Moving on: Transitions out of care for young people with learning disabilities in England and Sweden

Roberts, Helen; Ingold, Anne; Liabo, Kristin; Manzotti, Grazia; Reeves, David; Bradby, Hannah

doi:10.1111/bld.12211

Cited by 7 publications

(4 citation statements)

References 24 publications

(30 reference statements)

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“…Scoping reviews can provide a descriptive account of the existing literature when time and resources are scarce, helping identify gaps for further study which can be easily summarised and shared (Arksey & O'Malley, 2005; Levac et al, 2010). Researchers have previously combined rapid reviews of the existing evidence with explorations of stakeholder experience to provide additional insight (Arksey & O'Malley, 2005; Jacobs et al, 2016; Ledger et al, 2022; Roberts et al, 2018). This is the approach we took for the purposes of our review.…”

Section: Methodsmentioning

confidence: 99%

Menstruation and learning disability across the life course: Using a two‐part scoping exercise to co‐produce research priorities

Earle,

Ledger,

Newton

et al. 2024

Brit J Learn Disabil

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BackgroundAcross the life course, women and girls with learning disabilities and their carers report difficulties in accessing information and support with menstruation, yet their experiences are often overlooked in initiatives to improve menstrual health and wellbeing. Our aim was to collaborate with women with learning disabilities to co‐produce future research priorities in a UK context.MethodsWe undertook a two‐part scoping exercise to explore what is known about this topic from a life course perspective, beginning pre‐menarche and extending to post‐menopause support. This combined a rapid scoping review of the literature since 1980 with a stakeholder consultation where people with learning disabilities, family carers, advocacy groups and staff working across education, health and social care were invited to share their experiences of menstruation support.FindingsUK and international literature provided insight across five narrative themes. Seventy stakeholders took part in our consultation, enabling the identification of five key themes. Findings across both highlight examples of supportive practice and valued resources alongside enduring health inequalities and barriers to menstruation support faced by women and girls with learning disabilities across the life course.ConclusionOur scoping exercise identified multiple gaps in research and practice, ongoing reproductive health inequalities and a need for improved access to peer support, resources and training that take a life course approach. The scoping exercise indicates the need for further empirical research on menstruation and learning disability, with a particular focus on collating people's lived experiences.

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Section: Methodsmentioning

confidence: 99%

Menstruation and learning disability across the life course: Using a two‐part scoping exercise to co‐produce research priorities

Earle,

Ledger,

Newton

et al. 2024

Brit J Learn Disabil

View full text Add to dashboard Cite

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“…1 Of these, around two thirds will be invited to participate on the basis of demographic characteristics (gender; ethnicity; socio-economic context; geographical location; family circumstances), which broadly reflects the overall distribution in the wider BiB cohort, which is reflective of the population of Bradford. The remainder will be invited as members of groups often under-represented in genuinely participative co-production, including for instance disabled children, children in learning disability education, looked after children, refugee children, and children of refugees ( Roberts et al ., 2018 ). Recruitment in tranches will allow us to consider differences in young people’s experiences of the same age in different years ( Morrow & Crivello, 2015 ) and is likely to include issues such as the impact of the COVID-19 pandemic on education, mental health and cost of living.…”

Section: Methodsmentioning

confidence: 99%

Born in Bradford Age of Wonder cohort: A protocol for qualitative longitudinal research

Dogra,

Lightfoot,

Kerr

et al. 2023

Wellcome Open Res

Self Cite

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Bradford is multi-ethnic and one of the most deprived districts in the United Kingdom where around a quarter of children live in low-income families. Born in Bradford (BiB) has followed the lives of 13,776 children born in the district between 2007 and 2011. Children in the birth cohort are now entering adolescence, and the next phase of the research - Age of Wonder (AoW) - will be a whole city cohort capturing the experiences of 30,000 adolescents progressing into young adulthood. This protocol focuses on one component of the AoW programme: qualitative longitudinal research (QLR). The study will gather in depth and detailed accounts from a sub-sample of 100 young people across four major research priorities: personal life; social and community life; growing up with difference, and growing up in Bradford. As well as using traditional qualitative methods such as interviews, focus group discussions, and ethnography, we are adopting innovative creative methods including expressions through art, activism, online and digital content, portraits, and critical events. The process of engaging in and co-producing QLR potentially provides a route to empowering young people to shape the narrative of their own lives as well as informing intervention development.

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“…1 Of these, around two thirds will be invited to participate on the basis of demographic characteristics (gender; ethnicity; socio-economic context; geographical location; family circumstances), which broadly reflects the overall distribution in the wider BiB cohort. The remainder will be invited as members of groups often under-represented in genuinely participative co-production, including for instance children in special education, looked after children, and children of refugees (Roberts et al, 2018). Recruitment in tranches will allow us to consider differences in young people's experiences of the same age in different years (Morrow & Crivello, 2015) and is likely to include issues such as the impact of the COVID-19 pandemic on education, mental health and cost of living.…”

Section: Samplingmentioning

confidence: 99%

Born in Bradford Age of Wonder cohort: A protocol for qualitative longitudinal research

Dogra¹,

Lightfoot²,

Kerr³

et al. 2022

Wellcome Open Res

Self Cite

View full text Add to dashboard Cite

Born in Bradford (BiB) has followed the lives of 13,776 children born in the district between 2007 and 2011. Children in the birth cohort are now entering adolescence, and the next phase of the research - Age of Wonder (AoW) - will be a whole city cohort capturing the experiences of 30,000 adolescents progressing into young adulthood. This protocol focuses on one component of the AoW programme: qualitative longitudinal research (QLR). The study will gather in depth and detailed accounts from a sub-sample of 100 young people across four major research priorities: personal life; social and community life; growing up with difference, and growing up in Bradford. As well as using traditional qualitative methods such as interviews, focus group discussions, and ethnography, we are adopting innovative creative methods including expressions through art, activism, online and digital content, portraits, and critical events. The process of engaging in and co-producing QLR potentially provides a route to empowering young people to shape the narrative of their own lives as well as informing intervention development.

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Moving on: Transitions out of care for young people with learning disabilities in England and Sweden

Cited by 7 publications

References 24 publications

Menstruation and learning disability across the life course: Using a two‐part scoping exercise to co‐produce research priorities

Menstruation and learning disability across the life course: Using a two‐part scoping exercise to co‐produce research priorities

Born in Bradford Age of Wonder cohort: A protocol for qualitative longitudinal research

Born in Bradford Age of Wonder cohort: A protocol for qualitative longitudinal research

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