Needs-focused interventions for family caregivers of older adults with cancer: a descriptive interpretive study

Marcotte, Jade; Tremblay, Dominique; Turcotte, Annie; Michaud, Cécile

doi:10.1007/s00520-018-4573-7

Cited by 10 publications

(13 citation statements)

References 34 publications

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“…Five studies were conducted in the USA [ 24 – 26 , 28 , 29 ], two in Israel [ 30 , 31 ], two in Australia [ 32 , 33 ], two in China [ 34 , 35 ], and the rest in various individual countries. Nine studies were qualitative [ 23 – 25 , 29 , 32 , 34 , 36 – 38 ], five studies were cross-sectional [ 26 , 31 , 33 , 35 , 39 ], and three were mixed-methods [ 28 , 30 , 40 ]. All included studies were published between 1994 [ 30 ] and 2021 [ 24 , 40 ].…”

Section: Resultsmentioning

confidence: 99%

“…The mean age of caregivers ranged between 65 and 72 years (see Online Resource Supplemental Table S3 ). Twelve studies included a majority of female caregivers [ 23 – 26 , 28 , 29 , 32 , 34 , 38 – 40 ], and the rest were majority male caregivers [ 30 , 31 , 35 – 37 ]. Six studies included a majority of their sample to be predominantly White [ 23 , 25 , 26 , 28 , 29 , 32 ], one study had a minority White sample [ 37 ], and the remaining studies did not disclose ethnicity.…”

Section: Resultsmentioning

confidence: 99%

“…Cancer type of the patient varied considerably across studies: four studies included participants with prostate cancer [ 23 , 25 , 28 , 39 ], the rest of the studies were heterogeneous and included multiple cancer types [ 26 , 29 – 37 ], and two did not describe cancer type [ 38 , 40 ]. Modalities used for treatment were heterogeneous across all studies.…”

Section: Resultsmentioning

confidence: 99%

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Care provided by older adult caregivers to a spouse in active cancer treatment: a scoping review

Donison

Toledano

Sigal

et al. 2022

Support Care Cancer

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Purpose Due to population aging, the number of older adults with cancer will double in the next 20 years. There is a gap in research about older adults who are the caregiver of a spouse with cancer. Therefore, this review seeks to answer the overarching research question: What is known about the association of providing care on Health-Related Quality of Life (HRQOL), psychological distress, burden, and positive aspects of caregiving for an older adult caregiver to a spouse with cancer? Methods This scoping review was guided by the framework of Arksey and O’Malley and refined by Levac et al. Comprehensive search strategies were conducted in Medline, Excerpta Medica Database (EMBASE), PsycINFO, and Cumulative Index to Nursing and Allied Health Literature (CINAHL) from inception until April 15, 2021. Two independent reviewers screened abstracts, full text, and completed data abstraction. A gray literature search and two stakeholder consultations were conducted. Results A total of 8132 abstracts were screened, and 17 articles were included. All studies outlined caregivers provided preventive, instrumental, and protective care to a spouse in active cancer treatment. However, the time spent on caregiving was rarely examined ( n = 4). Providing care had a negative association on HRQOL, perceived burden, and psychological distress outcomes. Five studies examined positive experiences of caregivers. Conclusion The scoping review findings highlight the informal care provided by older adult caregivers to a spouse with cancer and how the care provided is associated with HRQOL, burden, psychological distress, and the positive aspects of caregiving. Supplementary Information The online version contains supplementary material available at 10.1007/s00520-022-07176-2.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Care provided by older adult caregivers to a spouse in active cancer treatment: a scoping review

Donison

Toledano

Sigal

et al. 2022

Support Care Cancer

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“…Moreover, caregivers’ influence on patients’ outcomes has been gradually explored (Kootker et al, 2019; McCarthy, Bakas, Schellinger, Stapleton, & Kissela, 2019). Lastly, inventions for caregivers or patient–caregiver dyads have been attempted in recent years (Marcotte, Tremblay, Turcotte, & Michaud, 2019; Mosher et al., 2018).…”

Section: Discussionmentioning

confidence: 99%

Research trends and hotspots in caregiver studies: A bibliometric and scientometric analysis of nursing journals

Dong

Wei

Wang

et al. 2020

Journal of Advanced Nursing

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Aims: To explore the intellectual landscape of care-giving studies and identify research trends and hotspots in this field. Design: A bibliometric and scientometric analysis of care-giving literature was undertaken from January-February 2020. Methods: CiteSpace was used to analyse research published between 1900-2019. A references-based co-citation analysis was used to identify the intellectual landscape of care-giving research. A keywords-based co-occurrence analysis with citation bursts was used to explore research hotspots and frontiers. Lastly, a co-authorship network analysis was used to identify cooperation among authors, countries, and institutions. Results: There has been an increasing trend in the number of publications on caregiving research with light fluctuations. Relevant literature mainly focused on the fields of oncology and psychiatry. The keywords-based analysis indicated that the main research targets had previously been informal caregivers of patients with stroke, Alzheimer's disease, and schizophrenia. In recent years, focus has shifted onto informal caregivers of patients with cancer, heart failure, and those at end-of-life. Conclusion: This bibliometric and scientometric analysis helps us understand the current state of caregiver research and its recent developments. Impact: • Caregivers' mental health and care experience have become research hotspots. Where and on whom will the research have an impact?: • This research allows the development of future research on care-giving. • Future researchers should explore effective interventions for the health of patient-caregiver dyads.

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“…However, research has shown that most caregivers are not wellprepared to fulfill those tasks. Several studies stressed that more information and support would be necessary to support caregivers when they take on responsibility in a patients' treatment and care [2][3][4][5]. Kent et al (2016) stated that one step to meet those needs might be to enable caregivers to access the patients' health-related information via electronic health records [2].…”

Section: Introductionmentioning

confidence: 99%

Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany

Weis

Pohlmann

Poß-Doering

et al. 2020

BMC Med Inform Decis Mak

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Background: Particularly in the context of severe diseases like cancer, many patients wish to include caregivers in the planning of treatment and care. Many caregivers like to be involved but feel insufficiently enabled. This study aimed at providing insight into patients' and caregivers' perspectives on caregivers' roles in managing the patient portal of an electronic personal health record (PHR). Methods: A descriptive qualitative study was conducted comprising two study phases: (1) Usability tests and interviews with patients with cancer and caregivers (2) additional patient interviews after a 3-month-pilot-testing of the PHR. For both study parts, a convenience sample was selected, focusing on current state of health and therapy process and basic willingness to participate and ending up with a mixed sample as well as saturation of data. All interviews were audio-recorded, pseudonymized, transcribed verbatim and qualitatively analyzed. Results: Two main categories emerged from qualitative data: 'Caregivers' role' and 'Graduation of access rights'consisting of four subcategories each. The interviewed patients (n = 22) and caregivers (n = 9) felt that the involvement of caregivers is central to foster the acceptance of a PHR for cancer patients. However, their role varied from providing technical support to representing patients, e.g. if the patient's state of health made this necessary. Heterogeneous opinions emerged regarding the question whether caregivers should receive full or graduated access on a patient's PHR. Conclusions: In order to support the patient and to participate in the care process, caregivers need up-to-date information on the patient's health and treatment. Nevertheless, some patients do not want to share all medical data with caregivers, which might strain the patient-caregiver relationship. This needs to be considered in development and implementation of personal health records. Generally, in the debate on patient portals of a personal health record, paying attention to the role of caregivers is essential. By appreciating the important relationship between patients and caregivers right from the beginning, implementation, of a PHR would be

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Needs-focused interventions for family caregivers of older adults with cancer: a descriptive interpretive study

Cited by 10 publications

References 34 publications

Care provided by older adult caregivers to a spouse in active cancer treatment: a scoping review

Care provided by older adult caregivers to a spouse in active cancer treatment: a scoping review

Research trends and hotspots in caregiver studies: A bibliometric and scientometric analysis of nursing journals

Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany

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