Narratives of family transition during the first year post‐head injury: perspectives of the non‐injured members

Whiffin, Charlotte Jane; Bailey, Christopher; Ellis‐Hill, Caroline; Jarrett, Nikki; Hutchinson, Peter J.

doi:10.1111/jan.12551

Cited by 14 publications

(17 citation statements)

References 35 publications

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“…This paper reports data from a larger study that investigated the effect of TBI on the uninjured members of a family in the first year following injury. The full findings of this study are reported elsewhere (see Whiffin, 2012) and an exploration of how family members talked about the impact of TBI on themselves and their family was discussed in Whiffin et al (2015). However, the aim of this paper is to describe the narrative structures used by the uninjured members of a family to understand change.…”

Section: Aimmentioning

confidence: 89%

“…Ownsworth and Haslam (2016) have highlighted that, 'It is well recognised that brain injury can lead to significant loss and change in social relationships, and it is only when we understand how central they are to self-definition, that we can start to understand why such loss affects people so deeply' (p26). It has been argued that understanding the family context can help us to understand further how families adjust, cope and adapt post-TBI (Jumisko, Lexell, & Soderberg, 2007;Whiffin, Bailey, Ellis-Hill, Jarrett, & Hutchinson, 2015;Yeates, Henwood, Gracey, & Evans, 2007).…”

Section: Family Context In Tbimentioning

confidence: 99%

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We are not the same people we used to be: An exploration of family biographical narratives and identity change following traumatic brain injury

Whiffin

Ellis‐Hill

Bailey

et al. 2017

Neuropsychological Rehabilitation

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Subjective changes are increasingly recognised as important in recovery and rehabilitation following traumatic brain injury. Accumulation of subjective changes over time has led many to examine the question of "continuity of self" post-injury. Vacillation between feeling the same and different is common and often at odds with the medical narrative preparing families for permanent change. This position of ambiguity was examined in a qualitative narrative study. The aim of this paper is to describe the narrative structures used by uninjured members of a family to understand change. These changes relate primarily, to their perspective of whether and how the injured person had changed, but also secondarily to whether and why they themselves felt they had changed in the first year post-injury. Nine uninjured family members from three families took part in three unstructured interviews during the first twelve months post-injury. In-depth narrative analysis showed family members used biographical attendance; biographical disruption; biographical continuity; and biographical reconstruction to understand change. Drawing on these findings it is argued that concentrating on a narrative of change is too limiting and that engaging in biographical narratives may help humanise care provided to injured individuals and their families. Implications for research and practice are discussed.

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Section: Aimmentioning

confidence: 89%

Section: Family Context In Tbimentioning

confidence: 99%

We are not the same people we used to be: An exploration of family biographical narratives and identity change following traumatic brain injury

Whiffin

Ellis‐Hill

Bailey

et al. 2017

Neuropsychological Rehabilitation

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“…It is essential to understand the experiences and perceptions of patients and carers during the transitional phase to inform improvements to service delivery to meet their needs [10]. Although there is some relevant literature [9,10,[32][33][34][35] studies often conflate mild, moderate and severe TBI [6,17,[35][36][37], use a sample with mixed brain injury diagnoses [11,17], adhere to quantitative measures [16,36,37] or do 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 not focus solely on the transition period [6,15,16,36]. Thus there appears to be a gap in understanding what is important and beneficial to patients with severe TBI, and their and carers, in the context of UK healthcare in this transitional phase, and how best to meet these needs.…”

Section: Current Practicementioning

confidence: 99%

Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study

Abrahamson

Jensen

Springett

et al. 2016

Disability and Rehabilitation

124

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Most patients and carers struggled to identify a cohesive plan that supported their transition to living in the community. Access to services required much persistence on the part of carers and tended to be short-term, and therefore did not meet their long-term needs. We propose the need for a case manager to be involved at an early stage of their rehabilitation and act as a key point for information and access to on-going rehabilitation and other support services. Implications for Rehabilitation Traumatic Brain Injury (TBI) is a major cause of long-term disability. It can affect all areas of daily life and significantly reduce quality of life for both patient and carer. Professionals appear to underestimate the change in abilities and impact on daily life once patients return home. Community services maintain a short-term focus, whereas patients and carers want to look further ahead - this dissonance adds to anxiety. The study's findings on service fragmentation indicate an urgent need for better integration within health services and across health, social care and voluntary sectors. A link person/case manager who oversees the patient journey from admission onwards would help improve integrated care and ensure the patient, and carer, are at the center of service provision.

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“…A narrative case study was designed to explore the personal and family changes reported by noninjured family members at three time points during the first year of a family member's traumatic brain injury (Whiffin 2012). Three families were considered individual cases and each case comprised a number of family members, each of whom completed in-depth interviews at one, three and twelve months post-injury.…”

Section: The Studymentioning

confidence: 99%

Challenges and solutions during analysis in a longitudinal narrative case study

et al. 2014

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Aim: To describe the challenges associated with the analysis phase of a narrative study and offer solutions for those embarking on the process of complex qualitative analysis.Background: Qualitative research requires rigorous analysis. However, novice researchers often struggle to identify appropriately robust analytical procedures that will move them from their transcripts to their final findings. Further adding to this problem is the lack of clear and detailed accounts within the literature that detail the process of narrative analysis and how to address some of the common challenges researchers face. Data sources:A longitudinal narrative case study exploring the personal and family changes reported by non-injured family members during the first year of a family member's traumatic brain injury. Review methods: This is a methodological paperDiscussion: Challenges of analysis included: conceptualising the whole analytical process and demonstrating the relationship between the different analytical layers and the final research findings; interpreting the data in a way that reflected the priorities of a narrative approach and managing large quantities of data. Solutions explored were the use of a mapping technique to map out analytic intentions; aligning analysis and interpretation with the conceptual framework and the use of matrices to store and manage quotes, codes and reflections. Conclusion:It is hoped that the solutions offered in this paper will help novice researchers to manage and work with their data, assisting them to develop the confidence to be more intuitive and creative in their research.

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Narratives of family transition during the first year post‐head injury: perspectives of the non‐injured members

Cited by 14 publications

References 35 publications

We are not the same people we used to be: An exploration of family biographical narratives and identity change following traumatic brain injury

We are not the same people we used to be: An exploration of family biographical narratives and identity change following traumatic brain injury

Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study

Challenges and solutions during analysis in a longitudinal narrative case study

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