Needs of adolescents and young adults after cancer treatment: a systematic review

Galán, Santiago; Vega, Rocío de la; Miró, Jordi

doi:10.1111/ecc.12558

Cited by 61 publications

(55 citation statements)

References 39 publications

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“…Counseling and psychological support are among the most common needs expressed by these survivors, 33 who often report symptoms of posttraumatic stress, anxiety and depression, and fears of cancer recurrence. More than 40% of survivors had at least 1 visit, and 90% of encounters were with family physicians and psychiatrists.…”

Section: Discussionmentioning

confidence: 99%

“…Studies have demonstrated that adolescents are vulnerable to psychological challenges after a cancer diagnosis. Counseling and psychological support are among the most common needs expressed by these survivors, 33 who often report symptoms of posttraumatic stress, anxiety and depression, and fears of cancer recurrence. 34 Many adolescents who require mental health services after cancer do not receive them, 35,36 suggesting that the documented rate of visits underestimates their true burden of psychological morbidity.…”

Section: Discussionmentioning

confidence: 99%

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Adverse mental health outcomes in a population‐based cohort of survivors of childhood cancer

Nathan

Nachman

Sutradhar

et al. 2018

Cancer

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Adverse mental health outcomes in a population‐based cohort of survivors of childhood cancer

Nathan

Nachman

Sutradhar

et al. 2018

Cancer

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“…Previous systematic reviews have focused on the experiences of AYA survivors or caregivers with mixed cancer diagnoses. 8,9 Other reviews have concentrated on the experiences of children, 10,11 adults, 12 or caregivers of adult brain tumour survivors. 13 To date, no systematic review has collated evidence on the experiences of AYA childhood brain tumour survivors and/or their caregivers.…”

Section: Introductionmentioning

confidence: 99%

Long‐term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review

et al. 2019

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Objective Long‐term issues following diagnosis and treatment of a childhood brain tumour often become apparent as the survivor enters adolescence and young adulthood. Their caregivers may additionally face long‐term impacts on their emotional and psychological functioning. This review synthesised evidence on the issues and supportive care needs of adolescent and young adult (AYA) survivors of a brain tumour diagnosed in childhood and their caregivers. Methods Electronic databases were searched up until September 2017. All studies reporting on issues or needs of childhood brain tumour survivors (aged 14‐39) and their caregivers were included. Narrative synthesis methods were used to summarise, integrate, and interpret findings. Results Fifty‐six articles (49 studies) met the inclusion criteria. Social issues (ie, isolation and impaired daily functioning) were most commonly reported by survivors, followed by cognitive (ie, impaired memory and attention) and physical issues (ie, endocrine dysfunctions and fatigue). Survivors experienced poorer social functioning and sexual functioning and were less likely to be employed or have children, when compared with other AYA cancer survivors. Caregivers experienced reduced support as the survivor moved into young adulthood. Caregivers reported uncertainty, increased responsibilities, and problems maintaining their own self–well‐being and family relationships. Few studies reported on supportive care needs. Survivors expressed a need for better educational support and age‐specific psychosocial services. Conclusions Surviving a childhood brain tumour can be particularly challenging for AYA survivors and their caregivers. Robust structured research is needed to identify specific support needs of both survivors and their caregivers and how these can be optimally addressed.

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“…Our analysis also revealed, as expected, a significant and positive association between fatigue and pain interference in daily activities. Fatigue is known to be a common problem in both cancer patients (Bower, 2019;Kolak et al, 2017) and cancer survivors (Galán, De la Vega, & Miró, 2018;Galán et al, 2017), and the ob- Similarly, pain catastrophising was found to contribute to the explanation of pain interference with daily activities. This is consistent with the results of previous studies in other patient populations.…”

Section: Discussionmentioning

confidence: 99%

The role of physical, cognitive and social factors in pain interference with activities of daily living among individuals with chronic cancer pain

2019

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Objectives The aim of this study was to better understand the role that physical, cognitive and social factors play in pain interference with activities of daily living among individuals with cancer and chronic pain. Method In this cross‐sectional study, interviews with 156 patients with chronic cancer pain were conducted across five tertiary level hospitals in the province of Tarragona (Spain). Participants were interviewed individually and provided information about the presence and characteristics of pain, fatigue, catastrophic thinking, social support and the impact of pain on their daily activities. Results Pain intensity (β = 0.23, p = .003), fatigue (β = 0.26, p < .001) and pain catastrophising (β = 0.39, p < .001) were significantly and positively associated with pain interference in daily activities. Pain interference scores were not explained by social support (β = 0.12 p = .090) or socio‐demographic factors (R2 = .005; p = .94). Conclusion This study provides important new findings regarding the association between physical, cognitive and social factors and function of individuals with cancer and chronic pain, thus supporting a biopsychosocial approach to the management of chronic pain in individuals with cancer.

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Needs of adolescents and young adults after cancer treatment: a systematic review

Cited by 61 publications

References 39 publications

Adverse mental health outcomes in a population‐based cohort of survivors of childhood cancer

Adverse mental health outcomes in a population‐based cohort of survivors of childhood cancer

Long‐term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: A systematic review

The role of physical, cognitive and social factors in pain interference with activities of daily living among individuals with chronic cancer pain

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