Newfound compassion after prostate cancer: a psychometric evaluation of additional items in the Posttraumatic Growth Inventory

Morris, Bronwyn; Wilson, Bridget Anne; Chambers, Suzanne K.

doi:10.1007/s00520-013-1903-7

Cited by 21 publications

(31 citation statements)

References 26 publications

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“…Infectious diseases and vaccine update were analyzed according to a range of demographic, transplant, psychosocial and lifestyle variables assessed using the Functional Assessment of Cancer Therapy‐Bone Marrow Transplant (FACT‐BMT Version 4) , anxiety stress and depression ( The DASS 21) , chronic GVHD ( The Chronic GVHD Activity Assessment – Patient Self Report (Form B) and The Lee Chronic GVHD Symptom Scale) and the Fear of Cancer Recurrence (FoCR) Scale, and The Post Traumatic Growth Inventory (PTGI) score . For ease of completion all instruments were combined into one booklet.…”

Section: Methodsmentioning

confidence: 99%

A survey of infectious diseases and vaccination uptake in long‐term hematopoietic stem cell transplant survivors in Australia

Dyer

Gilroy

Brice

et al. 2019

Transplant Infectious Dis

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Background This cross‐sectional survey aimed to establish the prevalence of infectious diseases and vaccination uptake in long‐term allogeneic hematopoietic stem cell transplants (HSCT) survivors in New South Wales, in order to reduce long‐term post‐HSCT morbidity and mortality and enhance long‐term care. Patients and methods Hematopoietic stem cell transplants survivors aged over 18 years and transplanted between 2000‐2012 in New South Wales (NSW) were eligible to participate. Survivors self‐completed the Sydney Post BMT Study survey, FACT‐BMT (V4), Chronic Graft versus Host Disease (cGVHD) Activity Assessment Self Report, Lee Chronic GvHD Symptom Scale, DASS21, Post Traumatic Growth Inventory, and the Fear of Recurrence Scale. Results Of the 583 HSCT survivors contacted, 441 (78%) completed the survey. Respondents included 250 (57%) males and median age was 54 years (range 19‐79 years). The median age at the time of transplant was 49 years (Range: 17‐71), the median time since HSCT was 5 years (Range: 1‐14) and 69% had cGVHD. Collectively, 41.7% of survivors reported a vaccine preventable disease (VPD) with the most common being influenza‐like‐illness (38.4%), varicella zoster/shingles (27.9%), pap smear abnormalities (9.8%), pneumococcal disease (5.1%), and varicella zoster (chicken pox) (4.6%). Only 31.8% had received the full post‐HSCT vaccination schedule, and the majority (69.8%) of these had received the vaccines via their General Practitioner. cGVHD was not found to be a significant factor on multivariate analysis for those who were vaccinated. There was a trend toward lower vaccination rates in patients in a lower income strata. Conclusions Vaccinating post‐HSCT survivors to prevent infections and their consequences have an established role in post‐HSCT care. Improving rates of post‐HSCT vaccination should be a major priority for BMT units.

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Section: Methodsmentioning

confidence: 99%

A survey of infectious diseases and vaccination uptake in long‐term hematopoietic stem cell transplant survivors in Australia

Dyer

Gilroy

Brice

et al. 2019

Transplant Infectious Dis

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“…Associations between sexual function and fertility were explored against demographics, medical complications, post‐transplant medical therapies, treatments and complementary therapies, relationship status and social determinants, including income and occupational status. The relationships between sexual function and fertility were further explored against a range of validated survey instruments that measured quality of life [Functional Assessment of Cancer Therapy – Bone Marrow Transplant (FACT‐BMT Version 4; Cella et al , ; McQuellon et al , )], anxiety stress and depression [The DASS (Depression Anxiety Stress Scales) 21] (Lovibond & Lovibond, ; Crawford & Henry, ; Dahm et al , ), chronic graft‐versus‐host disease (GVHD) [The Chronic GVHD Activity Assessment – Patient Self Report (Form B) (Pavletic et al , ) and The Lee Chronic GVHD Symptom Scale (Lee et al , )] and an assessment of life changes in response to traumatic events (The Post‐Traumatic Growth Inventory score) (Tedeschi & Calhoun, ; Morris et al , ). For ease of completion all instruments were combined into one booklet.…”

Section: Methodsmentioning

confidence: 99%

A survey of fertility and sexual health following allogeneic haematopoietic stem cell transplantation in New South Wales, Australia

Dyer

Gilroy²,

Bradford

et al. 2015

Br J Haematol

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Four hundred and twenty-one adult allogeneic haematopoietic stem cell transplant (HSCT) survivors participated in a cross-sectional study to assess sexual dysfunction and infertility post-transplant. Survey instruments included the Sydney Post-Blood and Marrow Transplant (BMT) Survey, Functional Assessment of Cancer Treatment (FACT) -BMT, the Depression, Anxiety, Stress Scales (DASS 21), the Chronic Graft-versus-Host Disease (cGVHD) Activity Assessment-Patient Self Report (Form B), the Lee cGVHD Symptom Scale and The Post-Traumatic Growth Inventory. Most HSCT survivors reported sexual difficulties (51% of males; 66% of females). Men reported erectile dysfunction (79%) and decreased libido (616%) and women reported loss of libido (83%), painful intercourse (73%) and less enjoyment of sex (68%). Women also commonly reported vaginal dryness (73%), vaginal narrowing (34%) and vaginal irritation (26%). Woman had much higher rates of genital cGvHD than men (22% vs. 5%). Age and cGVHD were significantly associated with sexual dysfunction. 2Few survivors had children following transplant (33%). However, for those of reproductive age at HSCT, 22% reported trying to conceive, with 103% reporting success. This study is the largest to date exploring sexual function in survivors of allo-HSCT. These data provides the basis for health service reform to better meet the needs of HSCT survivors, including evidence to support counselling and education both pre-and post-transplant.

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“…Second, posttraumatic growth and benefit finding questionnaires may be expanded to incorporate subscales on increased empathy and health-related benefits. Indeed, Morris and colleagues (2013) added a subscale to the PTGI assessing newfound compassion and found evidence of its reliability and validity in a sample of prostate cancer survivors. Third, although links between positive changes and distress outcomes are equivocal at best (Shand et al, 2015), psychosocial interventions may build upon these changes (e.g., closer relationships with others, greater appreciation of life) to promote a rich and meaningful existence, even in the context of advanced disease.…”

Section: Discussionmentioning

confidence: 99%

Positive changes among patients with advanced colorectal cancer and their family caregivers: a qualitative analysis

Mosher

Adams

Helft

et al. 2016

Psychology & Health

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Objective This study assessed positive changes in patients with advanced colorectal cancer and their family caregivers following diagnosis. We compared self-reported positive changes within patient-caregiver dyads as well as self-reports and patient reports of positive changes in caregivers. Design Individual, semi-structured qualitative interviews were conducted with 23 patients with advanced colorectal cancer and 23 caregivers. A theoretical thematic analysis of interview transcripts was framed by posttraumatic growth theory. Results Patients and caregivers described five positive changes: closer relationships with others, greater appreciation of life, clarifying life priorities, increased faith, and more empathy for others. Additionally, only caregivers reported better health habits following the cancer diagnosis, and a minority of patients and caregivers reported no positive changes. In about half of cases, patients reported at least one positive change that was identical to that of their caregiver. However, in most cases, patient and caregiver reports of the caregiver's positive change were discrepant. Conclusion Findings suggest that positive changes are a shared experience for many patient-caregiver dyads and obtaining both patient and caregiver reports of caregiver positive changes provides a more comprehensive understanding of their experience. Interventions may capitalize on positive changes to promote meaningful living in the context of advanced cancer.

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Newfound compassion after prostate cancer: a psychometric evaluation of additional items in the Posttraumatic Growth Inventory

Abstract: Compassion is a highly salient PTG domain after prostate cancer. Further studies can explore this construct with more heterogeneous samples of cancer types and gender.

Cited by 21 publications

References 26 publications

A survey of infectious diseases and vaccination uptake in long‐term hematopoietic stem cell transplant survivors in Australia

A survey of infectious diseases and vaccination uptake in long‐term hematopoietic stem cell transplant survivors in Australia

A survey of fertility and sexual health following allogeneic haematopoietic stem cell transplantation in New South Wales, Australia

Positive changes among patients with advanced colorectal cancer and their family caregivers: a qualitative analysis

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