Mothers’ perceptions of universal newborn hearing screening in transitional Albania

Qirjazi, Birkena; Toçi, Ervin; Tushe, Eduard; Burazeri, Genc; Roshi, Enver

doi:10.1371/journal.pone.0237815

Cited by 7 publications

(9 citation statements)

References 19 publications

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“…As previously reported for other countries (14), the data from the present study confirm the geographic disparity not only in diagnostic terms, but also in terms of access to CI treatment for congenital BPHI. In fact, more than 60% of patients born in central-southern Italy moved to a different region for CI surgery, while less than 30% of patients in the North did.…”

Section: Discussionsupporting

confidence: 91%

Early cochlear implantation in prelingual profound hearing loss in Italy, analyzed by means of a social media survey

Orzan

Pizzamiglio²,

Magadle³

et al. 2023

Front. Pediatr.

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ObjectiveTo assess newborn hearing screening (NHS) impact on timing of cochlear implant (CI) surgery of patients with prelingual bilateral profound hearing impairment (BPHI), in order to evaluate whether the NHS ultimately serves the needs of the target population in Italy.MethodsAn online questionnaire was created to survey subjects affected by prelingual BPHL born between 1990 and 2018. Questions focused on age at BPHI diagnosis, first and second CI surgery (if performed), and the region in which the surgery was performed. The survey was distributed to potential participants via social media communities used by hearing impaired people or their family members for sharing advice and offering support. Responses were analyzed using descriptive statistics.ResultsAmong the 318 respondents who completed the questionnaire, 276 (87%) reported having chosen CI surgery, 2/3 of them bilaterally. In the vast majority (97%) of cases the CI is used on a daily basis. Most of the people residing in the center (65%) and southern Italy (71%) had to move from their region of residence to perform the surgery. Late CI surgery was associated with failure to perform NHS (p = 0.007), birth before 2011 (p = 0.009), definitive diagnosis of BPHI after 6 months of life (p = 0.002), and progressive hearing impairment (p < 0.001).ConclusionThe worldwide scientific approval of the NHS as the current best opportunity for early diagnosis and CI treatment for prelingual BPHI is confirmed by what patients and families reported via the online questionnaire used for this study. In recent years, early bilateral cochlear implantation has become increasingly available in Italy, but late diagnosis, progressive hearing loss, failure to perform the NHS and lack of follow-up are still open questions. A large proportion of families had to move from the region of residence to have their child undergo CI surgery, revealing inequalities in terms of geographical disparities. Social media has proved to be a valuable, fast and inexpensive tool for gathering information on the effectiveness of health prevention programs, involving a large sample of individuals in a short amount of time.

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Section: Discussionsupporting

confidence: 91%

Early cochlear implantation in prelingual profound hearing loss in Italy, analyzed by means of a social media survey

Orzan

Pizzamiglio²,

Magadle³

et al. 2023

Front. Pediatr.

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“…Dropout is a worldwide problem in NHS programs, and guidance to parents is essential, which needs to be adapted to the various educational, social, economic and health factors for greater effectiveness. 22 In monitoring, in addition to monthly follow-up of hearing development and of language in Primary Health Care, a hearing assessment is recommended when the child is between 7 and 12 months old 3 The median age of access to the HHS was much lower than that reported, 11.6 months, 23 and recommended in the hearing health policy, which can be justified by the hearing screening protocol of the programs, which use only transient evoked otoacoustic emissions (TEOAE), in which immediate referral to the HHS allows children access to the BAEP test.…”

Section: Discussionmentioning

confidence: 99%

Neonatal hearing screening programs: quality indicators and access to health services

Dutra

Cavalcanti

Ferreira

2022

Rev. Bras. Saude Mater. Infant.

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Objectives: to verify the quality indicators of neonatal hearing screening programs, identify the most prevalent risk factors for hearing loss and analyze access to the Hearing Health Care Network. Methods: cross-sectional study using secondary data. The population are children born in public maternity hospitals from 2015 to 2019. Data collection was carried out in the database of programs and hearing health service. The absolute and relative frequencies of all variables collected and the median, the interquartile range and the Mann-Whitney test were calculated to analyze the access. Results: universality increased during the study period, but was not reached (71.9%; CI95%=70.4-73.3) and the referral rate for auditory diagnosis was within the recommended range (0.9%; CI95%=0.8-0.9). The most prevalent risk factors were congenital infections and heredity. There was an evasion of children to the hearing health service of 85.1% and the type of referral interfered with the age of the child at access. Eight children with hearing loss were diagnosed, in which seven had access to therapeutic interventions. Conclusions: hearing screening was not universal. Access to the Hearing Health Care Network presents high evasion and interventions were offered to children with hearing loss.

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“…Neste sentido, Qirjazi et al 64 destacam que o recebimento de informações acerca da triagem auditiva neonatal pode provocar ações positivas em relação à tomada de consciência acerca da saúde auditiva na infância. Ressaltam ainda que estas estratégias precisam ter especial atenção para residentes de áreas rurais e pessoas com piores condições socioeducacionais por majoritariamente serem grupos menos informados.…”

Section: Discussionunclassified

Determinantes contextuais e individuais da utilização da triagem auditiva neonatal: Pesquisa Nacional de Saúde, 2013

2021

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O presente estudo avaliou o efeito de determinantes contextuais e individuais da utilização da triagem auditiva neonatal no Distrito Federal e capitais brasileiras. O modelo teórico conceitual proposto por Andersen & Davidson (2014) orientou as análises mediante modelagem logística multinível, com dados da Pesquisa Nacional de Saúde, 2013. A população observada (n = 585) é representativa de 230.112 duplas de mulheres/responsáveis acima de 18 anos e respectivas crianças menores de 2 anos de idade. No nível contextual (Distrito Federal e capitais), a utilização da triagem auditiva neonatal foi determinada pela proporção de indivíduos extremamente pobres (razão de chances - RC = 0,91; intervalo de 95% de confiança - IC95%: 0,83-0,99) e pela cobertura mensal da triagem auditiva neonatal (RC = 1,02; IC95%: 1,01-1,02). No nível individual, verificou-se maior uso de triagem auditiva neonatal na faixa etária entre 25 e 39 anos, em comparação às < 25 anos. A chance de utilização de triagem auditiva neonatal foi menor em respondentes com raça/cor da pele parda (RC = 0,47; IC95%: 0,26-0,83) em comparação com brancas. Quanto à escolaridade, verificou-se que possuir Ensino Superior completo quase triplicou a chance de uso de triagem auditiva neonatal, em contraste com Ensino Fundamental de estudo formal (RC = 2,99; IC95%: 1,15-7,79). O pré-natal predominantemente privado aumentou em 2,18 vezes a chance de utilizar a triagem auditiva neonatal , em comparação ao público (RC = 2,18; IC95%: 1,02-4,64). A aplicação efetiva de leis e políticas de saúde auditiva já existentes e a priorização de práticas de atenção básica e educação em saúde com foco em neonatos em maior vulnerabilidade, conforme as características identificadas nesse estudo, são iniciativas para ensejar um sistema de proteção social equânime.

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Mothers’ perceptions of universal newborn hearing screening in transitional Albania

Cited by 7 publications

References 19 publications

Early cochlear implantation in prelingual profound hearing loss in Italy, analyzed by means of a social media survey

Early cochlear implantation in prelingual profound hearing loss in Italy, analyzed by means of a social media survey

Neonatal hearing screening programs: quality indicators and access to health services

Determinantes contextuais e individuais da utilização da triagem auditiva neonatal: Pesquisa Nacional de Saúde, 2013

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