“…There is an opportunity to further investigate the role and impact of advocacy by PwPs and CPs on healthcare delivery, as well as explore methodology to capture the real-time experiences of PwPs and CPs during hospitalization, as has been accomplished in other medical conditions ( Gualandi et al, 2021 ). Additionally, the methods and findings of this study serve as good starting points for understanding the hospital experiences of those with atypical parkinsonian syndromes, including progressive supranuclear palsy and multiple system atrophy, given the complexity of symptoms, rapid disease progression, profound lack of awareness of these rarer neurodegenerative diagnoses within the medical community, and the current dearth of research on hospital care for atypical parkinsonism ( Dayal et al, 2017 ; O’shea et al, 2023 ).…”