New approaches to qualitative interviewing: Development of a card sort technique to understand subjective patterns of symptoms and responses

Mammen, Jennifer R.; Norton, Sally A.; Rhee, Hyekyun; Butz, Arlene

doi:10.1016/j.ijnurstu.2015.12.011

Cited by 23 publications

(23 citation statements)

References 26 publications

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“…Uncovering usual patterns of symptoms and responses can facilitate discussions about teens’ current management strategies, identify barriers to adequate self-management, and enable shared goal-setting and decision-making [14]. Incorporating objective measures (e.g.…”

Section: Discussionmentioning

confidence: 99%

“…Each dyad comprised one teen and a respective parent. Data from each case included: (1) a first open-ended teen interview; (2) a parent interview; followed by (3) a two-week self-management voice-diary; and concluding with (4) a second teen interview incorporating symptom-response (S/R) card-sorting to map each teen’s usual pattern of asthma symptoms and respective self-management behaviors [14]. …”

Section: Methodsmentioning

confidence: 99%

“…Each teen completed a Symptom/Response (S/R) card-sort [14]. A list of each teen’s asthma symptoms and responses to symptoms was derived from their first interview and voice-diary.…”

Section: Methodsmentioning

confidence: 99%

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Perceptions and experiences underlying self-management and reporting of symptoms in teens with asthma

et al. 2016

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Background Teens often have inadequate asthma self-management and control. However, little is known of their perceptions of or rationales for self-management behaviors. Objectives To explore how teens self-manage asthma, including experiences, perceptions, responses to and reporting of symptoms. Methods A case-based, qualitative-descriptive design was used. Data were collected from minority and non-minority teens with controlled and uncontrolled asthma and their respective parents (N=28). There were four data-collection points, including: (1) a primary teen interview; (2) parent interview; (3) two-week self-management voice-diary; and (4) follow-up teen interview, incorporating symptom-response card-sorting to map symptoms and associated self-management responses. Seventy data sources were included in the analysis. Results Teens thought of their asthma symptoms as normal or unusual relative to their personal baseline symptom pattern; Those with uncontrolled asthma normalized higher levels of asthma symptoms than their counterparts with controlled asthma. Second, teens’ decisions to treat symptoms of asthma with rescue medication were based on perceived benefits, burdens and accessibility of treatment balanced against perceived normalcy of symptoms. Teens with uncontrolled asthma had substantially higher treatment thresholds and delayed responses to symptoms compared to controlled peers. Third, teens never reported perceived normal symptoms of asthma to parents or providers, who were thus only aware of unusual or visible/audible symptoms. Conclusions Teen’s perceptions of symptoms and understanding of what is normal is the basis for self-management decisions. Improving self-management will likely entail modifying perceptions of symptoms and benefits/burdens of treatment to achieve healthier self-management patterns.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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Perceptions and experiences underlying self-management and reporting of symptoms in teens with asthma

et al. 2016

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“…During the interview, PrEP was described using verbal explanation and a visual aid adapted from Young et al [26]. Despite the use of a visual aid, qualitative research into complex phenomena such as PrEP is often limited by participants' ability to "recall, analyse, and communicate effectively" [27]. Therefore, a participatory tool known as card sorting was used [27].…”

Section: Qualitative Datamentioning

confidence: 99%

“…Despite the use of a visual aid, qualitative research into complex phenomena such as PrEP is often limited by participants' ability to "recall, analyse, and communicate effectively" [27]. Therefore, a participatory tool known as card sorting was used [27]. Following a methodology described by Herrington & Coogan, participants were asked to make a hierarchical ordering of reasons for and against PrEP use, while the interviewer asked probing questions [28].…”

Section: Qualitative Datamentioning

confidence: 99%

Awareness and Acceptability of Pre-Exposure Prophylaxis (PrEP) Among Men Who Have Sex with Men in Kazakhstan: A Mixed Methods Study

Bak

Dam²,

Janssens³

2018

Cent. Asian j. Med. Sci.

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Objectives: Oral pre-exposure prophylaxis (PrEP) is an antiretroviral method of HIV prevention recommended to men who have sex with men (MSM) at high risk of infection. In Kazakhstan, which has one of the fastest growing HIV epidemics globally, PrEP is not currently available. The aim of this study is to explore the possibilities for PrEP initiatives in Kazakhstan by investigating awareness and acceptability of this prevention method among MSM. Methods: This mixedmethods study employs an online survey and qualitative interviews to describe PrEP awareness and acceptability. Results: Less than half (39.8%) of survey participants had heard of PrEP. However, a majority (85.2%) of MSM would possibly or defi nitely use PrEP if it was available. Awareness of PrEP was positively associated with willingness to use PrEP. The main reason to be interested in PrEP was an increased feeling of protection, whereas barriers were related to the idea of taking daily medication and the potential for side effects. Conclusion: PrEP is an essential component of HIV combination prevention. Our fi ndings suggest potential for PrEP programmes among MSM in Kazakhstan and possibly in other Central Asian nations, when taking into account burdens of taking PrEP as well as more structural health policy issues.

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RESPONSE_ABILITY A Card-Based Engagement Method to Support Researchers’ Ability to Respond to Integrity Issues

Felt

Frantz

2022

Sci Eng Ethics

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Issues related to research integrity receive increasing attention in policy discourse and beyond with most universities having introduced by now courses addressing issues of good scientific practice. While communicating expectations and regulations related to good scientific practice is essential, criticism has been raised that integrity courses do not sufficiently address discipline and career-stage specific dimensions, and often do not open up spaces for in-depth engagement. In this article, we present the card-based engagement method RESPONSE_ABILITY, which aims at supporting researchers in developing their ability to respond to challenges of good scientific practice. The method acknowledges that what counts and what does not count as acceptable practice may not be as clear-cut as imagined and that research environments matter when it comes to integrity issues. Using four sets of cards as stimulus material, participants are invited to reflect individually and collectively about questions of research integrity from different perspectives. This approach is meant to train them to negotiate in which contexts certain practices can still be regarded as acceptable and where possible transgressions might begin. RESPONSE_ABILITY can be seen as fostering the creation of an integrity culture as it invites a more reflexive engagement with ideals and realities of good practice and opens a space to address underlying value conflicts researchers may be confronted with. Concluding the article, we call for caution that addressing issues of integrity meaningfully requires striking a delicate balance between raising researchers’ awareness of individual responsibilities and creating institutional environments that allow them to be response-able.

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New approaches to qualitative interviewing: Development of a card sort technique to understand subjective patterns of symptoms and responses

Cited by 23 publications

References 26 publications

Perceptions and experiences underlying self-management and reporting of symptoms in teens with asthma

Perceptions and experiences underlying self-management and reporting of symptoms in teens with asthma

Awareness and Acceptability of Pre-Exposure Prophylaxis (PrEP) Among Men Who Have Sex with Men in Kazakhstan: A Mixed Methods Study

RESPONSE_ABILITY A Card-Based Engagement Method to Support Researchers’ Ability to Respond to Integrity Issues

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