2019
DOI: 10.1016/j.clnu.2018.06.964
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Needs-based quality of life in adults dependent on home parenteral nutrition

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Cited by 42 publications
(57 citation statements)
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References 25 publications
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“…Two patients who reflected on stopping did not seriously consider it as an option at that point. Most immediately dismissed the idea, which is consistent with other studies, which have demonstrated that patients with advanced cancer do not find HPN more burdensome than those with benign disease [31].…”
Section: Discussionsupporting
confidence: 68%
“…Two patients who reflected on stopping did not seriously consider it as an option at that point. Most immediately dismissed the idea, which is consistent with other studies, which have demonstrated that patients with advanced cancer do not find HPN more burdensome than those with benign disease [31].…”
Section: Discussionsupporting
confidence: 68%
“…Two studies were conducted in the UK [12,16], two in Italy [18,19], one in Switzerland [15], two in the Netherlands [20,22], one in Germany [23], one in Australia [21], one in Poland and Israel [24], one in Denmark [25] and one in Europe and North American [17].…”
Section: Settingmentioning
confidence: 99%
“…Nine studies recorded a response rate ranging from 51 to 100% [12,15,17,18,20e22,24,25] Tables 1 and 2 show further details of study and patient characteristics. Gender was not reported in two studies for 72 patients [12,17]. Only one study included carers reporting only the caregiver strain index, which is not a QoL measure so was therefore excluded from this review [22].…”
Section: Study Characteristics: Populationmentioning
confidence: 99%
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“…Negative effects of PN have been demonstrated on employment, sexual activity, psychological health and freedom to go on holiday 1,3,4 . More recently, the Parenteral Nutrition Impact Questionnaire (PNIQ), brought together through patient related outcome measures (PROMs) 5 , has demonstrated similar QoL between patients with IF, cancer, or IBD and better QoL for patients with dysmotility on PN compared to patients on PN due to other conditions 6 . It is important to recognise that QoL does not simply reflect the impact of PN, but also the aetiology of intestinal failure 7 .…”
Section: Introductionmentioning
confidence: 99%