National Healthcare Decisions Day

Schwartz, Denise B.; Kottkamp, Nathan A.

doi:10.1177/0884533614522652

Cited by 3 publications

(2 citation statements)

References 6 publications

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“…have developed practice and position papers, ethics columns, and a special report dealing with ethical decision making for medically assisted nutrition. 5,6,9,11,[18][19][20] Figure 1 depicts the process RDNs should use to apply the Academy/CDR Code of Ethics to ethical decisions for withholding/withdrawing medically assisted nutrition and hydration.…”

Section: Person-centered Family-oriented Carementioning

confidence: 99%

Ethical Decisions for Withholding/Withdrawing Medically Assisted Nutrition and Hydration

Schwartz¹

2015

Journal of the Academy of Nutrition and Dietetics

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Section: Person-centered Family-oriented Carementioning

confidence: 99%

Ethical Decisions for Withholding/Withdrawing Medically Assisted Nutrition and Hydration

Schwartz¹

2015

Journal of the Academy of Nutrition and Dietetics

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“…Occurring annually on April 16 in the United States, NHDD exists to inspire, educate, and empower the public by providing information regarding the importance of ACP [ 18 ]. First founded in 2008, the NHDD was created with the goal of providing clear, concise, and consistent information related to health care decision-making [ 36 ]. Since then, the initiative’s goal has been to target the general public, health care providers, and facilities to provide free, simple, and uniform tools to guide this process [ 37 ].…”

Section: Introductionmentioning

confidence: 99%

Exploring Web-Based Twitter Conversations Surrounding National Healthcare Decisions Day and Advance Care Planning From a Sociocultural Perspective: Computational Mixed Methods Analysis

Lattimer¹,

Tenzek²,

Ophir³

et al. 2022

JMIR Form Res

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Background Within the cultures and societies of the United States, topics related to death and dying continue to be taboo, and as a result, opportunities for presence and engagement during the end of life, which could lead to a good death, are avoided. Several efforts have been made to help people engage in advance care planning (ACP) conversations, including completing advance care directives so that they may express their goals of care if they become too sick to communicate their wishes. A major effort in the United States toward encouraging such challenging discussions is the annual celebration of the National Healthcare Decisions Day. Objective This study aimed to explore ACP from a sociocultural perspective by using Twitter as a communication tool. Methods All publicly available tweets published between August 1, 2020, and July 30, 2021 (N=9713) were collected and analyzed using the computational mixed methods Analysis of Topic Model Network approach. Results The results revealed that conversations driven primarily by laypersons (7107/7410, 95.91% of tweets originated from unverified accounts) surrounded the following three major themes: importance and promotion, surrounding language, and systemic issues. Conclusions On the basis of the results, we argue that there is a need for awareness of the barriers that people may face when engaging in ACP conversations, including systemic barriers, literacy levels, misinformation, policies (including Medicare reimbursements), and trust among health care professionals, in the United States. This is incredibly important for clinicians and scholars worldwide to be aware of as we strive to re-envision ACP, so that people are more comfortable engaging in ACP conversations. In terms of the content of tweets, we argue that there is a chasm between the biomedical and biopsychosocial elements of ACP, including patient narratives. If used properly, Twitter conversations and National Health Care Decision Day hashtags could be harnessed to serve as a connecting point among organizations, physicians, patients, and family members to lay the groundwork for the trajectory toward a good death.

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Exploring Web-Based Twitter Conversations Surrounding National Healthcare Decisions Day and Advance Care Planning From a Sociocultural Perspective: Computational Mixed Methods Analysis (Preprint)

Lattimer¹,

Tenzek²,

Ophir³

et al. 2021

Preprint

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BACKGROUND Within most Western societies, topics related to death and dying continue to be taboo, and opportunities for presence and engagement during end-of-life that could lead to a good death are avoided as a result. Several efforts have been made to help people engage in advance care planning (ACP) conversations, including completing advance care directives, so they may express their goals-of-care if they become too sick to communicate their wishes. One major effort in the United States towards encouraging such challenging discussions is the annual celebration of National Healthcare Decisions Day (NHDD). OBJECTIVE The present study explored ACP from a socio-cultural perspective, using Twitter as a communication tool. METHODS All publicly available tweets published between August 1st 2020 and July 30th 2021 (N = 9,713) were collected and analyzed using the computational, mixed-method Analysis of Topic Model Network (ANTMN) approach. RESULTS Results revealed conversations, driven primarily by laypersons (96% of tweets originated from unverified accounts) surrounded three major themes: importance and promotion, surrounding language, and finally, systemic issues. CONCLUSIONS Based on the results, we argue there is a need for awareness of what barriers people may face in engaging in ACP conversations, including systemic barriers, literacy levels, misinformation, policies, including Medicare reimbursements, and trust among health care professionals. This is incredibly important for clinicians and scholars to be aware of as we strive to re-envision ACP so that people are more comfortable engaging in ACP conversations. In terms of content of Tweets, we argue there is a chasm between the biomedical and biopsychosocial elements of ACP, including patient narratives. If used properly, Twitter conversations and NHDD hashtags could be harnessed to serve as a connecting point between organizations, physicians, patients and family members, to lay the groundwork for the trajectory towards a good death.

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National Healthcare Decisions Day

Cited by 3 publications

References 6 publications

Ethical Decisions for Withholding/Withdrawing Medically Assisted Nutrition and Hydration

Ethical Decisions for Withholding/Withdrawing Medically Assisted Nutrition and Hydration

Exploring Web-Based Twitter Conversations Surrounding National Healthcare Decisions Day and Advance Care Planning From a Sociocultural Perspective: Computational Mixed Methods Analysis

Exploring Web-Based Twitter Conversations Surrounding National Healthcare Decisions Day and Advance Care Planning From a Sociocultural Perspective: Computational Mixed Methods Analysis (Preprint)

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