National Action Plan to Improve Health Literacy

doi:10.4135/9781483346427.n360

Cited by 17 publications

(1 citation statement)

References 48 publications

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“…The utility of PROMs is inherently tied to a patient's ability to understand and comprehend the questions asked to provide accurate responses describing their experiences. Studies have shown that the average American adult reads at an eighth-grade level, that of a typical 13-14 year old, and that health literacy is even lower [3][4][5][6]. With such widespread poor health literacy, the National Institutes of Health and other health organizations recommend that patient-targeted healthcare information be written at a sixth-grade reading level, that typical of a 11-12 year old, or lower [3,[7][8][9].…”

Section: Introductionmentioning

confidence: 99%

Availability of Readable Online Spanish Rhinosinusitis Outcome Measures

Lee

Farzal

Kimple

et al. 2022

JCM

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Background: Patient-reported outcome measures (PROMs) are useful instruments that give providers insight into patients’ experiences with disease by quantifying the symptoms that matter most to patients. Results of these questionnaires can help guide management in chronic rhinosinusitis. However, these tools are often developed for native English speakers, which disadvantages others, who already have a language barrier to care. The aim of this study is to evaluate accessibility and readability of Spanish PROMs used to evaluate rhinosinusitis. Methods: Three Spanish readability measures, Gilliam, Peña & Mountain; SOL; and Fernandez-Huerta were used to evaluate PROMs utilized for rhinosinusitis. PROMs with sixth-grade readability level or easier were considered to meet health literacy recommendations. Results: Four Spanish PROMs utilized in assessment of rhinosinusitis were identified and evaluated. Cuestionario Español de Calidad de Vida en Rinitis (ESPRINT-15) was the most readable PROM and met readability recommendations in two of three measures. Nasal Obstruction Symptom Evaluation met suggested levels in one measure. The remainder of readability scores were more difficult than recommended. Conclusion: PROMs are powerful clinical tools that help patients communicate their symptoms and self-advocate. For providers to gain accurate and useful information, these measures should be written at appropriate readability levels. Most Spanish PROMs used for assessment of rhinosinusitis were above recommended readability. Development of future PROMs should ensure appropriate readability levels to provide good patient-centered care for our primarily Spanish speaking patients.

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Section: Introductionmentioning

confidence: 99%

Availability of Readable Online Spanish Rhinosinusitis Outcome Measures

Lee

Farzal

Kimple

et al. 2022

JCM

View full text Add to dashboard Cite

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Asian Immigrant Parents’ Role Enactment While Accessing and Using Services for Their Child With Developmental Disabilities in the United States: A Meta-Synthesis Study

et al. 2020

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We conducted a meta-synthesis to explore how Asian immigrant parents in the United States enact their perceived parental role while using health and educational services for their child with developmental disabilities. We identified 11 qualitative studies for analysis, and examined these studies using a constant comparative approach and thematic analysis informed by role theory and acculturation theory. Based on our analysis, five themes related to parents’ role enactment emerged: (a) parents perceive a multifaceted parental role; (b) parents’ individual factors influence their role enactment; (c) system factors influence parents’ role enactment; (d) parents use coping strategies to address role dissatisfaction; and (e) parental role enactment is a continuously evolving process influenced by acculturation, which spirals them toward their ultimate goal of helping their child thrive. Findings can inform practitioners’ and researchers’ understanding of how to create a culturally safe environment to support Asian immigrant parents in realizing their parental role.

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