Motivating factors amongst caregivers of those suffering from dementia: a thematic analysis

Abstract

Background: The current study explored the factors that motivate caregivers to continue providing care to their family member suffering from dementia. Maximum variation sampling was employed. In depth interviews were conducted with each caregiver till saturation was reached. A total of five hours of interview data was transcribed verbatim and 75 pages of the transcribed data were analyzed using thematic analysis. 18 themes were identified under the area of motivating factors. Methodology: The data collection was done through face -to -face in -depth interviews. The sample included was adult female family members of the patient suffering from dementia. They were selected through medical and mental health professionals. Results: Five hours of audio taped data derived from in depth interview with five caregivers was transcribed verbatim. 75 pages were analysed using thematic analysis. Most of the existing research focuses on the stress and health issues caregivers face. Little research exists about what motivates individuals to choose to provide long term care to their deteriorating family members. Seven areas were explored. Conclusion: 18 themes were found under motivating factors. These were maternal instincts, reciprocity, responsibility towards family, lack of assistance, lack of an option, caregiver's personality, care and love, viewing caregiving as an opportunity to show concern, concern for patient's safety, patient's attitude towards the caregiver, guilt, viewing the patient as vulnerable, view of oneself, desire for normalcy, identifying with the patient, personal anxiety, final years and hope.