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Felding, Simone Anna; Schwennesen, Nete

doi:10.7146/tfss.v15i30.114771

Cited by 3 publications

(1 citation statement)

References 10 publications

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“…Existing research from a Danish welfare context has described this point in time as particularly vulnerable for all involved, partly because it marks a transition in relations of care (see also Felding & Schwennesen, 2019). Some care relations are terminated (for example, between the person diagnosed with dementia and care assistants providing nursing services in the private homes of those diagnosed with dementia); other care relations must be established (for example, between the person diagnosed with dementia and care assistants in a professional nursing home); while other care relations remain, but often undergo a transformation (for example, between life partners and their loved ones diagnosed with dementia).…”

Section: Introductionmentioning

confidence: 99%

Trust in interpersonal care relations between care providers and people diagnosed with dementia: An ethnographic study from a Danish welfare context

Thorsen

Nielsen

2023

Dementia

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This article examines how trust is built and maintained in interpersonal care relations between people diagnosed with dementia and their vocationally trained care assistants in a Danish welfare context. The issue of trust is singled out as being particularly relevant, as people diagnosed with dementia often possess different cognitive abilities than those most commonly mentioned within existing social theory and research as prerequisites for building and maintaining trust in interpersonal care relations. The article is based on ethnographic fieldwork conducted in various locations in Denmark, primarily during the summer and fall of 2021. It argues that in order for care assistants to build trustful relations with people diagnosed with dementia, they need to acquire the ability to set the “tone” or the “mood” of the care interactions, as that makes it possible to step into the world of people diagnosed with dementia in ways that acknowledge fundamental human affectedness as captured in Heidegger’s notion of “being-in-the-world.” Put differently, the social aspects of caregiving should not be separated from the specific nursing tasks that need to be performed. Rather, they should be considered prerequisites for providing those tasks in the first place.

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Section: Introductionmentioning

confidence: 99%

Trust in interpersonal care relations between care providers and people diagnosed with dementia: An ethnographic study from a Danish welfare context

Thorsen

Nielsen

2023

Dementia

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Compassionate deception: An ethnographic study of how and why health professionals and family members lie when caring for people with dementia in Danish nursing homes

Smedegaard Skov,

Jensen,

Rasmussen

et al. 2024

SSM - Qualitative Research in Health

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Humans: An integrative review exploring dehumanisation in advanced dementia

Bøgmose,

Olivares Bøgeskov,

Dening

et al. 2024

Nurs Ethics

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Background: People living with advanced dementia risk being seen as someone without personhood in contemporary societies, an understanding that has been described and challenged for decades in dementia scholarly literature. Such perception can be characterised as forms of existential dehumanisation, which still asserts itself in dementia care practices, adversely affecting the ethical and caring aspects of such care. Aim: To challenge dehumanisation in dementia care, we must first learn to recognise what foster it in caring relations. Thus, the aim of our study is to identify existing perceptions of care recipients living with advanced dementia, which elicit dehumanising attitudes among formal caregivers. Research design: We conducted an integrative review based on Whittemore and Knafl’s updated methodology. This allowed us to identify and analyse 26 articles incorporating both qualitative- and quantitative studies as well as theoretical- and grey literature all describing perceptions of care recipients living with dementia that lead to dehumanisation. Ethical considerations: Studying the darker sides in caring relations was to be beneficial in improving dementia care practices. Findings: Through an analytical process five themes that can sprout dehumanising attitudes in caring relations were identified, which include perceiving people living with advanced dementia as (1) absurd, (2) shadow, (3) perilous, (4) void, or (5) repugnant. We argue that these perceptions can be seen as unintentional and stem from a misled embodied perception, which caregivers should learn to recognise and consequently be able to resist through virtue ethics. Conclusion: Our study indicates that challenging dehumanisation is a practical matter of identifying and reacting in a timely way to ones misled embodied perceptions. We suggest the five themes offer a potential means to warn formal caregivers of impending dehumanising attitudes and help them to review how they ethically are thinking and perceiving the person living with advanced dementia.

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Når omsorgen udliciteres:

Cited by 3 publications

References 10 publications

Trust in interpersonal care relations between care providers and people diagnosed with dementia: An ethnographic study from a Danish welfare context

Trust in interpersonal care relations between care providers and people diagnosed with dementia: An ethnographic study from a Danish welfare context

Compassionate deception: An ethnographic study of how and why health professionals and family members lie when caring for people with dementia in Danish nursing homes

Humans: An integrative review exploring dehumanisation in advanced dementia

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