Mothers’ perspectives on the influences shaping their early experiences with infants at risk of cerebral palsy in India

Branjerdporn, Nataya; Crawford, Emma; Ziviani, Jenny; Boyd, Roslyn N.; Benfer, Katherine A; Sakzewski, Leanne

doi:10.1016/j.ridd.2021.103957

Cited by 6 publications

(16 citation statements)

References 26 publications

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“…For this, these participants authoritatively arranged an intense learning schedule for their children, regardless of the children’s ideas, interests, or abilities, which inevitably resulted in aggressive involvement. These findings are consistent with previous studies showing that parents’ extremely high expectations for their children may lead to blind and aggressive behavior in participating in their children’s learning, which in turn hinders social development and academic achievement (Branjerdporn et al, 2021 ; Sun et al, 2020 ). This outcome seems to apparently contradict the “Pygmalion effect,” a psychological phenomenon in which high expectations lead to better performance in a given area (Rosenthal, 2010 ); however, the potential explanation may be closely related to the elitism in the Chinese education system (Ma, 2020 ).…”

Section: Discussionsupporting

confidence: 92%

A Qualitative Study on Parental Experience of Involvement in the Transition from Kindergarten to Primary School for Chinese Children with Intellectual and Developmental Disabilities

Hou

Yan

Deng

2022

J Autism Dev Disord

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Parental involvement plays a vital role in the transition from kindergarten to primary school among children with intellectual and developmental disabilities (IDDs); this study aims to explore Chinese parents’ experiences of parental involvement during this period. Informed by interpretive phenomenological analysis, semi-structured, one-on-one interviews were held with 10 parents. Three major themes were identified: (1) “aggressive” involvement; (2) factors in transforming parental involvement; and (3) “rational” involvement. Participants reported their perceptions, attitudes, and parenting behaviors in different phases of involvement in the transition to primary school. These findings highlight the need to support parents of children with IDDs during this time of change.

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Section: Discussionsupporting

confidence: 92%

A Qualitative Study on Parental Experience of Involvement in the Transition from Kindergarten to Primary School for Chinese Children with Intellectual and Developmental Disabilities

Hou

Yan

Deng

2022

J Autism Dev Disord

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“…Varios estudios abordaron esta F‐word (familia) mediante diseños de estudio cualitativos o de métodos mixtos 39,41,50–55 ya que estos pueden ser los más adecuados para capturar factores personales que son difíciles de medir con herramientas estandarizadas. La presión económica que supone el cuidado de un niño con necesidades complejas puede dar lugar a decisiones de no utilizar otros servicios para las necesidades sanitarias, recreativas y educativas de los padres dentro de la familia, 54 lo que puede suponer una gran carga para la familia a largo plazo.…”

Section: Discussionunclassified

“…48 Otros estudios más recientes que no cumplieron nuestros criterios de inclusión sugieren que la educación puede ser más efectiva cuando la imparte un equipo de profesionales y padres con niños similares a los de las familias que participan en estos programas, algo que debe estudiarse más a fondo. 49 Varios estudios abordaron esta F-word (familia) mediante diseños de estudio cualitativos o de métodos mixtos 39,41,[50][51][52][53][54][55] ya que estos pueden ser los más adecuados para capturar factores personales que son difíciles de medir con herramientas estandarizadas. La presión económica que supone el cuidado de un niño con necesidades complejas puede dar lugar a decisiones de no utilizar otros servicios para las necesidades sanitarias, recreativas y educativas de los padres dentro de la familia, 54 lo que puede suponer una gran carga para la familia a largo plazo.…”

Section: Familiaunclassified

F‐words e ingredientes de las intervenciones tempranas dirigidas a niños no ambulantes con parálisis cerebral: Una revisión exploratoria

Campos

Hidalgo‐Robles

Longo

et al. 2023

Develop Med Child Neuro

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ObjetivosExplorar los ingredientes de las intervenciones tempranas realizadas a niños pequeños con parálisis cerebral (PC) clasificados en el Sistema de Clasificación de la Función Motora Gruesa (GMFCS) niveles IV y V, e identificar las ‘F‐words’ abordadas por las intervenciones.MétodoSe realizaron búsquedas en cuatro bases de datos electrónicas. Los criterios de inclusión fueron estudios experimentales originales que cumplieran los siguientes componentes PCC: población: niños pequeños (edades 0–5 años, al menos el 30% de la muestra) con PC y alteraciones motoras significativas (niveles GMFCS IV o V, al menos 30% de la muestra); concepto: servicios de intervención temprana no quirúrgicos y no farmacológicos que midieran resultados de cualquier dominio de la Clasificación Internacional del Funcionamiento, Discapacidad y Salud; y contexto: estudios publicados de 2001 a 2021, en todos los entornos y sin limitaciones geográficas específicas.ResultadosOchenta y siete artículos fueron incluidos en la revisión, con diseños cualitativos (n = 3), de métodos mixtos (n = 4), cuantitativos descriptivos (n = 22), cuantitativos no aleatorizados (n = 39), y cuantitativos aleatorizados (n = 19). Los ingredientes de estado físico (n = 59), familia (n = 46) y funcionamiento (n = 33) fueron abordados por la mayoría de los estudios experimentales, mientras que los estudios sobre diversión (n = 6), amigos (n = 5) y futuro (n = 14) fueron escasos. Otros factores (n = 55) relacionados con el entorno, por ejemplo, la prestación de servicios, formación profesional, dosis de terapia y modificaciones del entorno, fueron también relevantes.InterpretaciónMuchos estudios respaldaron positivamente el entrenamiento formal de los padres y el uso de tecnología de apoyo para promover varias F‐words. Se proporcionó un menú de ingredientes de intervención, con sugerencias para investigaciones futuras, para incorporarlo en un contexto real dentro de la familia y la práctica clínica.

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“…In low-resource regions, potentially preventable causes of CP are prevalent and access to equipment is limited; this warrants actions to change the future of children living in these areas. [97][98][99] Interventions that target the attitudes towards children with disabilities 39,44,46,49,55,100 may also have a transformative role because they may change how society values them and acknowledges their rights and potential.…”

Section: Futurementioning

confidence: 99%

F‐words and early intervention ingredients for non‐ambulant children with cerebral palsy: A scoping review

Campos

Hidalgo‐Robles

Longo

et al. 2023

Develop Med Child Neuro

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AimTo explore the ingredients of early interventions provided to young children with cerebral palsy (CP) who are classified in Gross Motor Function Classification System (GMFCS) levels IV and V, and to identify the ‘F‐words’ addressed by the interventions.MethodSearches were completed in four electronic databases. Inclusion criteria were the original experimental studies that fitted the following PCC components: population, young children (aged 0–5 years, at least 30% of the sample) with CP and significant motor impairment (GMFCS levels IV or V, at least 30% of the sample); concept, non‐surgical and non‐pharmacological early intervention services measuring outcomes from any of the International Classification of Functioning, Disability and Health domains; and context, studies published from 2001 to 2021, from all settings and not limited to any specific geographical location.ResultsEighty‐seven papers were included for review, with qualitative (n = 3), mixed‐methods (n = 4), quantitative descriptive (n = 22), quantitative non‐randomized (n = 39), and quantitative randomized (n = 19) designs. Fitness (n = 59), family (n = 46), and functioning (n = 33) ingredients were addressed by most experimental studies, whereas studies on fun (n = 6), friends (n = 5), and future (n = 14) were scarce. Several other factors (n = 55) related to the environment, for example, service provision, professional training, therapy dose, and environmental modifications, were also relevant.InterpretationMany studies positively supported formal parent training and use of assistive technology to promote several F‐words. A menu of intervention ingredients was provided, with suggestions for future research, to incorporate them into a real context within the family and clinical practice.

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Mothers’ perspectives on the influences shaping their early experiences with infants at risk of cerebral palsy in India

Cited by 6 publications

References 26 publications

A Qualitative Study on Parental Experience of Involvement in the Transition from Kindergarten to Primary School for Chinese Children with Intellectual and Developmental Disabilities

A Qualitative Study on Parental Experience of Involvement in the Transition from Kindergarten to Primary School for Chinese Children with Intellectual and Developmental Disabilities

F‐words e ingredientes de las intervenciones tempranas dirigidas a niños no ambulantes con parálisis cerebral: Una revisión exploratoria

F‐words and early intervention ingredients for non‐ambulant children with cerebral palsy: A scoping review

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