Neuropsychology reports for childhood brain tumor survivors: Implementation of recommendations at home and school

Abstract

Patient understanding and willingness play a significant role in the implementation of neuropsychology recommendations. Collaboration and clear communication between the patient, teacher, parent, and neuropsychologist is vital for effective management.

Post-operative cerebellar mutism syndrome: rehabilitation issues

“…Routine clinical management should be central to the rehabilitation of children with pCMS, with a systematic integrated approach to the management, assessment and treatment of speech and language disorders, and followup and early intervention. It is therefore recommended that rehabilitation of speech and language in children with pCMS involves multi-phase implementation of evidencebased guidelines and recommendations that identify and highlight risk factors, specific deficits, and knowledge about progression over time [9,13,38]. In summary, it is recommended that integrated, holistic rehabilitation of pCMS involves the following stages:…”

Outcomes of pediatric neuropsychological services: A systematic review

“…The sum of report quality ratings was higher for the new (shortened, more readable, and restructured for clarity) report format -Bodin, 2007 82% of parents endorsed general satisfaction with services Factor analysis of items indicated four factors: 1) general satisfaction, 2) acceptance/empathy, 3) provision of help, and 4) facilities/ administrative assistance Satisfaction ratings were highest for general satisfaction, acceptance/empathy, and facilities/ administrative assistance Provision of help ratings were lower than other satisfaction factors, and a large minority of participants (45%) did not endorse that the evaluation improved their child's life Parents for whom maternal education was some college or a college degree were less satisfied than parents for maternal education was either lower or higher Cheung, 2014 All parents and teachers were "satisfied with the support they received from the neuropsychologist" Report quality was generally described positively, though a few (4 out 15) parents found some aspects of the report confusing When asked for suggestions to improve services, parents requested, 1) more follow-up with the neuropsychologist ( Nowinski, 2009 Overall satisfaction was high, and decreased marginally from the post-feedback to postevaluation time points Alliance increased between testing and feedback time points on the Collaboration, Agreement on Goals, and Bond subscales Ratings of satisfaction were generally high, both post-feedback and five months later. However, satisfaction did decrease over that time frame Lowest rated item was parent report of being "less stressed" after evaluation -…”

“…Regarding broad parent satisfaction, all studies indicated that the majority of parents had a positive experience with the neuropsychological services their children received. In many studies, high ratings were nearly unanimous, such that 94-100% of parents reported satisfaction with neuropsychological services (Cheung et al, 2014;Dodd et al, 2018;Farmer & Brazeal, 1998;Kirkwood et al, 2017;Nissirios et al, 2018;Stark et al, 2014). However, in two of the largest studies, ratings of broad satisfaction indicated that 10-20% of parents were not satisfied with the services (Bodin et al, 2007;Waber et al, 2017).…”

“…See Table 1 for details about satisfaction with therapeutic alliance and feedback. Regarding perceived quality and utility of neuropsychological reports, Elias et al (2020) found that 98% of parents felt the report was understandable, while in a small sample of children with cancer, parents understood the report less often (73%; Cheung et al, 2014). In Farmer and Brazeal's (1998) study, the largest proportion of parents rated the written report as the most useful part of the evaluation (44%), as opposed to the testing day (25%) or feedback session Highest rating was for improved understanding of child strengths and weakness Lowest rating was for documenting treatment progress Factor analysis of items indicated two factors: 1) parent report of improved understanding, and 2) parent report that services led to changes (e.g.…”

93 Neuropsychological assessment in children with tourette syndrome and chronic tic disorders: do families find this useful and are recommendations implemented?

“…There is paucity in literature on parent and child satisfaction of these assessments, 5,6,7 and no identified literature on whether recommendations are implemented. 8,9 This study aimed to assess levels of satisfaction amongst parents and children with TS following neuropsychological assessment, and investigate the proportion of recommendations implemented at home and school. Method All children who underwent a neuropsychological assessment in a specialist TS clinic from 2013 -2016 were identified.…”