: 99%

Illness Experiences of Adults with Spina Bifida: Protecting the Whole Self

Lim

2021

Asian Nursing Research

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Section: Introductionmentioning

confidence: 99%

Illness Experiences of Adults with Spina Bifida: Protecting the Whole Self

Lim

2021

Asian Nursing Research

Self Cite

View full text Add to dashboard Cite

Factors associated with transition readiness among adolescents and young adults with spina bifida in South Korea

Choi,

Ji,

Jung

et al. 2024

J Child Health Care

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This study aimed to examine the factors associated with transition readiness based on the healthcare transition model among adolescents and young adults (AYAs) with spina bifida (SB) in the individual (self-management and self-efficacy), family or social support (family function and social support), healthcare system, and environmental (transition environment) domains. Using face-to-face and online surveys, we conducted a cross-sectional study on AYAs with SB in South Korea. The participants were aged 13–25 years. Data were analyzed using descriptive statistics, t test, one-way analysis of variance, Pearson’s correlation coefficients, and multiple regression analysis. A total of 110 AYAs with SB participated in this study. Their mean age was 19.85 (SD = 3.65) years. The mean score of transition readiness was 3.89 (SD = 0.70) out of 5. Transition readiness was statistically significantly associated with general (age), clinical (mobility), and individual (self-management) characteristics and family or social support (social support) and the healthcare system. These results suggest that it is necessary to develop tailored transition care programs that consider factors associated with transition readiness for AYAs with SB. The findings of this study increase our understanding of the transition readiness of AYAs with SB, which can help in the development of effective transition strategies.

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Mothers’ Perceived Difficulties in the Management of Chronic Conditions of Children with Spina Bifida: A Qualitative Descriptive Approach

Cited by 2 publications

References 25 publications

Illness Experiences of Adults with Spina Bifida: Protecting the Whole Self

Illness Experiences of Adults with Spina Bifida: Protecting the Whole Self

Factors associated with transition readiness among adolescents and young adults with spina bifida in South Korea

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