Neighbourhoods as relational places for people living with dementia

Clark, Adele; Campbell, Sarah; Keady, John; Kullberg, Agneta; Manji, Kainde; Rummery, Kirstein; Ward, Richard

doi:10.1016/j.socscimed.2020.112927

Cited by 36 publications

(49 citation statements)

References 35 publications

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“…When people with dementia are given a voice and the same right to be visible in the community as other people living with long-term conditions, this will be the first step toward raising public awareness of dementia as a public health issue. Wiersma and Denton (2016) and Clark et al (2020) have also highlighted the importance of having social support, where people care for and look after each other, as a key attribute of creating social networks in the community. This will become a priority as people age at home as long as they can (Rowles, 1981) and remain connected to their communities.…”

Section: Discussionmentioning

confidence: 99%

Health promotion initiative: A dementia-friendly local community in Sweden

et al. 2020

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Dementia is a great public health concern worldwide. Despite this, little is known from a health-promoting perspective about dementia in general as a public health issue, in dialog with people living with dementia, applicable at individual, group, and societal levels with regard to policies and practice. This study therefore aims to explore the experiences related to living with dementia in the local community by advancing a health-promoting perspective. Semi-structured individual and group interviews were conducted with participants ( n = 22) with lived, professional, and personal experiences of dementia living in a medium-sized municipality in Sweden. Transcripts were analyzed by thematic analysis. Four themes emerged: health promotion through knowledge and public awareness, health promotion through opportunities to be active, health promotion through meaningful meeting places, and health promotion through improvements in the welfare system. We found that more knowledge and public awareness about dementia are needed to advance a health-promoting perspective and increase the prominence of dementia as a public health issue. Further research and policy need to focus more on how professionals in dementia care practice could be involved in promoting health and well-being for people with dementia.

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Section: Discussionmentioning

confidence: 99%

Health promotion initiative: A dementia-friendly local community in Sweden

et al. 2020

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“…Olsson et al (2013) suggest that maintaining child-care responsibilities can be 'self-affirming' when living with dementia, it is also an important but largely overlooked form of social contribution made by people living with dementia and their care partners. Elsewhere (Ward et al, 2018;Clark et al, 2020), we have highlighted the significance of reciprocity to neighbouring relations as integral to everyday life with dementia. Continuing to participate in small acts of often materially mediated mutual support helped to cement relations with those 'closest by' but also to shore up a meaningful sense of local belonging.…”

Section: Proximitiesmentioning

confidence: 99%

Beyond the shrinking world: dementia, localisation and neighbourhood

et al. 2021

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‘Dementia-friendly communities’ herald a shift toward the neighbourhood as a locus for the care and support of people with dementia, sparking growing interest in the geographies of dementia care and raising questions over the shifting spatial and social experience of the condition. Existing research claims that many people with dementia experience a ‘shrinking world’ whereby the boundaries to their social and physical worlds gradually constrict over time, leading to a loss of control and independence. This paper reports a five-year, international study that investigated the neighbourhood experience of people with dementia and those who care for and support them. We interrogate the notion of a shrinking world and in so doing highlight an absence of attention paid to the agency and actions of people with dementia themselves. The paper draws together a socio-relational and embodied-material approach to question the adequacy of the shrinking world concept as an explanatory framework and to challenge reliance within policy and practice upon notions of place as fixed or stable. We argue instead for the importance of foregrounding ‘lived place’ and attending to social practices and the networks in which such practices evolve. Our findings have implications for policy and practice, emphasising the need to bolster the agency of people living with dementia as a route to fostering accessible and inclusive neighbourhoods.

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“…Negotiating a personal familiar territory might be essential for maintaining identity. Echoing Clark et al (2020), we suggest extending the concept of neighbourhood not just as a close by geographically limited space (within walking distance) but – in our interpretation – as territories in which people may actively engage in relation to their environments. In that way, support implemented in dementia-friendly actions would be extended to places further away and be more in line with the needs of persons with dementia.…”

Section: Discussionmentioning

confidence: 78%

“…The findings suggest that people with dementia experience familiarity as continuous, through occurrences that sustain familiarity in personal territories with facilitating landmarks and objects. In fact, places are constantly shaped by how people interact and actively engage in activities (Clark et al, 2020). As Andrews et al (2007) stated, place is too frequently considered as a container, instead of the result of interactions between the person and the environment.…”

Section: Discussionmentioning

confidence: 99%

Familiarity and participation outside home for persons living with dementia

et al. 2021

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Familiarity is important for persons living with dementia who participate outside home. When familiarity is challenged, such participation may be difficult. This ethnographic study clarifies how familiarity is experienced by persons with dementia in performing activities and visiting places, and how familiarity contributes to maintaining participation outside home. Nine participants were interviewed in their home and while visiting familiar places. Data were content analysed using a constant comparative method. The findings suggest that persons with dementia experience familiarity as continuous and whole, through occurrences that support personal territories. Landmarks and objects enhance the experience of familiarity. Familiarity that is continuously challenged may render participation outside home fragile.

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Neighbourhoods as relational places for people living with dementia

Cited by 36 publications

References 35 publications

Health promotion initiative: A dementia-friendly local community in Sweden

Health promotion initiative: A dementia-friendly local community in Sweden

Beyond the shrinking world: dementia, localisation and neighbourhood

Familiarity and participation outside home for persons living with dementia

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