Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice

Kerpershoek, Liselot; Vugt, Marjolein de; Wolfs, Claire; Woods, Bob; Jelley, Hannah; Orrell, Martin; Stephan, Astrid; Bieber, Anja; Meyer, Gabriele; Selbæk, Geir; Handels, Ron; Wimo, Anders; Hopper, Louise; Irving, Kate; Marques, Maria J.; Gonçalves-Pereira, Manuel; Portolani, Elisa; Zanetti, Orazio; Verhey, Frans R.J.

doi:10.1080/13607863.2017.1390732

Cited by 71 publications

(91 citation statements)

References 27 publications

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“…Among this group, almost two-thirds reported many unmet needs (64.7%) [23]. Another study found that informal caregivers reported almost twice as many needs as the patients they care for [24]. Comprehensive identification of needs enables problem identification and adequate intervention that can eliminate or reduce the need.…”

Section: Discussionmentioning

confidence: 99%

Needs, Aggravation, And Degree Of Burnout In Informal Care Providers Of Patients With Chronic Cvd

Szlenk-Czyczerska

Guzik²,

Bielska

et al. 2020

Preprint

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Background. A growing number of patients with chronic cardiovascular disease (CVD) creates a growing demand for homecare. Personal and professional limitations, health issues, and lack of systemic support of informal care providers are major causes of insufficient care models for chronically ill patients in home environments. This study aimed to identify the sociodemographic variables that are associated with the needs and increasing occupational burnout observed among home care providers. Methods. This study reports on 161 informal home care providers of patients with CVDs. The research was conducted in the homes of patients, using the Camberwell Assessment of Need Short Appraisal Schedule (CANSAS), the Maslach Burnout Inventory (MBI), and a structured interview questionnaire developed by the authors. Spearman’s rank correlation coefficient test and logistic regression were used for analyses. Results. The majority of the participants were female (70.2%; n=113). We found that younger care providers were less likely to report unmet needs ( p = 0.011), and less likely to report burnout as measured by the MBI Emotional Exhaustion ( p = 0.010) and Depersonalization ( p = 0.009) subscales. Care providers with primary education were more likely to report burnout on the MBI Depersonalization subscale ( p = 0.028). In addition, care providers who worked more often reported higher levels of met needs ( p = 0.022), and burnout as measured on the MBI Depersonalization ( p = 0.005) and Emotional Exhaustion ( p = 0.018) subscales. Subjects residing in urban areas were more likely to report unmet needs ( p = 0.007), and were also more likely to report burnout as measured on the MBI Emotional Exhaustion ( p = 0.006) subscale. Conclusion. Older care providers who are unemployed and reside in cities and unemployed should be targeted with directed programmes to determine the category of unmet needs, and for personalized support. Care providers with these demographic characteristics should be targeted for occupational burnout prevention programmes. Keywords: informal caretaker, met and unmet needs, growing burnout.

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Section: Discussionmentioning

confidence: 99%

Needs, Aggravation, And Degree Of Burnout In Informal Care Providers Of Patients With Chronic Cvd

Szlenk-Czyczerska

Guzik²,

Bielska

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…Among this group, almost two-thirds reported many unmet needs (64.7%) [23]. Another study found that informal caregivers reported almost twice as many needs as the patients they care for [24]. Comprehensive identi cation of needs enables problem identi cation and adequate intervention that can eliminate or reduce the need.…”

Section: Discussionmentioning

confidence: 99%

Needs, aggravation, and degree of burnout in informal care providers of patients with chronic CVD

Szlenk-Czyczerska

Guzik²,

Bielska

et al. 2020

Preprint

View full text Add to dashboard Cite

Background. The growing number of patients with chronic cardiovascular disease (CVD) has created an increased demand for homecare. Therefore, it is necessary to analyze the burden of homecare on caregivers, and gain insight into their biopsychosocial situations. By identifying groups of caregivers that experience significant levels of stress and burnout, guardian education (i.e. specialized and supportive training) and practical support can be specifically directed towards these groups. This study aimed to answer two main questions with respect to home carers for people with CVD: 1) Are the needs of home carers being met (and at what level), and what is the severity of burnout of home carers? and 2) What sociodemographic variables of home carers are related to unmet needs and severity of burnout? Methods. This study reports on 161 informal home care providers of patients with CVDs. The research was conducted in the homes of patients, using the Camberwell Assessment of Need Short Appraisal Schedule (CANSAS), the Maslach Burnout Inventory (MBI), and a structured interview questionnaire developed by the authors. Spearman’s rank correlation coefficient test and logistic regression were used for analyses. Results. The majority of the participants were female (70.2%; n = 113). We found that younger care providers were less likely to report unmet needs (p = 0.011), and less likely to report burnout as measured by the MBI Emotional Exhaustion (p = 0.010) and Depersonalization (p = 0.009) subscales. Care providers with primary education were more likely to report burnout on the MBI Depersonalization subscale (p = 0.028). In addition, care providers who worked more often reported higher levels of met needs (p = 0.022), and burnout as measured on the MBI Depersonalization (p = 0.005) and Emotional Exhaustion (p = 0.018) subscales. Subjects residing in urban areas were more likely to report unmet needs (p = 0.007), and were also more likely to report burnout as measured on the MBI Emotional Exhaustion (p = 0.006) subscale. Conclusion. Older care providers who are unemployed and reside in cities and unemployed should be targeted with directed programmes to determine the category of unmet needs, and for personalized support. Care providers with these demographic characteristics should be targeted for occupational burnout prevention programmes.

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“…In fact, according to Europe-wide data, many citizens express a strong preference for informal care (in terms of the share of respondents stating that elderly parents are best cared for by their children, Eurobarometer survey, 2010). In addition, informal care is associated with a better quality of life, 16,17 may substantially reduce healthcare system costs through lower rates of hospital admissions 18,19 and safeguards households from the financial disaster that may arise when formal services are contracted. 20 Although cultural norms in favour of informal arrangements prevail in many countries, the increasing participation of women in the labour market, together with the lack of flexible working arrangements, among other circumstances, may generate considerable obstacles to the provision of LTC within the family.…”

Section: Long-term Care In Japan and Spain And Recent Cost Containmenmentioning

confidence: 99%

The Challenge of Sustaining Long-term Care in Aging Societies: Lessons From Japan and Spain Comment on "Financing Long-term Care: Lessons From Japan"

Rubio

Jiménez-Rubio

2020

Int J Health Policy Manag

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This article compares the provision of long-term care (LTC) in Japan and Spain, two countries with similar demographic structures but which address the provision of LTCs in very different ways. Both countries provide universal LTC. However, Japan has developed a generous benefit package of formal services for dependents to alleviate the care burden on the family, but provides no cash benefits. In Spain, on the other hand, cash allowances are the norm rather than the exception in the practical implementation of LTC services. After discussing the necessary delineation of LTC in response to future sociodemographic challenges, we discuss LTC system characteristics and the recent cost containment reforms implemented in Japan and Spain. Finally, we consider the lessons that may be drawn from each country’s experience and the reforms that must be undertaken in order ensure the sustainability of LTC provision in other countries with incipient or more developed LTC systems. In addition, since Japan and Spain are both faced with challenging demographic projections, it is important for each country to learn from the other’s initiatives and reforms.

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Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice

Cited by 71 publications

References 27 publications

Needs, Aggravation, And Degree Of Burnout In Informal Care Providers Of Patients With Chronic Cvd

Needs, Aggravation, And Degree Of Burnout In Informal Care Providers Of Patients With Chronic Cvd

Needs, aggravation, and degree of burnout in informal care providers of patients with chronic CVD

The Challenge of Sustaining Long-term Care in Aging Societies: Lessons From Japan and Spain Comment on "Financing Long-term Care: Lessons From Japan"

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