“My Fibro Family!” A qualitative analysis of facebook fibromyalgia support groups’ discussion content

Lived Experiences of Cognitive Dysfunction in Fibromyalgia: How Patients Discuss Their Experiences and Suggestions for Patient Education

“… 1 Indeed, perceived lack of support and compassion was a common motivator for joining the OPSGs. 26 Second, this study's findings suggest CD may be an overlooked barrier to the benefits of social interaction, which is often encouraged as a method to improve quality of life among patients with chronic pain. 23 For example, OPSG members indicated CD symptoms impacted their ability to communicate, rendering social contact overwhelming and disheartening.…”

“…The data used in this study was comprised of relevant excerpts of data from a larger dataset 26 (see Crump & LaChapelle, 2022 for full methodological details about data collection) as well as novel data collected using identical methodology two years after the first data collection period. Two time points were included to increase the trustworthiness of identified themes and to determine whether discussion themes changed over time as the membership of the group evolved.…”

“…Detailed explication of how this research complied with the five conditions necessary to waive the requirement of informed consent by the Canadian Tri-Council policy is provided in Crump & LaChapelle. 26 The Tri-Council policy also requires research exempt from the requirement of consent to demonstrate potential benefit to participants, the population studied, or society in general. 27 The authors hope the current study may contribute to a better understanding of the lived experience of CD symptoms in the context of FM both for individuals with FM and health providers.…”