Needs of parents of the child hospitalised with Acquired Brain Damage

Ramritu, Prabha; Croft, Grace

doi:10.1016/s0020-7489(99)00016-4

Cited by 20 publications

(42 citation statements)

References 4 publications

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“…level of care) received by the adolescent following the mTBI and, to a lesser degree, with the adolescent's age (12)(13)(14) year olds vs. 15-17 year olds). For this reason, the services received by three groups of adolescents (separated into three levels of care) are briefly described, followed by the needs identified by each group.…”

Section: Resultsmentioning

confidence: 99%

“…Ramritu [13] investigated the needs of parents of children hospitalized for a TBI (>6 days), while Armstrong and Kerns [14] surveyed parents of children (aged 2-16.5 years) having sustained a TBI (mild-to-severe). Essentially, their results were very similar; parents' needs are related to the child's optimal recovery and include wanting to obtain a quick and accurate diagnosis, receive appropriate treatments, have a team approach to intervention and to be a part of the care provided to their child.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Perspectives of adolescents and their parents regarding service needs following a mild traumatic brain injury

Gagnon¹,

Swaine²,

Champagne³

et al. 2008

Brain Injury

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Perspectives of adolescents and their parents regarding service needs following a mild traumatic brain injury

Gagnon¹,

Swaine²,

Champagne³

et al. 2008

Brain Injury

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“…Content areas of information in quantitative studies include health and medical information, problems in cognition/thinking, caring strategies for patients with traumatic injuries, and recognizing changes in the patient's medical status [22][23][24][25]. Content areas in qualitative studies include clear, timely, and accurate information on diagnosis; treatment plans; prognosis and course of recovery; best-and worstcase scenarios; reasons for and results of diagnostic studies; specific hospital equipment use; medications; rationale for treatments; and possible patient behavior changes [26][27][28]. Caregivers also want to understand the purpose of rehabilitation [29], how rehabilitation facilitates recovery [30], and the effect that caring for a patient with TBI has on family relationships [31].…”

Section: Type Of Information Neededmentioning

confidence: 99%

“…Most of the literature available focuses on information in the inpatient setting [26,28]. Although research is limited, qualitative data suggest that the information needs of families during inpatient care are different from those needed in the outpatient setting.…”

Section: Appropriate Timing For Providing Key Informationmentioning

confidence: 99%

“…For instance, Bond et al suggest information be provided by a designated healthcare provider to reduce stress and assure message consistency [27]. Others recommend presenting information empathetically using simple language [26,28], and when possible, written information should be presented with visual aids that families can use for future reference [28].…”

Section: Best Ways To Communicate Informationmentioning

confidence: 99%

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Families of patients with polytrauma: Understanding the evidence and charting a new research agenda

Griffin

Friedemann-Sánchez

Hall³

et al. 2009

JRRD

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Abstract-Although research shows that caring for a family member with chronic disease or disability can cause significant distress for caregivers, it also shows that families that function well and adequately support patients can improve the quality of life and health outcomes for their ill or disabled family member. Currently, little knowledge exists about how families function and cope after a loved one has sustained polytrauma, the multiple traumatic injuries that often include traumatic brain injury (TBI). We summarize the polytrauma and TBI research about family needs during rehabilitation and recovery, describe current efforts to improve family-centered care, and detail approaches for understanding family resilience and the longterm consequences of injuries on families. We conclude with recommendations for future research in inpatient and outpatient settings where evidence has been limited for families of patients with TBI and is nonexistent for families of patients with polytrauma. Understanding many of these issues will help to better inform families of policies for benefits and resources and help researchers and clinicians plan for appropriate interventions.

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Communicating Information to Families of Polytrauma Patients: A Narrative Literature Review

Friedemann-Sánchez¹,

Griffin²,

Rettmann³

et al. 2008

Rehabilitation Nursing

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Family caregivers of U.S. servicemembers with polytraumatic injuries (injuries to multiple body systems) need support and information to care for their family members. Providing information to patients' families may reduce stress and increase coping abilities. Because the field of polytrauma research is new and evidence is lacking, providers rely on traumatic brain injury (TBI) research to guide their practice. This article presents a narrative literature review on the information needs of families of patients with TBI. It summarizes the types of needed information, the most appropriate time to provide information, and the best approaches for providing information. Future research on information needs is critical if polytrauma rehabilitation providers are to effectively support families in their caregiving roles. Such research likely will benefit caregivers of patients with polytrauma who acquire their injuries as civilians, as well. Research gaps are identified with regard to the information needs of families of patients with TBI; these gaps also are applicable to polytrauma caregivers. Additional research areas are highlighted in light of the new polytrauma population.

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Needs of parents of the child hospitalised with Acquired Brain Damage

Cited by 20 publications

References 4 publications

Perspectives of adolescents and their parents regarding service needs following a mild traumatic brain injury

Perspectives of adolescents and their parents regarding service needs following a mild traumatic brain injury

Families of patients with polytrauma: Understanding the evidence and charting a new research agenda

Communicating Information to Families of Polytrauma Patients: A Narrative Literature Review

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