Next‐of‐kin’s conceptions of medical technology in palliative homecare

Munck, Berit; Sandgren, Anna; Fridlund, Bengt; Mårtensson, Jan

doi:10.1111/j.1365-2702.2012.04123.x

Cited by 7 publications

(4 citation statements)

References 36 publications

(75 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…However, participation in care should not equate with compensating for health care providers’ deficiencies or training professionals, but valued as an important resource. The rationale for their need to participate in the provision of home care is that they see themselves as patients’ advocates due to their closeness to their loved ones and due to their long caring experience, which agrees with other studies [ 31 , 48 ]. This valuable perspective helps to identify issues that professionals may not recognize and, therefore, foster patient safety.…”

Section: Discussionsupporting

confidence: 84%

“I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

Schaepe

Ewers

2018

BMC Nurs

View full text Add to dashboard Cite

BackgroundThe use of medical technology and the various contributing and interdepending human factors in home care have implications for patient safety. Although family caregivers are often involved in the provision of advanced home care, there is little research on their contribution to safety. The study aims to explore family caregivers in Home Mechanical Ventilation (HMV) safety experiences and how safety is perceived by them in this context. Furthermore, it seeks to understand how family caregivers contribute to the patients’ and their own safety in HMV and what kind of support they expect from their health care team.MethodsAn explorative, qualitative study was applied using elements from grounded theory methodology. Data were collected through individual interviews with 15 family caregivers to patients receiving HMV in two regions in Germany. The audiotaped interviews were then subject to thematic analysis.ResultsThe findings shows that family caregivers contribute to safety in HMV by trying to foster mutual information sharing about the patient and his/her situation, coordinating informally health care services and undertaking compensation of shortcomings in HMV.ConclusionConsequently, family caregivers take on considerable responsibility for patient safety in advanced home care by being actively and constantly committed to safety work.Nurses working in this setting should be clinically and technically skilled and focus on building partnership relations with family caregivers. This especially encompasses negotiation about their role in care and patient safety. Support and education should be offered if needed. Only skilled nurses, who can provide safe care and who can handle critical situations should be appointed to HMV. They should also serve as professional care coordinators and provide educational interventions to strengthen family caregivers’ competence.

show abstract

Section: Discussionsupporting

confidence: 84%

“I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

Schaepe

Ewers

2018

BMC Nurs

View full text Add to dashboard Cite

show abstract

“…Nevertheless, family members had a positive attitude to the concept of bringing the technology into the home [42]. Knowledge of how to use the technology and permanent access to support from healthcare professionals and significant others, enabled next of kin caregivers to take responsibility for providing necessary care and to facilitate patients learning to provide self-care [25, 36, 42–44]. Bezruczko et al [45, 46] developed a measure of mothers’ confidence to care for children assisted with medical technologies in their homes.…”

Section: Resultsmentioning

confidence: 99%

“…[53]SwedenDescriptive design;Phenomenographic approach;Qualitative study;Semi-structured interview n = 16 (nurses)There are no technologies specifically mentioned in the study itself, but reference is made to complex medical devices according to a definition and examples.‘Medical technology was defined and confined to the more advanced devices that may be present in the home, such as ventilators, suction devices, oxygen and various ports and pumps’.No medical diagnosis mentionedDescription of district nurses’ conceptions of medicaltechnology in palliative homecare.Munck, B., Sandgren, A., Fridlund, B., Mårtensson, J., 2012a. [36]SwedenExplorative descriptive design;Phenomenographic approach;Qualitative studySemi-structured interview n = 15 (next-of-kin)Pain, nutrition and volume pumps;Oxygen concentrators; Suctions and inhalation devices;Percutaneous endoscopic gastronomy (PEG);Subcutaneous vein ports.No medical diagnosis mentionedDescription of next-of-kin’s conceptions of medical technology in palliative homecare.Munck, B., Sandgren, A., Fridlund, B., Mårtensson, J., 2012b. [52]SwedenQualitative analysis;Explorative descriptive design;Phenomenographic approach;Interview n = 15 (patients)Pain pumps;Nutrition and volume pumps;Intravenous infusion: Disetronic pen for subcutaneous injections;Oxygen concentrators and cylinders;Nephrostomy catheters; Percutaneous endoscopic gastronomy;Subcutaneous venous port implantation.Different types of cancer;Amyotrophic lateral sclerosis (ALS);Heart failure;Chronic obstructive disease.Description of the patients’ ways of understanding medical technology in palliative home care.Nakayama, T., Tanaka, S., Uematsu, M., Kikuchi, A., Hino-Fukuyo, N., Morimoto, T., Sakamoto, O., Tsuchiya, S., Kure, S., 2014.…”

Section: Methodsmentioning

confidence: 99%

The use of advanced medical technologies at home: a systematic review of the literature

Haken¹,

Allouch²,

Harten³

2018

BMC Public Health

View full text Add to dashboard Cite

Research on medical technologies used at home has increased considerably until 2015. Much is already known on topics, such as user experiences; safety, risks, incidents and complications; and design and technological development. We also identified a lack of research exploring the views of nurses with regard to medical technologies for homecare, such as user experiences of nurses with different technologies, training, instruction and education of nurses and human factors by nurses in risk management and patient safety.

show abstract

“…To assess the capacity of the next of kin to participate in the care situation is also of importance regarding their own life and health situation, and their experiences due to the burden of care [21]. The research literature on next of kin and use of welfare technology has evaluated various uses of technology in home care [22][23][24][25][26]. However, there is a lack of corresponding research on next of kin and monitoring technology use that focuses on users in residential care.…”

Section: Introductionmentioning

confidence: 99%

Next of kin’s experiences with and attitudes towards digital monitoring technology for ageing people with dementia in residential care facilities. A qualitative study based on the voices of next of kin and care providers

Gullslett

Nilsen

Dugstad

2021

Scandinavian Caring Sciences

View full text Add to dashboard Cite

Aim: To explore next of kin's experiences and attitudes regarding information surrounding the introduction and use of technology to monitor residential home residents with dementia. Background: As our population ages, conditions increase health care and societal challenges. Digitalisation and welfare technology are important for developing health services for the ageing population; adapting information-sharing and communication about these pics with those involved, such as next of kin, will become increasingly important for developing appropriate services. Design: This qualitative study has an exploratory and interpretative approach, using indepth interviews based on a hermeneutical-phenomenological perspective. Methods: During the process of implementing a variety of residential care monitoring technologies, data were collected primarily via semi-structured, in-depth interviews with care providers and next of kin. In addition to the individual interviews, one focus group interview was carried out with care providers. Results: Next of kin are a heterogeneous group who need differing types of information -and different styles of communication -to convey information about their relatives in residential care. General attitudes among the next of kin towards welfare technology were positive. Three analytic themes that illustrate the next of kin concerns emerged: (1) concern for safety, autonomy and ethics; (2) resistance and optimism towards technology; (3) information about the use of monitoring technology. Conclusion: Digital monitoring technology is increasingly being implemented in residential care. Next of kin are salient in this context. Accordingly, best practices for informing and communicating in a collaborative process must be developed. While some next of kin have resources and are able to be highly engaged, others are unable or unwilling to be active participants in their family members' lives. It is critical that care providers are aware that next of kin are a heterogeneous group. Our proposed profiles may How to cite this article: Gullslett MK, Nilsen ER, Dugstad J. Next of kin's experiences with and attitudes towards digital monitoring technology for ageing people with dementia in residential care facilities. A qualitative study based on the voices of next of kin and care providers. Scand

show abstract

Next‐of‐kin’s conceptions of medical technology in palliative homecare

Abstract: It is important to limit the amount of personnel and materials in the home to avoid trespassing on the family's daily life. Medical personnel also have to be sensitive to what next-of-kin have the strength to do and not use them as informal caregivers.

Cited by 7 publications

References 36 publications

“I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

“I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

The use of advanced medical technologies at home: a systematic review of the literature

Next of kin’s experiences with and attitudes towards digital monitoring technology for ageing people with dementia in residential care facilities. A qualitative study based on the voices of next of kin and care providers

Contact Info

Product

Resources

About