New HHS Data Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status

Dorsey, Rashida; Graham, Garth

doi:10.1001/jama.2011.1789

Cited by 54 publications

(39 citation statements)

References 4 publications

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“…Although beyond the scope of this paper, barriers to early sarcoma care referral should be further evaluated in this at-risk group of patients. 37 …”

Section: Discussionmentioning

confidence: 99%

Racial Disparities in Extremity Soft-Tissue Sarcoma Outcomes

Alamanda

Song²,

Schwartz³

et al. 2015

American Journal of Clinical Oncology

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African Americans encounter death due to STS at a much larger proportion and faster rate than their respective white counterparts. African Americans frequently present with a larger size tumor, do not undergo surgical resection, or receive radiation therapy as frequently as compared with their white peers. Barriers to timely and appropriate care should be further investigated in this group of at-risk patients.

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“…Although beyond the scope of this paper, barriers to early sarcoma care referral should be further evaluated in this at-risk group of patients. 37 …”

Section: Discussionmentioning

confidence: 99%

Racial Disparities in Extremity Soft-Tissue Sarcoma Outcomes

Alamanda

Song²,

Schwartz³

et al. 2015

American Journal of Clinical Oncology

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“…Race and ethnicity were assessed using two items used by the U.S. Department of Health and Human Services (Dorsey & Graham, 2011). The first item asked whether potential participants identified as Hispanic, and the second asked respondents to indicate their race (they could select more than one).…”

Section: Methodsmentioning

confidence: 99%

Unplanned Quitting in a Triethnic Sample of U.S. Smokers

Resnicow

Zhou

Scheuermann

et al. 2014

Nicotine & Tobacco Research

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“…This has limited researchers' ability to track the status of health and health care for diverse populations in a uniform way across HHS data systems. The new standards, implemented in October 2011 (28), provide additional granularity for race and ethnicity data collections and, for the first time, provide requirements for primary language and disability status data collections.…”

Section: The Affordable Care Act: New Opportunities For Disparities Ementioning

confidence: 99%

Implementing Health Reform: Improved Data Collection and the Monitoring of Health Disparities

Dorsey

Graham

Glied

et al. 2014

Annu. Rev. Public Health

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The relative lack of standards for collecting data on population subgroups has not only limited our understanding of health disparities, but also impaired our ability to develop policies to eliminate them. This article provides background about past challenges to collecting data by race/ethnicity, primary language, sex, and disability status. It then discusses how passage of the Affordable Care Act has provided new opportunities to improve datacollection standards for the demographic variables of interest and, as such, a better understanding of the characteristics of populations served by the U.S. Department of Health and Human Services (HHS). The new standards have been formally adopted by the Secretary of HHS for application in all HHS-sponsored population health surveys involving self-reporting. The new data-collection standards will not only promote the uniform collection and utilization of demographic data, but also help the country shape future programs and policies to advance public health and to reduce disparities.

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New HHS Data Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status

Cited by 54 publications

References 4 publications

Racial Disparities in Extremity Soft-Tissue Sarcoma Outcomes

Racial Disparities in Extremity Soft-Tissue Sarcoma Outcomes

Unplanned Quitting in a Triethnic Sample of U.S. Smokers

Implementing Health Reform: Improved Data Collection and the Monitoring of Health Disparities

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