Multidisciplinary Parent Education for Caregivers of Children with Autism Spectrum Disorders

Ji, Binbin; Sun, Mei; Yi, Rongfang; Tang, Siyuan

doi:10.1016/j.apnu.2014.06.003

Cited by 40 publications

(39 citation statements)

References 22 publications

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“…Scores for each dimension are obtained by summing up the respective item values; the sum of developmental, physical, social and emotional burden scores is globally interpreted as Subjective Burden (SB); a total burden score can also be calculated as the sum of OB and SB (values range 0-96). The CBI validity, well documented in caregivers of adults, has been recently supported in caregivers of children with Pediatric Acute-onset Neuropsychiatric Syndrome (Farmer et al 2018); the CBI was employed with parents of children with Autism Spectrum Disorders (Ji, Sun, Yi, & Tang, 2014) and adapted for use with parents of children with Rett Syndrome (Lane et al, 2017).…”

Section: Research Instrumentsmentioning

confidence: 99%

Resilience as a moderator between Objective and Subjective Burden among parents of children with ADHD

Fossati

Negri

Fianco

et al. 2020

Archives of Psychiatric Nursing

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The caring related challenges reported by parents of children with Attention Deficit and Hyperactivity Disorder (ADHD) were widely investigated. Little information is instead available on the resources mobilized by these parents in facing caring burden. In the attempt to fill this gap, the present study aimed at exploring the moderating role of resilience in the relationship between the amount of time parents of children with ADHD devote to caring tasks (objective burden) and their emotional and social burden (subjective burden). A multidimensional model of resilience was adopted, comprising six components: Self-Perception, Planned Future, Structured Style, Social Competence, Family Cohesion, and Social Resources. Participants were 44 parents (81.8% females, aged 31-53) of children with ADHD (86.4% males, aged 6-14). They completed the Caregiver Burden Inventory, the Resilience Scale for Adults, and the 36-Item Short Form Health Survey. Hierarchical regressions were performed to test the moderating role of resilience as a global construct, and of each resilience dimension separately, on the relation between objective and subjective burden; participants' gender and mental health scores were employed as control variables. Total resilience, Family Cohesion and Self-Perception emerged as protective factors, weakening the relationship between subjective and objective burden. Findings suggest that the potential of individual and family resources in promoting parents' adjustment to caring burden could be more effectively exploited in clinical interventions addressed to parents of children with ADHD. Overall, the identification of caregivers' strengths and resources could help practitioners to better support children with ADHD and their families.

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Section: Research Instrumentsmentioning

confidence: 99%

Resilience as a moderator between Objective and Subjective Burden among parents of children with ADHD

Fossati

Negri

Fianco

et al. 2020

Archives of Psychiatric Nursing

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show abstract

“…Research designs have ranged from exploratory case studies to randomised controlled trials. While some studies reported on parental stress (Al-Khalaf et al, 2014;Chiang, 2013;Farmer & Reupert, 2013;Tonge et al, 2006), others focused on quality of life (Ji et al, 2014), level of knowledge (Cutress & Muncer, 2014;Yucel & Cavkaytar, 2007) or parent-child interaction (Wang, 2008). Even where studies reported on similar outcomes, the degree of diversity in the ways that data has been analysed and studies reported makes it impracticable to confidently make assertions regarding the impact of factors such as specific content, group size, or course duration on parent outcomes.…”

Section: Diverse Nature Of Studiesmentioning

confidence: 99%

Parent education in autism spectrum disorder - a review of the literature

Preece

Trajkovski

2017

Hrvat. rev. rehabil. istraž. (Online)

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Obitelji koje žive s poremećajem iz spektra autizma suočavaju se s mnogim izazovima koji ne utječu samo na dijete s tim poremećajem i njegov razvoj, već i na funkcioniranje obitelji i kvalitetu njezina života. Edukacija roditelja o poremećaju iz spektra autizma identificirana je kao prioritetna intervencija u području ove problematike, kako na nacionalnoj, tako i na međunarodnoj razini. Dok je, s jedne strane, literature o osposobljavanju (treningu) roditelja u okviru specifičnih terapijskih pristupa opsežna, pretragom baza podataka pronašli smo svega 12 članaka koji izvještavaju o istraživanjima edukacije roditelja. Ukupno gledajući, ta istraživanja pokazuju pozitivne učinke edukacije roditelja: ona može doprinjeti redukciji stresa i anksioznosti, boljem nošenju s teškoćama, poboljšanju interakcija i komunikacije između roditelja i djeteta, boljem razumijevanju poremećaja iz spektra autizma, učinkovitosti, povjerenju i poboljšanju kvalitete života roditelja. Razmatraju se četiri ključne teme: utjecaj, provedba, sadržaj i lokalna/kulturna sporna pitanja edukacije roditelja, a također i slabosti i teškoće zamijećene u dosadašnjim istraživanjima, kao i potreba za daljnjim istraživanjima na području ovih intervencija.

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“…Respecto a la distribución por años de los artículos seleccionados, tres son del 2014 (10 -12) , dos del año 2015 (13,14) y dos del año 2017 (11,16) sin encontrar a la fecha de la investigación en las bases de datos, artículos disponibles para el año 2018. En la distribución por continente de los artículos seleccionados, tres son de América y cuatro de Asia, de los cuales uno fue desarrollado en Brasil, dos en China, uno en India y uno en Pakistán.…”

Section: Resultsunclassified

Autoeficacia de cuidadores familiares de niños/as con trastornos del espectro autista: revisión integrativa

Ramírez-Ochoa

Orellana-Yáñez

2019

SANUS

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Introducción: Los trastornos del espectro autista en niños/as, generan un efecto negativo en sus cuidadores, donde la comprensión de las cogniciones parentales, como la percepción de autoeficacia, podría afectar el cuidado que entregan. Objetivo: Identificar como la percepción de autoeficacia del cuidador familiar de un niño/a con trastorno del espectro autista, modifica el cuidado que entrega Métodos: Revisión integrativa, realizada en cuatro bases de datos, utilizando las palabras claves, cuidadores, autoeficacia y niño, con booleano AND; filtros, por año e idioma. Resultados: Se seleccionaron 41 artículos, los cuales posterior al análisis y verificación del cumplimiento de criterios de inclusión y exclusión, permitió trabajar con 7 artículos que incorporaban a cuidadores familiares de niños/as con trastorno autista y su percepción de autoeficacia. Conclusiones: El cuidador familiar, debe ser considerado un componente esencial del sistema de cuidado, donde el fortalecimiento de la percepción de autoeficacia, permite que puedan sentirse capaces y empoderados en su rol, favoreciendo su afrontamiento y adquisición de herramientas para desarrollar el cuidado.

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Multidisciplinary Parent Education for Caregivers of Children with Autism Spectrum Disorders

Cited by 40 publications

References 22 publications

Resilience as a moderator between Objective and Subjective Burden among parents of children with ADHD

Resilience as a moderator between Objective and Subjective Burden among parents of children with ADHD

Parent education in autism spectrum disorder - a review of the literature

Autoeficacia de cuidadores familiares de niños/as con trastornos del espectro autista: revisión integrativa

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