Multiple Victims: The Result of Caring Patients in Vegetative State

Goudarzi, Fateme; Abedi, Heidarali; Zarea, Kourosh; Ahmadi, Fazlollah

doi:10.5812/ircmj.23571

Cited by 18 publications

(26 citation statements)

References 31 publications

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“…Other study in Italy, verified many physical and psychological problems in these caregivers (27) and Chiambretto et al declared that PVS caregivers are affected continually with a prolonged grief (28). Gudarzi et al in a qualitative research, represented that the Iranian caregivers of PVS patients suffered from some physical and psychological injuries such as herniated disk, knee and arm pain, malnutrition, sexual disorder, sever fatigue and insomnia (18). The results are congruent with our study.…”

Section: Discussionsupporting

confidence: 91%

“…Because they had fear of after discharge and doing imposed cares such as feeding, change position, change bedsheets and take medications (39). It seems another factors affecting this situation are nursing shortage and workloads in Iranian hospitals that induce nurses using caregivers to assist patients (40), in this regard, some believed that nurses should educate caregivers scrutiny (17), for doing a comprehensive care (18).…”

Section: Discussionmentioning

confidence: 99%

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The care-givers of patients with persistent vegetative state have a terrible life: the result of a qualitative study

Alimohammadi¹,

Arast²,

Abdi³

2020

Preprint

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Background persistent vegetative state (PVS) is one of the results of traumatic brain injury. These patients are hospitalized for a long time, and need more cares. The caregivers are first members who provide care and have some challenges accordingly. With regards to a lack of information in this issue, the current study was conducted to explore Iranian care-givers experiences of caring for PVS patients following traumatic brain injury.Methods this study was conducted as a descriptive phenomenological study in 2019. Semi-structured interviews were done on caregivers of PVS in a center of trauma in Iran. The interviews were recorded and wrote verbatim, then analyzed using seven steps of Collazi with management of MAXQUDA software. Guba and Lincoln`s criteria were used in favor of rigor, including credibility, dependability, transferability, and confirmability.Results twelve people participated in the study and five themes, and ten subthemes extracted from 428 codes. The themes were "falling into tensions", "seeking peace", "imposed therapeutic duties", "preserve connection" and 'unheard sounds ".Conclusion In this study, the caregivers of PVS experienced some injuries and familial crises. They wished peace by praying and drain their feelings, also did some imposed duties, and tried to address all the needs of patient. They assessed patients' signs daily and some information gap, therefore, wanted to obtain them by relationship with staff. The caregivers communicated with patients and hoped to recovery of patients. They were complained of accommodations and lack of staff visits.

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Section: Discussionsupporting

confidence: 91%

Section: Discussionmentioning

confidence: 99%

The care-givers of patients with persistent vegetative state have a terrible life: the result of a qualitative study

Alimohammadi¹,

Arast²,

Abdi³

2020

Preprint

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“…In line with this study, studies of family caregivers of patients with chronic diseases such as neurological disorders, 31 coronary artery surgery, 32 cancer, 33 and vegetative patients 34 have also been shown to impose pressure and distress. Nevertheless, several factors such as the degree of independence of the patient in self-care, duration of care, hours of patient care per day, and the demographic characteristics of caregivers can be effective on the burnout of family caregivers.…”

Section: Discussionsupporting

confidence: 70%

The Resilient Care of Patients with Vegetative State at Home: a Grounded Theory

et al. 2018

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Introduction: The care of patients in vegetative state at home is difficult because they need continuous medical interventions and extensive care. The present study aims to explain the process of home care of patients in vegetative state at home. Methods: This study was a qualitative research with a grounded theory approach. The participants were 22 people (included 17 family caregivers and 5 professional caregivers) who were enrolled in a purposive sampling. Data was gathered through unstructured interviews, observations and field notes. Data collection was continued to saturation. Data analysis was performed through the Strauss and Corbin 1998 approach. The MAXQDA10 software was used to facilitate data analysis. Results: The data analysis led to emerge four main concepts included "erosive care", "erosive expenditures", "seeking solver education" and "lasting hope" as the axes of the study. Participants' experiences showed that the main concern of family caregivers of vegetative patients was "playing an inevitable role in care", in which they did not hesitate to make any effort, and they tolerated all the problems and issues. Therefore, "resilient care" was extracted as the underlying idea of this study. Conclusion: The process of resilient care of vegetative patients at home showed planning by policy makers in health system is very important and underscored the necessity for supporting families and family caregivers of these patients. So some changes in the health system for this goal might include considering home care and supporting them in various aspects, especially information, financial and emotional dimensions.

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“…They injure their backs or arms as a result of lifting, rotating their patient, they are tired and sleepless for they have to stay awake most of the time. The family members who give one to one care have to face with physical injuries due to the continuous care they have to give and they indicate that they face with back and arm pain, in addition to feeling tired and getting sick for they are neglecting their own health (10,16). The families neglect their own health for they feel they are the only ones who can understand and provide the needs of their patient (17).…”

Section: Discussionmentioning

confidence: 99%

“…Among all of them, dealing with emotional problems, difficulties of giving care at home, and economic and social problems are the main issues (7,10). The need for long-term homecare for such patients are mostly fulfilled either by professionals in healthcare or social care (formal) or by family members, friends, people with no professional background (Informal) (11).…”

Section: Introductionmentioning

confidence: 99%

Living with the patient who has persistence vegetative state: a qualitative study

Dinçer¹,

Torun²

2017

J Turgut Ozal Med Cent

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Aim: The purpose of this research is to discover the experiences of the families with Persistence Vegetative State (PVS) patients have during homecare after being discharged from Palliative Care Center. In this study, it has been tried to bring out the difficulties occurring during homecare and the reasons for these difficulties. Material and Methods:The study is envisioned to be qualitative in regards with phenomenological approach, face to face and semistructured interviews. The study carried out with the 17 family members of patients with PVS voluntarily at their houses. Interviews were analyzed according to qualitative content analysis. Results: The age average of the family members in this study were 48.2±14.3 year, 12(70.6%) of them were woman. 7(41,2%) of the care providers were the spouse of the patient. The families gave homecare at a median value of 466(IQR =326) days. The study results brought out 4 main themes. The main themes were; Severe Burden, Concern/Fear, Limitations/Incompetencies, Hope/ Acceptance/Rejection. Conclusions:The study results indicate that it is very tough for families to have patients with PVS and they have to go through some strains as a result of the circumstances. With this study, it's set forth that in order to reintegrate these families into the society, support the ones with financial, physical and psychosocial problems, there has to be a social, health related and economic interference and policies have to be developed.

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Multiple Victims: The Result of Caring Patients in Vegetative State

Cited by 18 publications

References 31 publications

The care-givers of patients with persistent vegetative state have a terrible life: the result of a qualitative study

The care-givers of patients with persistent vegetative state have a terrible life: the result of a qualitative study

The Resilient Care of Patients with Vegetative State at Home: a Grounded Theory

Living with the patient who has persistence vegetative state: a qualitative study

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