Muslim caregivers' experiences in caring for patients receiving peritoneal dialysis

Abstract

Background: Fulfilling the role of a family caregiver has a substantial effect on the lives of those involved. However, existing information on family caregivers of patients receiving peritoneal dialysis is insufficient-especially Muslim caregivers, whose practice is unique.Objectives: The aim of this study was to understand the experiences of Muslim family caregivers looking after patients receiving peritoneal dialysis in an Islamic context.Design: A descriptive qualitative approach was employed.Participants: Thirteen Muslim family caregivers who have cared for patients undergoing peritoneal dialysis for at least 1 month.Approach: Data were collected through face-to-face in-depth interviews and a focus group discussion. Content analysis was used to analyse the data with initial codes grouped into sub-categories, generic categories, and main categories. Findings:The experiences of Muslim family caregivers looking after patients receiving peritoneal dialysis generated two main categories: overwhelmed with suffering and learning to live as a caregiver.Conclusions: Caregiving has a substantial impact on Muslim family caregivers. They need to be cared for holistically. The recognition of Islamic beliefs, doctrine of Allah, and religious practices are clear spiritual anchors for caregiving. The findings provide a deeper understanding of the experiences of Muslim family caregivers looking after patients receiving peritoneal dialysis. These findings could serve as the basis for developing a specific nursing intervention for such caregivers.

Caring burden and coping with haemodialysis: a qualitative study with family caregivers in Sri Lanka

“…Hence, a systematic and legal approach must be initiated, or existing law has to be revised and reinforced to reach a donor without risks of going through kidney scams and reduce related financial burdens. Similarly, facing an economic crisis due to lower income and high care costs contributed to suffering among family caregivers in Thailand 28…”

“…Similarly, facing an economic crisis due to lower income and high care costs contributed to suffering among family caregivers in Thailand. 28 …”

“…Similarly, facing an economic crisis due to lower income and high care costs contributed to suffering among family caregivers in Thailand. 28 The constraints on existing healthcare resources pose a significant challenge in providing care for patients with kidney disease in developing countries. In Nigeria, a study found that there is also poor interest and limited funding to support patients with kidney disease.…”