Negotiation, Reciprocity, and Reality: The Experience of Collaboration in a Community-Based Primary Health Care (CBPHC) Program of Research with Eight Manitoba First Nations

Phillips-Beck, Wanda; Kyoon-Achan, Grace; Lavoie, Josée G.; Krueger, Nicholas; Kinew, Kathi Avery; Sinclair, Stephanie; Ibrahim, Naser; Katz, Alan

doi:10.18584/iipj.2019.10.4.8334

Cited by 13 publications

(19 citation statements)

References 15 publications

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“…Participating communities also determined how information would be collected and by whom, all data was stored and managed at the FNHSSM, communities were assured of access at any time, and they determined the dissemination process, including vetting of publications (First Nations Information Governance Centre [FNIGC], 2014). A detailed description of the methods used in the program of study is described in previous publications (Kyoon-Achan, Phillips-Beck et al, 2019).…”

Section: Methodsmentioning

confidence: 99%

Collaborative and Systems Approach to Transforming Primary Health Care in Manitoba First Nations Communities

Kyoon-Achan

2021

IJIH

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The models of primary health care currently operating in First Nations communities are rooted in policies that were crafted without prior appropriate consultations. Many have continued to be applied even though they no longer adequately serve the needs of First Nations communities and people, if they ever did. Transforming primary health care will necessarily involve community- inclusive and self-determined reviewing of existing policies with a goal of implementing opportunities to update policies and models of care. This study was a partnership with university-based researchers, a First Nations health and social development entity separately established by a regional organization of First Nations Chiefs, and eight First Nations communities. A multi-pronged methodology was used in which five concurrent studies employing qualitative, quantitative, and case-study methods provided information on the primary health care experiences of First Nations and rural and remote communities. The program of research took a community-based participatory approach to engage participants in designing and carrying out data gathering while strengthening local capacity and encouraging long-term ownership of the process of research for change. Participating communities pointed out key setbacks to community- based primary health care, including differing models of care, jurisdictional complexities, funding that creates isolated programs within the same community, lack of promotion of cooperation among health care services, and a general acute approach to health care service delivery in the community. These barriers are both problems and opportunities for change. A borderless health care system that is jurisdictionally seamless and that promotes collaboration through cooperative funding models that reflect community priorities is recommended and advocated for all Manitoba First Nations communities.

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Section: Methodsmentioning

confidence: 99%

Collaborative and Systems Approach to Transforming Primary Health Care in Manitoba First Nations Communities

Kyoon-Achan

2021

IJIH

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“…This method has been shown to support respectful research with Indigenous Peoples (see for example Boffa et al, 2011;Brunger & Wall, 2016;Flicker et al, 2015). Ethical practice goes beyond merely following the usual recommendations made by institutions; it requires engagement that is meaningful and useful for community partners (Brunger & Wall, 2016;Canadian Institutes of Health Research, 2010;Phillips-Beck et al, 2019). First Nation communities and individuals participating in this study provided guidance and feedback at all stages of the study including questionnaire development, data collection, interpretation, analyses, and knowledge translation.…”

Section: Methodsmentioning

confidence: 99%

Our People, Our Health: Envisioning Better Primary Healthcare in Manitoba First Nation Communities

Kyoon-Achan

Phillips-Beck

Kinew

et al. 2021

iipj

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Recognizing the right of self-determination of Indigenous Peoples is essential to improving the state of community-based primary healthcare of First Nations in Canada. Understanding communities’ priorities and local health agendas is critical for primary healthcare transformation. We used a community-based participatory research approach to engage our partners: Nanaandawewiwgamig, the First Nations Health and Social Secretariat of Manitoba, and eight First Nation communities. Community-based research assistants conducted 183 in-depth interviews in their respective First Nations. Key themes that emerged from these interviews include primary prevention focused on health and social determinants; an integrated healthcare system providing access to both Western and First Nations traditional health knowledge; infrastructure improvement; youth engagement; healthcare leadership; investing in community-based human resources; and promoting culturally respectful, responsive, geographically sensitive, and outcomes-oriented care. Policy approaches could implement some local priorities with direct impact on healthcare, while other social determinants will create indirect, albeit critical, conditions for health and healthcare changes over time.

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“…We recognize and respect the principles of Indigenous ownership, control, access, and possession of research as crucial to self-determination and doing ethical research [ 44 , 45 ]. Our team has employed a shared governance model by creating the Relational Network, and these team members have been involved in planning this study and will be involved in all stages of the research described earlier.…”

Section: Methodsmentioning

confidence: 99%

Elevating the uses of storytelling approaches within Indigenous health research: a critical and participatory scoping review protocol involving Indigenous people and settlers

Gazan¹,

Bennett

Buss

et al. 2020

Syst Rev

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Background There is a complicated and exploitative history of research with Indigenous peoples and accompanying calls to meaningfully and respectfully include Indigenous knowledge in healthcare. Storytelling approaches that privilege Indigenous voices can be a useful tool to break the hold that Western worldviews have within the research. Our collaborative team of Indigenous and non-Indigenous researchers, and Indigenous patients, Elders, healthcare providers, and administrators, will conduct a critical participatory, scoping review to identify and examine how storytelling has been used as a method in Indigenous health research. Methods Guided by two-eyed seeing, we will use Bassett and McGibbon’s adaption of Arksey and O’Malley’s scoping review methodology. Relevant articles will be identified through a systematic search of the gray literature, core Indigenous health journals, and online databases including Scopus, MEDLINE, Embase, CINAHL, AgeLine, Academic Search Complete, Bibliography of Native North Americans, Canadian Reference Centre, and PsycINFO. Qualitative and mixed-methods research articles will be included if the researchers involved Indigenous participants or their healthcare professionals living in Turtle Island (i.e., Canada and the USA), Australia, or Aotearoa (New Zealand); use storytelling as a research method; focus on healthcare phenomena; and are written in English. Two reviewers will independently screen titles/abstracts and full-text articles. We will extract data, identify the array of storytelling approaches, and critically examine how storytelling was valued and used. An intensive collaboration will be woven throughout all review stages as academic researchers co-create this work with Indigenous patients, Elders, healthcare professionals, and administrators. Participatory strategies will include four relational gatherings throughout the project. Based on our findings, we will co-create a framework to guide the respectful use of storytelling as a method in Indigenous health research involving Indigenous and non-Indigenous peoples. Discussion This work will enable us to elucidate the extent, range, and nature of storytelling within Indigenous health research, to critically reflect on how it has been and could be used, and to develop guidance for the respectful use of this method within research that involves Indigenous peoples and settlers. Our findings will enable the advancement of storytelling methods which meaningfully include Indigenous perspectives, practices, and priorities to benefit the health and wellbeing of Indigenous communities. Systematic review protocol registration Open Science Framework (https://osf.io/rvf7q)

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Negotiation, Reciprocity, and Reality: The Experience of Collaboration in a Community-Based Primary Health Care (CBPHC) Program of Research with Eight Manitoba First Nations

Cited by 13 publications

References 15 publications

Collaborative and Systems Approach to Transforming Primary Health Care in Manitoba First Nations Communities

Collaborative and Systems Approach to Transforming Primary Health Care in Manitoba First Nations Communities

Our People, Our Health: Envisioning Better Primary Healthcare in Manitoba First Nation Communities

Elevating the uses of storytelling approaches within Indigenous health research: a critical and participatory scoping review protocol involving Indigenous people and settlers

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