Multidisciplinary Care and Prognosis in Patients With COPD and Interstitial Lung Disease Prescribed Long-Term Oxygen Therapy

Harrison, Amelia; Robinson, Julien F; Tu, Laura; McDonald, Christine F; Khor, Yet H.

doi:10.4187/respcare.09446

Cited by 4 publications

(2 citation statements)

References 29 publications

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“…Despite being recognised as a necessity by patients, caregivers and HCPs, end-of-life care is not readily available to patients with PF. According to HARRISON et al [61], only one-third of patients are referred to palliative care when they initiate long-term oxygen therapy, even though the mean survival time at this stage is only 1.5 years. The barriers referral include a perceived lack of local access to palliative care, lack of established optimal timing for referral, insufficiently specialised professionals, insufficient knowledge of the specific palliative care needs of patients with PF, and a lack of collaboration between palliative care and respiratory teams, as well as difficulties travelling, transportation difficulties, severe breathlessness and high supplemental oxygen requirements among patients [13,62].…”

Section: End-of-life Carementioning

confidence: 99%

Holistic management of patients with progressive pulmonary fibrosis

Oliveira,

Fabbri,

Gille

et al. 2023

Breathe

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Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.Educational aimsTo identify the main needs of patients with PF and their caregivers.To describe the components of a comprehensive approach to a supportive care programme for patients with PF.To identify further areas of research to address technical issues related to the management of patients with PF.

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Section: End-of-life Carementioning

confidence: 99%

Holistic management of patients with progressive pulmonary fibrosis

Oliveira,

Fabbri,

Gille

et al. 2023

Breathe

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“…[1][2][3] Despite recent advances in the treatment of ILDs, the symptom burden remains high, and for most patients disease progression is at best slowed down. [4][5][6][7] Supportive care in the forms of psychosocial support, oxygen therapy, pulmonary rehabilitation (PR), and palliative care are recommended, but they remain underutilized due to a multitude of factors. These factors range from issues regarding access to incomplete understanding of potential benefits.…”

Section: Introductionmentioning

confidence: 99%

A Tai Chi Class Collaboratively Developed for Persons With Interstitial and Other Lung Diseases: An Ethnographic Investigation

Kilgore,

Leinfelder,

Campbell

et al. 2023

Global Advances in Integrative Medicine and Health

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Background Participating in physical activity (PA) can be challenging for persons with chronic and significant lung disease due to the multifaceted disruptive effects of their symptoms and variable disease course. Objectives Our study investigates a novel approach to increasing PA by collaboratively and adaptively developing a Tai Chi (TC) class for and by persons with lung diseases and explores participants’ perceptions of their experiences in the co-developed TC class. Methods We initiated a collaboration between the Interstitial Lung Disease (ILD) Collaborative and the Tai Chi Foundation to develop a TC class appropriate for persons with ILD and other lung diseases. The TC class was offered online, during the early phases of the COVID-19 pandemic, when pulmonary patients were isolated socially. TC class sessions were held twice weekly for 12 weeks with 12 participants. Ethnographic field methods were used to collect observations and conduct interviews with teachers and students. The Social Ecological Model (SEM) for understanding factors in intrapersonal, interpersonal, social, and organizational contexts was used to explore ways in which wellness practices, particularly those involving changes in health behaviors, can be collaboratively conceived, and developed by persons with the lived experience of illness and community organizations that are sensitive to their personal and social contexts. The constant comparative method was used for data analysis. Results Our findings include the importance of (1) creating a supportive class environment, characterized by interactive and reciprocal relationships among students and teachers; (2) alternating segments of movement and meditation to avoid fatigue and breathlessness; (3) cultivating sensory awareness and body trust, resting when needed and rejoining the movements when ready; (4) increasing the capacity to meditate through deepening presence and renewing the vital connection with inner and outer sources of energy; (5) reducing, through meditative movement, the persistent anxiety, isolation, and sense of loss that accompany chronic disease diagnosis and progression. Conclusion We documented a collaboration between the TC and pulmonary communities to design a TC class for persons with chronic and significant lung disease. We employed the SEM to provide insights into how teachers, informed by their students, can use effective pedagogical skills to create core curricula with modifications appropriate for a specific population.

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The benefits and drawbacks of home oxygen therapy for COPD: what’s next?

Khor,

Ekström

2024

Expert Review of Respiratory Medicine

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Multidisciplinary Care and Prognosis in Patients With COPD and Interstitial Lung Disease Prescribed Long-Term Oxygen Therapy

Cited by 4 publications

References 29 publications

Holistic management of patients with progressive pulmonary fibrosis

Holistic management of patients with progressive pulmonary fibrosis

A Tai Chi Class Collaboratively Developed for Persons With Interstitial and Other Lung Diseases: An Ethnographic Investigation

The benefits and drawbacks of home oxygen therapy for COPD: what’s next?

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