Needs of people with advanced dementia in their final phase of life: A multi-perspective qualitative study in nursing homes

Schmidt, Holger; Eisenmann, Yvonne; Golla, Heidrun; Voltz, Raymond; Perrar, Klaus Maria

doi:10.1177/0269216317746571

Cited by 24 publications

(63 citation statements)

References 36 publications

(48 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In addition to basic pain medication, movement-specific pain may be reduced by (additional) medication on demand before moving or daily care duties. Regular gentle movement or physiotherapy may help to maintain some mobility and reduce pain (74).…”

Section: Painmentioning

confidence: 99%

“…Several options are available increasing comfort of food intake comfort for the person with dementia. Health professionals can assist with eating, they can offer preferred food (e.g., sweet) or finger food, and adapt the texture of food (74). To create pleasant environment a focus on the action of feeding and upright position may influence oral food intake positively and reduce risk of aspiration.…”

Section: Eating and Drinking/eating Problemsmentioning

confidence: 99%

See 1 more Smart Citation

Palliative Care in Advanced Dementia

et al. 2020

Self Cite

View full text Add to dashboard Cite

Dementia syndrome is common and expected to increase significantly among older people and characterized by the loss of cognitive, psychological and physical functions. Palliative care is applicable for people with dementia, however they are less likely to have access to palliative care. This narrative review summarizes specifics of palliative care in advanced dementia. Most people with advanced dementia live and die in institutional care and they suffer a range of burdensome symptoms and complications. Shortly before dying people with advanced dementia suffer symptoms as pain, eating problems, breathlessness, neuropsychiatric symptoms, and complications as respiratory or urinary infections and frequently experience burdensome transitions. Pharmacological and nonpharmacological interventions may reduce symptom burden. Sensitive observation and appropriate assessment tools enable health professionals to assess symptoms and needs and to evaluate interventions. Due to lack of decisional capacity, proxy decision making is often necessary. Advanced care planning is an opportunity establishing values and preferences and is associated with comfort and decrease of burdensome interventions. Family carers are important for people with advanced dementia they also experience distress and are in need for support. Recommendations refer to early integration of palliative care, recognizing signs of approaching death, symptom assessment and management, advanced care planning, person-centered care, continuity of care, and collaboration of health care providers.

show abstract

Section: Painmentioning

confidence: 99%

Section: Eating and Drinking/eating Problemsmentioning

confidence: 99%

Palliative Care in Advanced Dementia

et al. 2020

Self Cite

View full text Add to dashboard Cite

show abstract

“…Perkins et al (105) reported that even persons with advanced dementia were able to engage in spiritual practices that provide life meaning in accordance with their values. Observations in a nursing home showed that some persons expressed a need for religious expression or participating in religious rituals (106).…”

Section: Spiritual and Consoling Care At The End Of Lifementioning

confidence: 99%

Sense of Self among Persons with Advanced Dementia

Norberg

2019

Alzheimer’s Disease

View full text Add to dashboard Cite

As humans, we have a sense of self, and at best, we are proud of our abilities and feel respected by other persons. Persons with dementia have been regarded losing their self. Quantitative research has shown that this is true, while qualitative research has shown that parts of self are severely affected while other parts remain even among persons with advanced dementia. These persons sometimes keep feeling "still the same" as before getting dementia. Their memory deficits help as does support from other persons. The theory of three aspects of self by the psychologists Rom Harré and Steven Sabat are presented, that is, the feeling that we are, who we are, and who we are together with other persons. Based on empirical research, suggestions will be given about how by promoting experiences of at-homeness, dignity, and being oneself related to others we can help persons with advanced dementia experience themselves as valuable persons.

show abstract

“…People with advanced dementia have complex needs [5]. Schmidt et al have investigated the needs in a recent study.…”

Section: Introductionmentioning

confidence: 99%

IoT-Enabled Health Monitoring and Assistive Systems for in Place Aging Dementia Patient and Elderly

Edoh¹,

Dégila²

2019

IoT and Smart Home Automation [Working Title]

View full text Add to dashboard Cite

Hospitals and nursing care homes are facing severe challenges such as lack of skilled workforces and cost explosion, among others. Especially, the western healthcare systems are headed over a cliff. German nursing care houses, hospitals, and government are working hard on solutions to overcome the crucial workforce's crises. Therefore, they are planning to hire nursing-workforces from abroad. They would also like to motivate families with monetary incentives, such as taxreduction, if they can care for their elderly and/or dementia family members at home. However, caring for a sick person at home is challenging for a working family member especially in the case the patient requests around-the-clock nursing care since elderly with cognitive impairments, people with physical disabilities, and people with dementia need (medical) assistance around the clock. The present study reveals an increasing tendency for family members to care for their sick family member at home despite the challenges and issues faced like the lack of time to intensively care for the sick person due to today's family lifestyle, challenging employment market, financial constraints, etc. The study reported in this chapter aims at providing family members willing to care for their sick member at home as long as possible with smart home automation enabled Patient@Home solution to effectively and efficiently care for their sick member despite working full time. People living in nursing care homes can also take benefit of the proposed system. Evidence shows the potential of the proposed system to effectively and efficiently assist in caring for people requesting nursing care around the clock. Though the health-related quality of life is positively impacted, patient's satisfaction is increased (better quality of experience).

show abstract

Needs of people with advanced dementia in their final phase of life: A multi-perspective qualitative study in nursing homes

Abstract: People with advanced dementia in their final phase of life have a multitude of individual and complex needs. This evidence contributes to narrowing the current research gap, offering an orientation framework for research and practice.

Cited by 24 publications

References 36 publications

Palliative Care in Advanced Dementia

Palliative Care in Advanced Dementia

Sense of Self among Persons with Advanced Dementia

IoT-Enabled Health Monitoring and Assistive Systems for in Place Aging Dementia Patient and Elderly

Contact Info

Product

Resources

About