Mothers’ perception of cerebral palsy in a low-income country of West Africa: a cross-sectional study

Sogbossi, Emmanuel Segnon; Houekpetodji, Damienne; Kpadonou, Toussaint; Bleyenheuft, Yannick

doi:10.1080/09638288.2021.1919765

Cited by 6 publications

(3 citation statements)

References 26 publications

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“…In Ghana, one study found that the public perceived that CP was a result of witchcraft (40%), punishment from God/gods (12%), or a curse (10%), with many who were not aware of risk factors of CP [50]. This finding is consistent with other studies demonstrating that explanations like prenatal care conditions or genetic causes are not considered [50,59]. These perceptions align with the moral/religious model of disability, one of the oldest models of disability where disability is often regarded as a punishment from God, a test of faith, a God-given opportunity for character development, or a gift to demonstrate a special purpose of calling [60].…”

Section: Discussionsupporting

confidence: 72%

Barriers to providing healthcare to children living with cerebral palsy in Ghana: A qualitative study of healthcare provider perspectives

Oguntade

Nishath

Owusu

et al. 2022

PLOS Glob Public Health

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Children with neurodevelopmental disabilities in low- and middle-income countries (LMICs) experience profound health and social inequities. While challenges faced by children living with disabilities and their caregivers have been widely documented, little is known about barriers faced by healthcare providers (HCPs) who serve these children. This study seeks to understand the barriers to testing, diagnosing, referral, and treatment of children living with cerebral palsy (CLWCP) from the perspectives of HCPs in Ghana. This qualitative study was conducted in the Greater Accra region of Ghana. A snowball sampling strategy was used to recruit HCPs from major hospitals, education centers, and health facilities. Data were collected through 11 semi-structured in-depth interviews (IDIs) with HCPs. Using an adapted version of the Sweat & Denison socio-ecological framework (SDSF), barriers to providing healthcare to CLWCPs were organized into superstructural, structural, environmental, relational, individual, and technological levels. We found that barriers to providing healthcare to CLWCPs exist at all levels of the adapted framework. The most salient barriers were identified at the superstructural, structural, and environmental levels. All HCPs expressed frustration with Ghana’s health insurance policies and inadequacies of the health systems infrastructures, such as patient assessment rooms, health information systems, and pharmaceutical products for CP care. HCPs also reported that disability-related stigma often discourages providers in training from specializing in the area of developmental disabilities. HCPs emphasized critical challenges related to local perceptions of disability, gender norms and ideologies, and health system policies and infrastructure. Findings highlight the importance of identifying multi-level factors that can influence testing, diagnosing, referral, treatment, and provision of care for CLWCPs in Ghana. Addressing identified challenges from each level of influence may improve CLWCP’s experiences throughout the care continuum.

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Section: Discussionsupporting

confidence: 72%

Barriers to providing healthcare to children living with cerebral palsy in Ghana: A qualitative study of healthcare provider perspectives

Oguntade

Nishath

Owusu

et al. 2022

PLOS Glob Public Health

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“…Studies focusing on this issue have reported on the detrimental effects of socioeconomic status, lack of rehabilitation services and inadequate knowledge of caregivers, to name but a few relevant factors. [21][22][23] Those specific issues are intertwined with the general burden of raising a child with CP in sub-Saharan Africa. Indeed, parents with limited incomes have difficulties in providing rehabilitation care for their child in institutional services.…”

Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

Efficacy of hand-arm bimanual intensive therapy including lower extremities (HABIT-ILE) in young children with bilateral cerebral palsy (GMFCS III-IV) in a low and middle-income country: protocol of a randomised controlled trial

Sogbossi

Adon

Adjagodo³

et al. 2021

BMJ Open

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IntroductionCerebral palsy (CP) is highly prevalent in sub-Saharan Africa, where clinically-based studies have shown a considerable over-representation of the severe bilateral subtype. However, children’s access to rehabilitation care is limited by many local factors, notably the lacking of rehabilitation services, insufficient knowledge of caregivers and financial constraints. In such a context there is an urgent need for studies of the evidence-based rehabilitation approach. Here, we describe the protocol of a randomised controlled study to investigate the efficacy of Hand-Arm Bimanual Intensive Therapy Including the Lower Extremities (HABIT-ILE) in young children with bilateral CP in Benin Republic, a representative low and middle-income country of western Africa.Methods and analysisForty children with bilateral CP aged between 24 and 59 months and with level III-IV in the gross motor function classification will be randomised to either a high intensity conventional therapy or HABIT-ILE therapy. Both therapies will be delivered as a day-camp model over 2 weeks to a total of 50 hours (5 hours per day). The assessor-blinded primary outcomes will include the gross motor function measure and both hands assessment. Secondary outcomes will be the adapted version of the ACTIVLIM-CP questionnaire, the Canadian Occupational Performance Measure, and a perception of CP interview form. Children will be assessed at baseline, after intervention and at 6-week follow-up. A 2 (group)×3 (test sessions) repeated analysis of variance will evaluate changes after the interventions.Ethics and disseminationThis study has been approved by the ethics committee of the rehabilitation department of the National Teaching Hospital Hubert Koutoukou Maga of Cotonou, Benin (approval decision: N°01–2019/MS/CNHU-HKM/CEI/CUMPR). All participants’ parents/caregivers will provide their written informed consent. Data will be managed with confidentiality.Trial registration numberPACTR201911894444879.

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“…Perinatal asphyxia in the preterm neonate is followed by circulatory failure and neonatal infection. Intrauterine infection is an important, although relatively rare etiological factor of CP (4).…”

Section: Introductionmentioning

confidence: 99%

Mothers’ Perception toward their Children who Suffering from Cerebral Palsy at the Pediatric Outpatient in Minia University Hospital

Hussein,

El Awady,

El Afandy

2023

Journal of Bioscience and Applied Research

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Background: Cerebral Palsy (CP ( is weakness or problems with using muscles and is caused by abnormal brain development or damage in the brain that affects a child's ability to control muscles. Aim: This study aimed to assess mothers' perceptions toward children who suffer from CP. Research design: A descriptive design was used.Sample: Convenient sample included 200 mothers who have children with CP. Setting: Pediatric outpatient clinic in Minia University Hospital. Tool of data collection: One tool an interview questionnaire that includes 5 parts, 1 st part is demographic characteristics, 2 nd part is the past medical history of mothers and children, 3 rd part the mothers' knowledge, 4 th part: mothers' reported practice, 5 th part: Mothers' attitude scale. Results: 50% of studied mothers had poor knowledge. 30% had average knowledge and 20% had good knowledge about CP. 88% had unsatisfactory reported practice and 12% had satisfactory reported practice. 67 % had a negative attitude, and 33 % had a positive attitude. Conclusion: Most mothers had poor total knowledge about CP, most had unsatisfactory total reported practices, and more than two-thirds had negative attitudes about CP. There is a statistically significant relation between mothers' sociodemographic data, knowledge, reported practices, and attitudes. Recommendations: Provide an education program for mothers and design booklets about CP.

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Mothers’ perception of cerebral palsy in a low-income country of West Africa: a cross-sectional study

Cited by 6 publications

References 26 publications

Barriers to providing healthcare to children living with cerebral palsy in Ghana: A qualitative study of healthcare provider perspectives

Barriers to providing healthcare to children living with cerebral palsy in Ghana: A qualitative study of healthcare provider perspectives

Efficacy of hand-arm bimanual intensive therapy including lower extremities (HABIT-ILE) in young children with bilateral cerebral palsy (GMFCS III-IV) in a low and middle-income country: protocol of a randomised controlled trial

Mothers’ Perception toward their Children who Suffering from Cerebral Palsy at the Pediatric Outpatient in Minia University Hospital

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