Navigating through incontinence: A qualitative systematic review and meta-aggregation of the experiences of family caregivers

Talley, Kristine Mc; Davis, Nicole; Peden‐McAlpine, Cynthia; Martin, Christie; Weinfurter, Elizabeth; Wyman, Jean F.

doi:10.1016/j.ijnurstu.2021.104062

Cited by 20 publications

(12 citation statements)

References 56 publications

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“…Our findings are consistent with research documenting experiences of incontinence in high income settings [25][26][27]. However, challenges related to managing incontinence appear to be 20,28].…”

Section: Discussion and Recommendationssupporting

confidence: 88%

“…However, challenges related to managing incontinence appear to be 20,28]. For example, in many high-income county settings there are professional care services, assistive products and devices, social protection schemes, health systems and formal or community-based support programmes which can help mitigate the costs and physical and mental toll of caring for a person with severe incontinence [25,[29][30][31]. While access and use of these services may still vary in high income settings, none of these support mechanisms were available to PWI or caregivers in our study.…”

Section: Discussion and Recommendationsmentioning

confidence: 99%

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Managing incontinence in low-and middle income-countries: A qualitative case study from Pakistan

Ansari¹,

White

2022

PLoS ONE

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Background Incontinence is a complex health and social issue, which involves the involuntary loss of urine or faeces or both. Individuals with disabilities are particularly vulnerable to incontinence. The management of incontinence has largely been overlooked in low and middle-income settings (LMICs). This study aimed to explore the incontinence management strategies employed by disabled people with severe incontinence and their caregivers in Sindh Province, Pakistan. Methods Incontinence management was explored through in-depth interviews with people with incontinence (PWI) and their caregivers, photovoice, and a market survey and product attribute assessment. Data was analysed thematically through inductive coding and evaluated against existing disability and caregiver frameworks. Results Incontinence management affected all aspects of daily life for PWI and caregivers. Effective management of incontinence was prioritised because caregivers viewed it to be part of their familial duty and a requirement for the household to remain pure in the eyes of God. Coping strategies included strict adherence to routines, reducing food and drink intake, creative uses of locally available natural resources, and a heavy reliance on soap and water for maintaining hygiene. Products such as adult diapers were largely unavailable, costly and were not deemed suitable for regular use. There were no social or medical interventions in the region to support incontinence management. The main impacts of incontinence on the household were social isolation, stigma, role shifts within the family, the development of physical ailments among caregivers, and decreased income. Conclusion The complex health, psychological, social, economic, and cultural impacts of incontinence are exacerbated in LMICs due a lack of recognition of the condition, the absence of social or medical interventions and limited access to basic WASH infrastructure, and assistive devices or products. Appropriate solutions need to be developed in partnership with PWI and caregivers and need to be contextualised, affordable and sustainable.

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Section: Discussion and Recommendationssupporting

confidence: 88%

Section: Discussion and Recommendationsmentioning

confidence: 99%

Managing incontinence in low-and middle income-countries: A qualitative case study from Pakistan

Ansari¹,

White

2022

PLoS ONE

View full text Add to dashboard Cite

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“…A study was included if the item of it achieved a minimum of 60% “yes” to guarantee the study showed acceptable quality. Studies were considered to possess acceptable quality if 60% of items were answered “yes,” to possess good quality if 70–90% of items were answered “yes,” and to maintain high quality if 100% of items were answered “yes” (Talley et al, 2021 ).…”

Section: Methodsmentioning

confidence: 99%

Navigating through motherhood in pregnancy and postpartum periods during the COVID‐19 pandemic: A systematic review and qualitative meta‐synthesis

Zheng

Zhang

et al. 2022

J Nursing Management

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Aim The aim of this work is to critically appraise and synthesize the qualitative studies on the experiences, perspectives, and consequences of pregnant women experiencing motherhood during the COVID‐19 pandemic. Background The COVID‐19 pandemic has posed a threat to the health of pregnant women. Such a pandemic disrupted their routine care, as well as normal daily life. However, little is known about their coping strategies to the changes brought by COVID‐19. Evaluation A qualitative systematic review was conducted according to the Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ) checklist. A meta‐aggregative approach rooted in pragmatism and Husserlian transcendental phenomenology was used to synthesize the findings. Dependability and credibility of both study findings and synthesized findings were appraised by Joanna Briggs Institute (JBI) ConQual process. Key issues Key issues include (a) pregnant women experienced changes in routine care, (b) pregnant women used a range of strategies to cope with the consequence of the pandemic, (c) pregnant women struggled to embrace motherhood, and (d) pregnant women received different levels of social support. Conclusion Facing challenges caused by the pandemic, pregnant women used a variety of strategies to cope with and adapt to the changes, but sometimes the adaption is limited. Emotional, instrumental, and informational support should be provided to them in an accessible way. Implications for Nursing Management As an essential part of policymakers, nursing managers should consider the balance between restriction and the accessibility of maternity care. It is also crucial for them to consider how to provide necessary support in an accessible way.

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“…A study was included if the item of it achieved a minimum of 60% ‘yes’ to guarantee the study showed acceptable quality. Studies were considered to possess acceptable quality if 60% of items were answered: ‘yes’, to possess good quality if 70%–90% of items were answered ‘yes’, and to have high quality if 100% of items were answered ‘yes’ (Talley et al, 2021 ).…”

Section: Methodsmentioning

confidence: 99%

“…Then, the plausibility of these findings was rated by two researchers of our team independently. The finding was rated as ‘unequivocal’ if the congruence of the finding and the illustration accompanied was beyond a reasonable doubt, as ‘credible’ if lacking a clear association between them and as ‘unsupported’ if the findings were not supported by the data (Talley et al, 2021 ).…”

Section: Methodsmentioning

confidence: 99%

Implications for long COVID: A systematic review and meta‐aggregation of experience of patients diagnosed with COVID‐19

Zheng

Qian

et al. 2022

Journal of Clinical Nursing

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Aims and Objectives This review aims to synthesize the available evidence of what patients experience when infected with COVID‐19, both in hospital and post‐discharge settings. Design This review was conducted using the Joanna Briggs Institute (JBI) methodology for qualitative systematic reviews and evidence synthesis. Reporting of results was presented according to the Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ) checklist. Background Coronavirus disease 2019 (COVID‐19) continues to be a public health crisis worldwide. Many patients diagnosed with COVID‐19 have varied levels of persisting mental disorders. Previous studies have reported the degree, prevalence and outcome of psychological problems. Minimal research explored the experience of patients with long COVID. The real‐life experience of patients with COVID‐19 from diagnosis to post‐discharge can deepen the understanding of nurses, physicians and policymakers. Methods All studies describing the experience of patients were included. Two authors independently appraised the methodological quality of the included studies using the JBI Critical Appraisal Checklist for Qualitative Research 2020. Results This systematic review aggregated patients’ experience of being diagnosed with COVID‐19 in both hospitalized and post‐discharge settings. Finally, 17 studies met inclusion criteria and quality appraisal guidelines. The selected studies in the meta‐synthesis resulted in 12 categories, and further were concluded as five synthesized findings: physical symptoms caused by the virus, positive and negative emotional responses to the virus, positive coping strategies as facilitators of epidemic prevention and control, negative coping strategies as obstacles of epidemic prevention and control, and unmet needs for medical resource. Conclusions The psychological burden of patients diagnosed with COVID‐19 is heavy and persistent. Social support is essential in the control and prevention of the epidemic. Nurses and other staff should pay more attention to the mental health of the infected patients both in and after hospitalization. Relevance to clinical practice Nurses should care about the persistent mental trauma of COVID‐19 survivors and provide appropriate psychological interventions to mitigate the negative psychological consequences of them. Besides, nurses, as healthcare professionals who may have the most touch with patients, should evaluate the level of social support and deploy it for them. It is also needed for nurses to listen to patient's needs and treat them with carefulness and adequate patience in order to decrease the unmet needs of patients.

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Navigating through incontinence: A qualitative systematic review and meta-aggregation of the experiences of family caregivers

Cited by 20 publications

References 56 publications

Managing incontinence in low-and middle income-countries: A qualitative case study from Pakistan

Managing incontinence in low-and middle income-countries: A qualitative case study from Pakistan

Navigating through motherhood in pregnancy and postpartum periods during the COVID‐19 pandemic: A systematic review and qualitative meta‐synthesis

Implications for long COVID: A systematic review and meta‐aggregation of experience of patients diagnosed with COVID‐19

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