Synopsis
We have discussed in this chapter ethical issues surrounding the resuscitation of infants who are at great risk to die or survive with significant morbidity. We have introduced data regarding three separate aspects of the morality of resuscitation for these infants – money, outcomes, and prediction. We have demonstrated that there are no credible financial arguments against NICU care for infants born at the border of viability – rather, the NICU is a bargain in terms of dollars devoted to infants who will survive to discharge as opposed to die in hospital. Moreover, the NICU is particularly cost-effective when compared with medical interventions in adults. We have noted that of the four possible outcomes after birth (comfort care, death in the NICU, survival with NDI, survival without NDI), gestational age influences some (death in the NICU) much more than others (percentage of survivors with NDI). Consequently, for parents who view ‘giving their child a chance’ by starting NICU intervention as a worthwhile option, counseling about resuscitation as a function of gestational age appears to have limited support from the data. Finally, we have noted that prediction is possible at four stages of the resuscitation process – before birth (antenatal counseling), in the delivery room, in the NICU while the child remains on the ventilator (when there are ethical alternatives to continued NICU intervention – namely extubation and palliative care), and at the time of discharge. We have presented data suggesting that antenatal and delivery room predictions are inadequately accurate, and prediction at the time of discharge is too late. Rather, we suggest that learning about individual infants from data collected during the trajectory of their own NICU experience (specifically, abnormal head ultrasound and healthcare professional intuitions that the child will ‘die before discharge’) can offer a positive predictive value of >95% for the combined outcome of death or survival with neuro-developmental impairment. This predictive value is worth talking about.