New kid on the block? Community nurses’ experiences of caring for sick children at home

Samuelson, Sarah; Willén, Charlotta; Bratt, Ewa‐Lena

doi:10.1111/jocn.12823

Cited by 20 publications

(38 citation statements)

References 38 publications

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Section: Discussionmentioning

confidence: 99%

“…If HAH is to be a service throughout the whole country, it will require committed collaboration between the specialist and primary healthcare services. HAH implies a new demand on the community services, both on competence and on resources, as seen in Sweden and in England (8,15). Samuelson et al and Spiers et al assert that it is challenging to be a nurse in primary healthcare services that lack paediatric education and experience so that nurses can be a resource for the families at home (ibid).…”

Section: The Hah Phase; Receiving Treatment and Care At Homementioning

confidence: 99%

“…Hospital-at-home is defined as the delivery of hospital services at home. It is an outreach service in which hospital staff visits the home, or it is based on the community health care service implying that community nurses perform the services (5,7,8). Children with acute illnesses and/or complex or chronic conditions can be offered HAH.…”

Section: Introductionmentioning

confidence: 99%

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Being in control and striving for normalisation: A Norwegian pilot study on parents’ perceptions of hospital‐at‐home

Aasen

Ponton

Johannessen

2018

Scandinavian Caring Sciences

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In recent decades, there has been a shift from hospitalisation to home care throughout the Western world, even for children. Hospital-at-home for children is in a developmental phase and represents a new service model in Norway. The aim of this pilot study conducted in a Norwegian healthcare setting was to explore how parents with a sick child experienced early hospital discharge and further care at home. The qualitative data are drawn from nine interviews with parents with a child admitted to hospital-at-home. Transcripts of interviews were analysed using a method of qualitative content analysis. In the analysis, Antonovsky's salutogenic perspective on how people cope in demanding life situations was applied. The results show that the parents experienced hospital-at-home as providing a calmer, more predictable family life compared to hospitalisation. They argued that good information and training in medical procedures prior to hospital discharge made hospital-at-home easier to master. The participants pointed out the importance of the professionals' competence and their ability to interact with the child and the parent. The certitude that they could return to the hospital at any time made them feel safe and in control. The parents associated hospital-at-home with a kind of normalisation of their family life. They had a prominent need for normalisation, and this was probably a motivation for agreeing to the hospital-at-home arrangement. The findings indicate that hospital-at-home for children is a good solution if the parents are well prepared and feel in control. In addition, certain structural conditions must be in place before this type of health care is established; there must be a certain volume of patients and the distance to the hospital must be clearly limited. Norwegian policymakers should initiate more pilot testing of hospital-at-home for children. Users and clinicians should be involved in establishing and evaluating these services.

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Section: Discussionmentioning

confidence: 99%

Section: The Hah Phase; Receiving Treatment and Care At Homementioning

confidence: 99%

See 1 more Smart Citation

Being in control and striving for normalisation: A Norwegian pilot study on parents’ perceptions of hospital‐at‐home

Aasen

Ponton

Johannessen

2018

Scandinavian Caring Sciences

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“…Family members experienced that staff kept focus on the ill child when the ill children became active partners in the planning of care while the needs of other family members were also taken into consideration, consistent with child‐centred care (Coyne et al., ). This is interesting, as home‐care professionals have expressed feelings of inadequacy due to limited paediatric experience (Castor et al., ; Chong & Abdullah, ; Samuelson et al., ).…”

Section: Discussionmentioning

confidence: 99%

“…Accessibility varies from 24 hr a day to a couple of hours a week (Parab et al, 2013;Parker et al, 2012) and can be organised for specific groups of patients, for example, children with a specific disease or for both children and adults regardless of illness (Parker et al, 2012). HCS can be provided by the hospital or the primary healthcare, and when HCS is provided by primary healthcare, children may constitute a minority of the patients and professional paediatric competence may be limited (Castor, Hallstrom, Hansson, & Landgren, 2017;Parker et al, 2012;Samuelson, Willen, & Bratt, 2015). In Sweden, accessibility to HCS for children is uneven (National Board of Health and Welfare, 2008), and when available, it can be provided by the hospital or by either county-or municipalitybased primary healthcare.…”

mentioning

confidence: 99%

A possibility for strengthening family life and health: Family members’ lived experience when a sick child receives home care in Sweden

Castor

Landgren

Hansson

et al. 2017

Health Soc Care Community

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Families often prefer home care to hospital care, and home-care services for ill children are increasing worldwide with limited knowledge of families' needs during curative and palliative home care. The aim of this study was to elucidate family members' lived experience when a sick child received home care from county-based primary healthcare services. A descriptive qualitative design was chosen and 12 families including sick children receiving home care and their mothers, fathers and siblings in the south of Sweden were interviewed between December 2015 and January 2017. The transcribed interviews were analysed using a hermeneutic phenomenological approach. The family members' lived experience was described in three essential themes:"Strengthening family life" relates to how home care induced freedom and luxury in a strained period of life and supported the families' everyday life. Usual social activities and relations were maintained as time and energy was saved when receiving home care. "Promoting health" relates to how the family members' burden of illness decreased as the child's signs of illness alleviated and the well-being of the whole family increased when the child received care in the home. This provided a peaceful respite for family members' psychosocial recovery. The third theme, "Creating alliances," relates to the importance of creating trustful alliances for communicating participation in care. If trustful alliances were not created, parents felt an overwhelming responsibility and family members became anxious. The findings suggest that care in the family's home is a useful complement to hospital care. Home care should be given with close attention to family members' needs and conditions, as positive effects of home care might be jeopardised when expectations and possibilities are not successfully shared. K E Y W O R D Schild, family members' lived experience, hermeneutic phenomenology, home-care services, paediatric careThis is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

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Nurses' Experience of Caring for Patients in the Community After Discharge With an Interventional Radiology Drain in Ireland: A Qualitative Study

Farrell

Halligan

2017

Journal of Radiology Nursing

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New kid on the block? Community nurses’ experiences of caring for sick children at home

Abstract: The implication of the study may contribute to efforts being made to extend and improve cooperation between paediatric clinics/hospitals and community health care.

Cited by 20 publications

References 38 publications

Being in control and striving for normalisation: A Norwegian pilot study on parents’ perceptions of hospital‐at‐home

Being in control and striving for normalisation: A Norwegian pilot study on parents’ perceptions of hospital‐at‐home

A possibility for strengthening family life and health: Family members’ lived experience when a sick child receives home care in Sweden

Nurses' Experience of Caring for Patients in the Community After Discharge With an Interventional Radiology Drain in Ireland: A Qualitative Study

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