Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region

Cantero-Garlito, Pablo A.; Miralles, Pedro Moruno; Martos, Juan Antonio Flores

doi:10.3390/ijerph17082920

Cited by 18 publications

(20 citation statements)

References 47 publications

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“…Thus, a study that aimed to examine how parents experience their work as caregivers for their child with chronic disability reinforces the mother’s hegemony and significant daily commitment ( 19 ) . The tasks are mainly performed by them, with occasional support from other women in the family, such as grandmothers, while the fathers carry out logistical activities and play with the children ( 20 ) .…”

Section: Discussionmentioning

confidence: 99%

Theoretical care model for children with congenital Zika virus syndrome in the family context

Teixeira

Silva

Miranda

et al. 2021

Rev. Latino-Am. Enfermagem

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Objective: to develop a theoretical model about the care of children with Congenital Zika Virus Syndrome in the family context. Method: the Straussian Grounded Theory and the theoretical/philosophical framework of Callista Roy and Leonardo Boff were used. It was carried out in northeastern Brazil, with 19 participants, in four sample groups. The data were collected and analyzed simultaneously, using the constant comparison method. Results: the theoretical model comprising the mother’s care for the child with Congenital Zika Virus Syndrome in the family context is formed by five categories: revealing family care, centered on the mother, to the child with the syndrome; identifying the maternal bond that determines the care for children with the syndrome in the family context; identifying the factors that hinder the mother’s care for the child with the syndrome; recognizing the evolution of the child with the syndrome in the face of early stimulation care; and recognizing harms due to the absence of early stimulus to children with the syndrome. Conclusion: the phenomenon runs through the care of the child with Congenital Zika Virus Syndrome, in the family context and centered on the mother, and is faced with the need for shared responsibility among the family members.

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Section: Discussionmentioning

confidence: 99%

Theoretical care model for children with congenital Zika virus syndrome in the family context

Teixeira

Silva

Miranda

et al. 2021

Rev. Latino-Am. Enfermagem

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“…Interviews were backed up with other field research techniques ( Table 2 ), such as informal interviews with different agents in the area―i.e., shop attendants and street sellers, individuals from the area who had not fulfilled the initial inclusion criteria, and key agents; direct observation in the spaces for food acquisition in the chosen localities and in the respondents’ own homes and vegetable plots; and a field diary that provided additional information on specific contexts and issues, allowing us to build a more comprehensive picture of the participants [ 41 , 42 ].…”

Section: Methodsmentioning

confidence: 99%

Health and Nutritional Beliefs and Practices among Rural Elderly Population: An Ethnographic Study in Western Spain

Jiménez

Caballero

Juárez

2020

IJERPH

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Background: Demographic transition is causing an increasingly aged society, which has a significant impact on public health strategies. Increases in the size of the elderly cohort create a wider stratification and pose specific challenges. Nutrition and diet are one key issue. This study aims to describe food-related practices, beliefs, and representations of non-institutionalized older adults in rural communities in Extremadura (Western Spain). Method: The ethnographic-based fieldwork was conducted from January to July 2019. Empirical material was collected through different research relationships (semi-structured interviews and informal conversations) and direct observation in various locations in Extremadura―involving a variety of agents associated with different aspects of the nutritional process. Results: Data analysis revealed four major themes: (1) Limitations on choice and quality of food available; (2) food preferences and cooking methods; (3) the role of nostalgia in the construction of taste preferences; and (4) perceptions of what “healthy” food is and how respondents relate to the advice provided by health professionals. Conclusions: Nutritional choices among the group studied presented significant differences from medical advice―which was seen as a series of “bans” that did not carry enough authority to alter the symbolic value attached to their traditions.

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“…Data and empirical materials regarding the ethnographic fieldwork (phase 1) will be collected through in-depth semi-structured interviews, and participant observation in the field. A field diary will allow to build up a more comprehensive image of subjects through providing additional information on specific contexts and issues [43,44]. All research techniques are shown in Table 1.…”

Section: Data Collection and Measuresmentioning

confidence: 99%

Family Orchards and Health-Related Quality of Life in the Elderly. A Protocol for a Study in Las Hurdes (Spain) Based on an Ethnographic Approach

Vicente

Carlos‐Vivas

Mendoza-Muñoz

et al. 2021

IJERPH

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Demographic evolution is resulting on an aged population increment in Spain. This growth has been more relevant in rural areas, where the population has traditionally lived under hard socio-economic conditions and leveraging the natural resources such as food from family orchards to survive. Studies that have investigated the possibilities and uses of these traditional family orchards today in relation to health-related quality of life in the elderly are scarce. Based on a previous ethnography, this mixed research aims to describe a protocol that will evaluate the effects of the use of traditional family orchards as a daily resource on fitness and quality of life of the elderly population in Las Hurdes (Spain). Body composition, fitness, mental health, health-related quality of life, and activity-related behaviors of participants will be assessed. The outcomes of this study might enable us to design further tailored physical exercise-based interventions using family orchards as an adequate resource to improve the health-related quality of life and fitness of the elderly in rural areas. In addition, the study detailed here might also be applied to other similar rural areas in Spain and worldwide.

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Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region

Cited by 18 publications

References 47 publications

Theoretical care model for children with congenital Zika virus syndrome in the family context

Theoretical care model for children with congenital Zika virus syndrome in the family context

Health and Nutritional Beliefs and Practices among Rural Elderly Population: An Ethnographic Study in Western Spain

Family Orchards and Health-Related Quality of Life in the Elderly. A Protocol for a Study in Las Hurdes (Spain) Based on an Ethnographic Approach

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