Music’s relevance for adolescents and young adults with cancer: a constructivist research approach

O’Callaghan, Clare; Barry, PW; Thompson, Kate

doi:10.1007/s00520-011-1104-1

Cited by 25 publications

(46 citation statements)

References 31 publications

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“…Using a constructivist grounded theory methodology, O’Callaghan and colleagues [31] found that interactions with music were helpful during and post-treatment for 12 AYAs to facilitate positive emotions and states, as well as transition off treatment.…”

Section: Resultsmentioning

confidence: 99%

Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review

et al. 2016

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Purpose A cancer diagnosis during adolescence or young adulthood (AYA; defined as ages 15–39) generates unique medical and psychosocial needs as developmental milestones are simultaneously impacted. Past research highlights that AYAs’ experiences and psychosocial outcomes are different, and more research and attention is needed. We aimed to identify and synthesize literature regarding psychosocial outcomes, unique needs, and existing psychosocial interventions pertaining to individuals diagnosed with cancer exclusively during AYA, and to highlight areas for future research. Methods A systematic literature search was conducted using MEDLINE (via PubMed), EMBASE, Cochrane, Web of Science, and PsycINFO (via OVID). Grey literature was searched using key term variations and combinations. Overall, 15,301 records were assessed by two independent reviewers, with 38 studies meeting inclusion criteria. Results Data synthesis of the 38 articles was organized by four main themes based on quality of life and survivorship: physical well-being (7 studies), psychological well-being (8 studies), social well-being (9 studies), and survivorship care (14 studies). The paucity of studies for such broad inclusion criteria highlights that this population is often combined or subsumed under other age groups, missing needs unique to these AYAs. Conclusions AYA cancer survivors’ experiences are nuanced, with interacting variables contributing to post-treatment outcomes. AYAs require age-appropriate and flexible care, informational needs and treatment-related education that foster autonomy for long-term survivorship, as well as improved follow-up care and psychological outcomes. Implications for Cancer Survivors By incorporating these findings into practice, the informational and unmet needs of AYAs can be addressed effectively. Education and programming is lacking specific and general subject matter specific to AYAs, incorporating ranging needs at different treatment stages.

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Section: Resultsmentioning

confidence: 99%

Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review

et al. 2016

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“…Twelve of these articles focused on interventions aiming to alleviate procedural distress. 191,194,[198][199][200][201][202][203][204][205][206][207] DOI: 10.3310/hta23220 HEALTH TECHNOLOGY ASSESSMENT 2019 VOL. 23 NO.…”

Section: Study Selectionmentioning

confidence: 99%

“…164,170,172,178,183,187,189,193,200,203,206,208,211,[215][216][217][218][219] Twenty-two out of the 57 studies included only CYP participants. 114,119,162,163,[166][167][168][169]184,186,187,[194][195][196][197]204,207,210,211,213,215,219 One study collected data only from practitioners who delivered the intervention. 205 Four studies collected data from parents only; 185,201,202,206 the remaining 30 studies included a mix of participant types.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…l online support interventions (n = 12) 114,170,177,183,192,210,211,213,215,[217][218][219] l camps (n = 9) 163,[165][166][167]169,173,174,179,185 l music therapy (n = 6). 199,[201][202][203][204][205] Qualitative data analysis methods typically involved thematic analysis (22/57 studies). In 15 studies, the authors described the analysis as based on grounded theory or used constant comparative methods.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…In 15 studies, the authors described the analysis as based on grounded theory or used constant comparative methods. 162,[172][173][174]179,181,183,188,196,199,[203][204][205]207,217 In nine studies, the authors reported that they used some form of qualitative content analysis only. 114,189,190,193,194,200,210,213,218 Few details about populations studied were consistently provided.…”

Section: Study Characteristicsmentioning

confidence: 99%

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Interventions to improve the mental health of children and young people with long-term physical conditions: linked evidence syntheses

Moore

Nunns

Shaw

et al. 2019

Health Technol Assess

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Background Although mental health difficulties can severely complicate the lives of children and young people (CYP) with long-term physical conditions (LTCs), there is a lack of evidence about the effectiveness of interventions to treat them. Objectives To evaluate the clinical effectiveness and cost-effectiveness of interventions aiming to improve the mental health of CYP with LTCs (review 1) and explore the factors that may enhance or limit their delivery (review 2). Data sources For review 1, 13 electronic databases were searched, including MEDLINE, EMBASE, PsycINFO, Cochrane Central Register of Controlled Trials (CENTRAL), Cumulative Index to Nursing and Allied Health Literature (CINAHL) and Science Citation Index. For review 2, MEDLINE, PsycINFO and CINAHL were searched. Supplementary searches, author contact and grey literature searches were also conducted. Review methods The first systematic review sought randomised controlled trials (RCTs) and economic evaluations of interventions to improve elevated symptoms of mental ill health in CYP with LTCs. Effect sizes for each outcome were calculated post intervention (Cohen’s d). When appropriate, random-effects meta-analyses produced pooled effect sizes (d). Review 2 located primary qualitative studies exploring experiences of CYP with LTCs, their families and/or practitioners, regarding interventions aiming to improve the mental health and well-being of CYP with LTCs. Synthesis followed the principles of metaethnography. An overarching synthesis integrated the findings from review 1 and review 2 using a deductive approach. End-user involvement, including topic experts and CYP with LTCs and their parents, was a feature throughout the project. Results Review 1 synthesised 25 RCTs evaluating 11 types of intervention, sampling 12 different LTCs. Tentative evidence from seven studies suggests that cognitive–behavioural therapy interventions could improve the mental health of CYP with certain LTCs. Intervention–LTC dyads were diverse, with few opportunities to meta-analyse. No economic evaluations were located. Review 2 synthesised 57 studies evaluating 21 types of intervention. Most studies were of individuals with cancer, a human immunodeficiency virus (HIV) infection or mixed LTCs. Interventions often aimed to improve broader mental health and well-being, rather than symptoms of mental health disorder. The metaethnography identified five main constructs, described in an explanatory line of argument model of the experience of interventions. Nine overarching synthesis categories emerged from the integrated evidence, raising implications for future research. Limitations Review 1 conclusions were limited by the lack of evidence about intervention effectiveness. No relevant economic evaluations were located. There were no UK studies included in review 1, limiting the applicability of findings. The mental health status of participants in review 2 was usually unknown, limiting comparability with review 1. The different evidence identified by the two systematic reviews challenged the overarching synthesis. Conclusions There is a relatively small amount of comparable evidence for the effectiveness of interventions for the mental health of CYP with LTCs. Qualitative evidence provided insight into the experiences that intervention deliverers and recipients valued. Future research should evaluate potentially effective intervention components in high-quality RCTs integrating process evaluations. End-user involvement enriched the project. Study registration This study is registered as PROSPERO CRD42011001716. Funding The National Institute for Health Research (NIHR) Health Technology Assessment programme and the NIHR Collaboration for Leadership in Applied Health Research and Care South West Peninsula.

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Contemplating art and identity during a research study: Reflections on working with a youth with cancer

Moola

Neville

Campbell

et al. 2021

Pediatric Blood & Cancer

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Music’s relevance for adolescents and young adults with cancer: a constructivist research approach

Abstract: Music can signify and creatively enable AYAs' hope, endurance, identity development, and adjustment through cancer treatment and post-treatment phases. Health professionals are encouraged to support AYAs' music-based self-care and "normalized" activities.

Cited by 25 publications

References 31 publications

Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review

Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review

Interventions to improve the mental health of children and young people with long-term physical conditions: linked evidence syntheses

Contemplating art and identity during a research study: Reflections on working with a youth with cancer

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